Hi my name is Sasha21
Sasha21
Community member Posts: 10 Listener
Just looking for company and get help and advice on being on here. Give help if anyone needs it. I have been told I have got hereditary spastic paraplegia,fibromyalgia, early menopause, diverticulitis, irritable bowel syndrome and probaly other stuff going on as well. Been ill all my life.
Comments
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Hi and welcome yo the community
And for telling us about yourself
Feel free to join in or ask any questions -
Hi, thanks
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Welcome to the community @Sasha21 how are you doing today?
Disability Gamechanger - 2019 -
thanks in alot of pain.
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Hello @Sasha21
Welcome to the community and thanks for introducing yourself.
I'm not sure how much of the community you have browsed, but the virtual coffee lounge is always a good place to start Online Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
thanks nice to meet you.
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Welcome to the community @Sasha21 I'm sorry to hear you're in a lot of pain. Have you spoken to your doctor, a specialist, or a pain management team about getting the pain under control? Is it a new pain, or something you often experience?
Please do give us a shout if you need any support navigating the site. -
It is something I often experience but just seems a bit worse at the moment. I am waiting to hear back from my Doctors.
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I'm glad you've spoken to them about it @Sasha21. Fingers crossed they'll get back to you soon. Did you contact them regarding all of your conditions? Are you under any specialist teams?
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Not under any special teams. They got back to me had a load of blood tests today.
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Hopefully the blood tests will give some kind of indication of what might be happening @Sasha21. Are you able to do anything to distract yourself from the pain at the moment?
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Not really as no matter what I do it hurts. How are you? Thanks for asking by the way nice to have someone to talk too.
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I'm sorry to hear that @Sasha21. I know you said you weren't under any specialist teams at the moment, but have you ever asked to be referred to a pain management clinic? They might be able to help you get the pain a little more under control.
That's okay, all of our members are here for you I'm pretty well, thanks for asking! Plodding my way through lockdown.
Do you know when you might get the results from your blood test? -
i tried that but no luck with helping the pain.Next week re blood tests.
Glad to hear your prettty well. -
blood results normal dont know what to do now as I wasnt just asking about the pain I was asking about swelling as well. But just got an email that you cant reply saying we cant do anything about the pain see a physio. That was it.
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