Welcomes and introductions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Want to give us your opinion? Complete our annual survey.

Hi, my name is Funboy1!

Funboy1Funboy1 Member Posts: 9 Connected
Hi I'm Mal 

I have MS  and I was speaking to my neuro this morning  , he suspects I also have MG ,  he wants some bloods and a face to face appointment  

Replies

  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @Funboy1

    Good Evening & Welcome to our online community/family.

    I am one of the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help you with?????

    @steve51
  • chiariedschiarieds Community champion Posts: 7,568 Disability Gamechanger
    Hi @Funboy1 - & welcome to the community, Mal. Am I correct in presuming by MG you mean Myasthenia gravis?
    Will you have long to wait to get a blood test, & then see your neuro?
  • Funboy1Funboy1 Member Posts: 9 Connected
    chiarieds said:
    Hi @Funboy1 - & welcome to the community, Mal. Am I correct in presuming by MG you mean Myasthenia gravis?
    Will you have long to wait to get a blood test, & then see your neuro?
    Yeah Myasthenia gravis  , I was speaking on the phone to my neuro this morning , he is arranging  for a blood test to be done at my GP surgery and said we will have a face to face meeting in about three weeks  , finger crossed that I don't have it but  I most  the symptoms  , my left eyelid droops all the time and both droop when I'm tired 
  • chiariedschiarieds Community champion Posts: 7,568 Disability Gamechanger
    Hi @Funboy1 - pleased you don't have too long to wait, & hope you don't have Myasthenia gravis too. Drooping eyelids can have many causes. I have this with both due to Ehlers-Danlos Syndrome, tho not all have this. Please keep in touch, & let us all know how you get on. My best wishes. :)
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @Funboy1

    Good Morning I do hope that you are having a good day??

    I have also got a rare neurological condition “Brain AVM”

    This causes the same symptoms as you are mentioning in your post.

    Please let me know if you need any further help.

    @steve51

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @Funboy1, I hope are able to get some answers soon. Please do let us know how you get on. :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • Funboy1Funboy1 Member Posts: 9 Connected
    Thank you everybody  :) 
    This has all come out of the blue , I have always put everything down to MS  
  • janer1967janer1967 Community champion Posts: 8,657 Disability Gamechanger
    Hi @Funboy1 Welcome to the community great you have joined us and I hope you get an appointment soon and find out the results. Good luck and I look forward to seeing you around and hear about your progress
Sign in or join us to comment.