ASD/ADHD and Right to Choose

Albus_Alumni
Albus_Alumni Scope alumni Posts: 11,423 Championing
edited February 2024 in Autism and neurodiversity
Did you know you can choose who you get assessed by for autism and ADHD through the NHS if you're in England?  

With waiting lists hitting record highs over over 3 years for an NHS assessment, I thought I should highlight a way of cutting years off that wait that I've used myself.

NHS Right to Choose basically means you have autonomy over who your GP refers you to when it comes to treatment. Be it a certain company, or an individual surgeon, right to choose gives you that freedom and with so many people learning more about ASD/ADHD, wait times have sky rocketed. 

The basics of this are;

1.  Have a look online and find a provider that deals with the assessment you need. There's many out there now and all have their own way of doing things, so it's worth looking around to find a place that is the right fit for you. If you're new, you'll have to choose a local assessor, if you've already been waiting for 3 months, you can then ask for a national assessor.  Also please note the provider must have a commissioning contract with a Clinical Commissioning Group (CCG) or NHS England for the required service.

2. Get a GPs appointment and talk through with your GP why you feel you need an assessment, be honest and open with them and mention you would like to use right to choose for an assessment. Sometimes your doctor will say no, but you can look into a second opinion, or even take a supporting letter with you.  ADHD UK have a great printable PDF for this here. Their website also talks you through the diagnosis pathway, which is very useful to know in advance. 

3. The GP will then (hopefully) refer you to your chosen company, who will then contact you to arrange a proper assessment.  Most of these are now done via video chat, on Zoom and the like, so no need to worry about having to go to a strange new place. :)

Wait times can still be many months, but I was assessed within 7 month, which is much better than the 3.5 years I was quoted by my GP. 

I've included a couple of links to a few of the more well known assessors below.  Well known can also mean a slightly longer wait time of course. (Some will deal only with ASD or ADHD, others offer both.)

Psychiatry UK. 
ADHD 360
Dr J and co. (A smaller clinic and less well known)
S4D (who I used)

Some clinics will be able to offer medication for ADHD once assessed, but not all can. So if you're wanting an ADHD diagnosis, it's worth checking to make sure this can be done first. 

 
Please note you cannot use Right to choose if;

-already receiving mental health care following an elective referral for the same       condition.
-referred to a service that is commissioned by a local authority, for example a drug   and alcohol service (unless commissioned under a Section 75 agreement)
-accessing urgent or emergency (crisis) care.
-accessing services delivered through a primary care contract
  in high secure psychiatric services.
-detained under the Mental Health Act 1983
-detained in a secure setting. This includes people in or on temporary release from     prisons, courts, secure children’s homes, certain secure training centres, immigration removal centres or young offender institutions.
-serving as a member of the armed forces (family members in England have the same   rights as other residents of England.


I hope this information helps you in your search for answers.  If you have any questions, I'm more than happy to answer them to the best of my ability here.

Good luck!

-Albus- 
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Comments

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing
    Hey there @bobby123! Usually the 2nd assessment should happen fairly quickly after the first one and it's best to stick with the one provider as changing mid diagnosis could cause a lot of confusion.
    I'm glad you're nearly there though, how're you feeling about it? 
  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing
    Ouch! Ok @bobby123 I'd definitely ask your GP about Right to Choose, 18 months between the two assessments is a very long time and I've not heard of that happening before. It may be quicker going through a completely different provider for both assessments. 
      The second assessment is pretty much just another assessor asking for any clarification for answers from the first assessment. 
  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing
    That's quite a wait between assessments @eeL, but certainly not unheard of.  I was very lucky as my appointments were a week apart thanks to Right to Choose. I got my official diagnosis on my birthday!

    But it does feel weird that you get your diagnosis and are just told to look at the National Autistic Society website and that's it. Hopefully there will be some kind of standardisation for after care in the future.
  • sunshine41
    sunshine41 Online Community Member Posts: 44 Connected
    Hello, thank you for all the information! My GP automatically sent me Psychiatry UK website for me to do my ADHD assessment through as he said our local clinicians would be longer. I assumed that was the only company I could use. So does this mean I could use others, such as the ones mentioned above. Does anyone have experience with Psychiatry uk? Thank you so much!
  • sunshine41
    sunshine41 Online Community Member Posts: 44 Connected
    @rubin16 Thankyou for the information. I will look into those online classes for sure as my therapist thinks I may have autism too.

    All the best for your ADHD assessment :) 
  • Scrumptious67
    Scrumptious67 Online Community Member Posts: 56 Empowering

    @Albus_Scope Thanks for sharing this very valuable information. Is there a way to 'pin' this to the top to make it easier to find please? I know I'll be coming back to it to refer to but won't remember where it is!

  • Scrumptious67
    Scrumptious67 Online Community Member Posts: 56 Empowering
  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing

    No problem @Scrumptious67 looks like a team mate pinned it as I was off for a few days. I'm glad you've found my post useful. 😊

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    I recieved email saying adhd questionnaire but was blank will phone tomorrow does that mean I'm closer to assessment

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing

    Every day will take you one step closer to an assessment @Catherine21 but I'd be unable to say what the blank email is about. Will you let us know when you call?

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    I called lady Said will resend tomorrow asked the important question how long is the waiting list 4 years ! I'd really want the autism test

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing

    Waiting times are very silly currently @Catherine21! I'm on year one of waiting for my ADHD assessment, only another couple of years to go.

    So many people are going private now, but the problem of getting an ADHD assessment that way, is often the providers can give the diagnosis, but can't give the medication, so people are having to wait for another 3 years to get an NHS diagnosis. It's all very silly.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    So frustrating when you know 100 percent you have adhd and autism wow is it expensive going private if not being nosey hope you get an appointment soon

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    Ah yes that's crazy would love to experience what it's like just not to think every second of the day no wonder have no time fir people I've already had a million conversations in my head with them lol

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing

    haha, I know what you mean @Catherine21 I was the same before my assessment.

    Though I think (just personal opinion) if you're sure you have ADHD or ASD, it's ok to self diagnose. It can be an unpopular opinion of course.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    IIs ASD adhd and autism if so 100 percent but in my teens I wasn't quiet I used to be loud but think that was to hide dyslexia as didn't have a clue what teachers was on about only lesson I liked was art as lady wrote about being 52 and just diagnosed I understand I think I got Bpd and bdd through trauma of undiagnosed adhd and frustrating when yourelize all these years it wasn't all your fault hardest part is no career in and out of jobs relationships on out of trouble I'm not blaming everything on MH really wish I could get a job and hold it down hate being part of The system I'm sorry I was wrong to be so rude to you all you have been is helpful and supportive I appreciate that your a kind person to still offer me support thankyou

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing

    There's no need to apologise at all @Catherine21 it's all in the past, but thank you, it's really appreciated. 😊

    It's very common for women to get misdiagnosed with BPD as there's so many similarities to Autism. I can totally empathise though, being late diagnosed has been a blessing to me, but it does conjure up all kinds of other "what if" questions about my past. But it's allowed me to be more gentle with myself and I now know why I react to certain things like I do. So it's allowed me to grow as a person. I'm really hoping it'll help you too. 😊

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing
  • apples
    apples Online Community Member Posts: 556 Empowering

    I’ve been referred for an asd assessment June last year and told the wait is 3 years, and recently been referred for adhd assessment told 3 year wait also, when I asked my gp about the adhd referral they said I was referred by email so I have no idea if it’s been done or not as not had any correspondence