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First post

Nic34Nic34 Member Posts: 2 Listener
Hello im nicola 34. This is my first post. Nice to meet you. I struggle to walk and use aids such as a walking stick or wheelchair on bad days. I have chronic tiredness,  and chronic pain. I'm getting rested for m.s . I'm trying to stay above water n be positive in a differcult situation. 

Loosing my independence im finding hard


Replies

  • Sandy_123Sandy_123 Member Posts: 1,821 Pioneering
    Hi ya @nic34 welcome, have you spoke to your Dr about pain management. It's not nice being in pain. Good luck with the tests your having. 
  • janer1967janer1967 Member Posts: 12,055 Disability Gamechanger
    Hi and welcome glad you have joined 

    Lots of us here can empathise with how hard it is to adjust to become less independent 

    I would personally describe it similar to the grieving process 

    It will get better and we are here to support where we can 
    Here to help with my experience in hunan resources and employment rights 
  • Cher_ScopeCher_Scope Posts: 4,417

    Scope community team

    Hi @nicola34 and welcome to our community.  How are you doing today?

    That sounds like a really tough position to be in and my heart goes out to you.  I think the 'not knowing' period before getting a diagnosis can be especially tricky, and I found it a relief to be able to put a name to what was going on inside my body.  Do you feel like you're getting enough support in terms of both your physical and emotional health?  

    You might find it handy to browse the chats we have going on in our neurological conditions and physical impairments discussion boards.  While, if you'd like to meet more of our lovely members, the virtual coffee lounge is a nice place to kick back and relax in!

    I hope you are having a nice chilled Sunday and looking forward to speaking with you more.  Take care :) 
    Online Community Co-ordinator

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    Concerned about another member's safety or wellbeing? Flag your concerns with us.
  • Nic34Nic34 Member Posts: 2 Listener
    Hi thanks for the useful information.  Il definitely take a look. I feel abit upsetting today if I'm honest. I'm not as able bodied as I was a year ago and I'm having a pretty rubbish mothers day. I feel sick and drained to. I'm so sick of having to go to more and more hospital appointments to. I don't feel like I'm getting enough support but I just keep moaning about pain constantly and very negative 😕. 

    I hope your having a good day and weathers ok xx
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