when is somebody in power going to listen? - Page 3 — Scope | Disability forum
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when is somebody in power going to listen?

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  • [Deleted User]
    [Deleted User] Posts: 587 Listener
    edited October 2019
    Ahh that's nice of you @justdon thank you :smile:

    Don't worry about the post because I've just had my anxiety triggered by someone on here because they were making assumptions about something I said.

    yeah the fog is real lol.
  • paffuto10
    paffuto10 Community member Posts: 388 Pioneering
       When is somebody in power going to     listen?

    @pollyanna1052

    Hi Polly, 
     If it's any consolation here's an extract from the MP's (long) letter, who was helping with our adult son's case. 

    "It is unacceptable that these assessments are still causing vulnerable people additional stress and are being carried out in an unsatisfactory manner. 
    I have serious concerns about this issue and I believe we should be caring for all sick and disabled people, rather than making their lives worse through punitive assessments".

    Also 
    "The Disability Benefits Consortium" survey results indicate that 8 in every 10 facing PIP assessments find it makes their health worse, and two thirds feel their claim was poorly represented by the assessor. 
    A report by the Commons' Work and Pension Committee highlighted that there was a pervasive culture of mistrust,  creating a fear of F2F assessments and exacerbating anxiety. 

    "This evidence illustrates that instead of supporting people, the PIP process is often dehumanising, inaccurate and worsens existing health conditions". 

    He goes on to say that he is committed to developing a social security system that delivers dignity and empowerment and believes the Government should scrap the current regime.

    Labour MP (of course). 

    Made me feel a bit better though. 
    Hope it does the same for you Polly. 

    Also, I had my f2f for PIP renewal two weeks before yours and have just received the decision. 
    Positive result - same rate on both components as last 3 years.

    So fingers crossed Polly that yours comes as quickly and with a good result like mine. 
    Keep your chin up and stay strong xx

  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
    The user and all related content has been deleted.
  • [Deleted User]
    [Deleted User] Posts: 587 Listener
    @justdon tell me about it lol, I'm quite mindful when I'm typing things on forums and will even delete/edit things if I feel they sound off.

    If I typed how I speak it would have swearing in it lol.


  • worried33
    worried33 Community member Posts: 492 Pioneering
    First off, try not to be too downbeat, you not had a decision yet, have you asked for the medical report?

    I can offer my personal opinion on PIP whether its fit for purpose.

    I can understand the basis of checking all "new" claimants.  I also having examined descriptors for both DLA and PIP, think for the DL side of things PIP is better than DLA, as it has a wider scope.  I always believe in a system that helps as many people as possible.

    I do think PIP is harsh on the mobility descriptors, 20m is an incredibly short distance and my view is someone who can manage 20m vs someone who can manage 50m is going to have not much functional restriction difference.  I also think the LRM should be higher than 50m.  Someone who can manage 150m e.g. is still going to be noticeably restricted on day to day stuff.  Thats a short enough distance e.g. to need taxis instead of buses.  But I dont consider PIP unfit for purpose.

    When comparing it to ESA, ESA has much harsher descriptors, ESA also has a cap of 3 years on reassessments, with typical periods been between 6 and 18 months.

    Clearly the PIP waiting times need sorting out tho.  The amount of stress and ordeal people are been put through is barely acceptable in my opinion.  I hope your wait for a decision is brief.  I feel if you get a copy of your report it will help. 
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
    The user and all related content has been deleted.
  • DuffersMum
    DuffersMum Community member Posts: 196 Pioneering
    WF2k said:
    justdon My first assessor was a physio but she understood both my mental and physical health, the assessor I had in April was a nurse, nothing else, not specialised in anything apart from lying.
    My assessor was also a nurse who appears to know better than my GP, consultant and the NHS guidelines, I think I should be writing to the government to suggest they make her Health Minister...

    She was clueless about my condition and a huge part of my assessment report appears to have been copied and pasted from somewhere else.
  • [Deleted User]
    [Deleted User] Posts: 587 Listener
    @DuffersMum I've noticed other things with my report apart from the copy and pasting and it's the dates on the report.. they don't tally *shrugs*
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
    The user and all related content has been deleted.
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
    The user and all related content has been deleted.
  • [Deleted User]
    [Deleted User] Posts: 587 Listener
    edited October 2019
    @justdonI did wonder then I thought you were doing like like a profanity thing were people put symbols instead of words lmao XD

    It would be good if they thought about getting someone who health problems to help with the DWP stuff, but that's too easy isn't it eh lol.





  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
    The user and all related content has been deleted.
  • paffuto10
    paffuto10 Community member Posts: 388 Pioneering
    @DuffersMum

    I thought I had blown my assessment right from the start. 
    My assessor was also a nurse. 

    I have arthritis in both hips, spondylosis, sciatica and prolapsed disc. 

    She waited for me as I shuffled slowly across the room, holding on to husband with one hand and stick with the other. As soon as I got into the room whilst I was struggling to sit, hubby lowering me into chair, she asked if she could go through some movements with me?!! 

    I snapped angrily "does it look as though I can do movements for you.?" 

    However, I also have PTSD so I was able to put the snappiness down to that  o:)
  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
    Phew! and WoW! and yeh! What a fantastic response and I`ve obviously got you all incensed with my post.

    Now let me try to reply to some......

    @justdon & @chariads...I`m glad you 2 didnt get to written fisticuffs and you made it right...we dont want or need any fall outs here

    @worried 33....you say you dont feel PIP is unfit for purpose....a spokesperson from Scope said it was and so many here can vouch for that with their results/assessments.....I went through the ESA system when I was of working age and dont remember it giving me quite as much anxiety...I do recall the form taking 3 hours to fill in, compared to 2 hours with PIP....I`m 67 now and had to retire on ill health grounds at 47!!! So I`ve had 20 glorious years at this game!

    @paffuto10...who was that MP and when was it? is he/she still in power? They sound like they know what they are talking about

    @wilko......no, I dont want to ask for my assessment report before I get my decision, as it would push me over the edge, if it was full of inaccuracies......but didnt someone say it is needed for an MR? Does anyone know if you get it with your results of an assessment please?

    @cristobal....a petition? I wouldnt know where to start, but I`ll ask Scope about it

    To everyone else. Thankyou so much for your replies. I truly hope all your f2f assessments, MRs and tribunals go well and you live to tell the tale! Me too! xxxx
  • [Deleted User]
    [Deleted User] Posts: 231 Pioneering
    The user and all related content has been deleted.
  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
    There is a petition already over half way there...I`ve just signed it and am number 5381....they need 10,000 signatures to get it to parliament. You can find it under my post `question to Scope advisers`...Poppy has kindly provided us with the necessary. Come on guys...get signing and dont forget to click on the email they send you, or your vote won`t count! xxx
  • mrbuttons
    mrbuttons Community member Posts: 221 Pioneering
    i cant find the petition and iwant to sign it. where is it? sorry if im being a bit dense.
  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
    edited October 2019
    mrbuttons said:
    i cant find the petition and iwant to sign it. where is it? sorry if im being a bit dense.

    Hi, type in...https://petition.parliament.uk/petitions/274312
    Thankyoux
  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
    mrbuttons said:
    i cant find the petition and iwant to sign it. where is it? sorry if im being a bit dense.

    Hi again, have you managed to sign the petition? xxx
  • mrbuttons
    mrbuttons Community member Posts: 221 Pioneering
    @pollyanna1052 the first time i clicked the link it didnt work but i kept trying and will sign it now. thanks for the info

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