Hi I’m Bartosz
Bart87
Online Community Member Posts: 8 Listener
Hi guys I’m Bartosz, coming up to 37 this year.
Originally from Poland but have been living in Scotland for 17 years up in small town called Crieff(previously stayed in Perth), before my diagnosis from day one I was working as a coffin maker. Since August 2022 on disability…
Prior to my diagnosis I was going to GP for nine months telling them I have a change of taste, smell, sudden anxiety blurred visions etc… treated me for acid reflux 😆 made a complaint and negligence against local NHS,my diagnosis after surgery is/was Brain tumour Astrocytoma grade 2 , partially removed after surgery completed radiotherapy and finished off with chemotherapy in July 2023.
Prior to my diagnosis I was going to GP for nine months telling them I have a change of taste, smell, sudden anxiety blurred visions etc… treated me for acid reflux 😆 made a complaint and negligence against local NHS,my diagnosis after surgery is/was Brain tumour Astrocytoma grade 2 , partially removed after surgery completed radiotherapy and finished off with chemotherapy in July 2023.
Diagnosed accidentally when I was found with seizure 29 th of July 2022 , original mass of tumour was 7,5x5,5x5cm, only 66% removed as rest grew into brain vessels…
Predictions… started from few years to decades now, oncologist are very optimistic 😅
im not too bad but still being hit with side effects from time to time… on 6 monthly check ups mris. Recently had a CT as been having daily mild headaches, came back ok, up to consultant now is she wants to bring my next mri forward to have a detailed look. I may be pushing myself to hard, trying to keep myself busy making birds houses in my shed.
i went through hell and back between 2019-2022 with now I know personality changes etc.
If it wasn’t for my family and some people I wouldn’t make it.
apart fae that I got dark sense of humour 😅
anything you want to ask feel free.
Predictions… started from few years to decades now, oncologist are very optimistic 😅
im not too bad but still being hit with side effects from time to time… on 6 monthly check ups mris. Recently had a CT as been having daily mild headaches, came back ok, up to consultant now is she wants to bring my next mri forward to have a detailed look. I may be pushing myself to hard, trying to keep myself busy making birds houses in my shed.
i went through hell and back between 2019-2022 with now I know personality changes etc.
If it wasn’t for my family and some people I wouldn’t make it.
apart fae that I got dark sense of humour 😅
anything you want to ask feel free.
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Comments
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Still kicking , in general I’m ok but and stable, had a small stroke during surgery sometime I get pains and aches in my left leg. The worst is I feel like my memory from 2019-2022 had been erased , but getting flashbacks 🤣0
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As my tumour was/is located in right front lobe0
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Welcome @Bart87, sounds like you've been through a lot! Great to have you with us, though
I hope you'll enjoy using the community and getting to know everyone. 1
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