ASD/ADHD and Right to Choose

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Comments

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    Can I ask what job you do ? I'm panicking think what job could I actually do thankyou for the message very kind and Yes instead of THE BELLS be screaming THIS HELL oh gotta to laugh I be wailing later

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    I would google The gateway in your area mental health services that deals with referrals my area Reading where assessment takes place I phoned them yesterday they said yes on list can take four years but sending questionnaire through post as no good online definitely try that not a great response from your doctor

  • apples
    apples Online Community Member Posts: 556 Empowering

    Thanks Catherine, I will have a look but it’s hard for me to understand any of it tbh, when I last phone the service that my asd was referred to they said they were employing more staff this year due to the list but still saying the 3 years

    have You been referred for adhd and asd ?

  • egister
    egister Posts: 1,110 Pioneering

    It is necessary to exempt from paying taxes while waiting for a doctor. Then I think doctors will appear in the NHS quickly.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    How mine went was spoke to doctor about adhd and he gave me questionnaire filled out then he said he will refer me so then I received another form from assessment centre filled in sent back then I recieved email saying been accepted so on waiting list can take 4 years so I'd suggest you google nearest adhd assessment centre to you mines reading phone and ask if on list they will be able to tell you hope my message makes sense

  • Little_Owl
    Little_Owl Online Community Member Posts: 15 Contributor

    Has anyone used Dr J and colleagues for ADHD assessment? How was your experience? I'm planning to ask my GP for a referral but just wanted to make sure I'm chosing the right provider for me (I really dislike video calls, hence why I'm avoiding the online providers). Any suggestions on how to approach this with my GP?

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing

    Hey @Little_Owl, the way it went for me was the GP went through a quick pre-assessment with me to see if I reached a certain threshold on that then they just put the referral through. It wasn't a very in-depth process. I was then able to use the referral to go to a reputable private clinic. The wait for the NHS clinic in my area was over 2 years at the time.

    If the first GP you speak to doesn't take it seriously I would suggest you could request a second opinion from one of the other doctors. I did not have that issue personally!

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,423 Championing

    One important thing to check first @Little_Owl is whether the provider will be able to give you prescriptions for any ADHD medication you may decide you need. Many don't, so you'd need to go back through the NHS for another assessment (another 2+ years!) before you'd be allowed them.

  • Little_Owl
    Little_Owl Online Community Member Posts: 15 Contributor

    Thanks @Jimm_Scope. I had a bad response from a GP when I asked for an autism assessment which is why I'm a bit worried about asking for this one. In the end it was my psychiatrist who referred me. I will obviously avoid that particular doctor but it's still a bit worrying.

    @Albus_Scope I have emailed the provider to check that they prescribe medication and they said that they do "titration" of medication which I took to be the same as prescribing? Titration generally means finding the right dose so I would assume that's OK.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,508 Championing

    Hell no I'm 53 and just been put on list I probley 57 when assessed and its really important to me as I can image it is for you too ! Well it's important because if you do get diagnosed work would have to put in reasonable adjustments not just that it's important for us all our life's struggling we been robbed of many years decades literally decades makes me so angry id go back and insist or I'd see another doctor your life your choice do not let them gaslight you x

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing
    edited November 2024

    I would honestly complain about such a response. Putting aside whether an assessment was right or not the doctor shouldn't be talking to you like that. I can't imagine much would come of it but things like this do bother me a lot when they come from the professionals who are supposed to have some idea of how these conditions can affect a person.

    I would also, as others have recommended, speak to another doctor about this.

  • Amaya_Ringo
    Amaya_Ringo Online Community Member Posts: 417 Championing

    I was diagnosed with autism in 2005 and at the time my GP referred me but warned me it might be that I'd have to travel out of the area for an assessment. In the end I was lucky, I had an assessment in my area and within six months of being referred. But that was 2005. While everyone I know thinks I also have ADHD and my mother has been saying so since I was younger, I've just not thought about getting another assessment because a: I already have a ND diagnosis, and it's hard to know where one might end and the other begin, and b: I would be taking up space in the queue needed by people who haven't had any assessments yet.

    But talking to my ADHD diagnosed colleague is always interesting because we have points of clear overlap and then points where we are completely different (for example, she is much more confident in social situations than I am).

    Wishing everyone still waiting for assessment good luck and that they get the waiting lists down :)

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,854 Championing

    πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ’—

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,854 Championing

    Those hugs for everyone here πŸ€—

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,854 Championing

    Please take care of yourselves everyone πŸ’œ

  • TinaClarke
    TinaClarke Online Community Member Posts: 7 Listener

    unfortunetly in Jan 2021 I had not heard of right to choose, even though I had waited from sept 2020 to get a handle on things (when i figured it out) before asking my gp. She referred me, I filled in a form and I've been on the waiting list ever since…i was 60 then I'm 65 now. I rang last year and they said another 18 months as they had several staff out on long term sick.

    I think the journey to the accessment is just as important, and i've learnt a lot by being the fb asd groups. I thought I had no stims, I do. I discovered my most intense traits, and more insight into melt downs so they are over quicker. How my family can say and do things to help me understand what's going on better. Humour, I have my own…i don't understand most humour lol.

    Anyways, If you got referred to the nhs directly, don't worry about the wait…though i could have done with the results because I wanted to put in for pip before I reach my pension age….

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 15,455 Championing

    thank you for this as I didn't know about this

  • Andi66
    Andi66 Online Community Member Posts: 1,379 Championing

    Had my first Asd assessment in 2019, then final 2 in 2022

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    I've been waiting since 2017 for a diagnosis :(

  • mrforgetful
    mrforgetful Online Community Member Posts: 10 Listener

    I am autistic, have chrones & diverticulitis. Plus other problems , always was clased as a naughty kid when growing up, I tend to have outbursts that have blind rage with them .. havnt heard a thing about my adhd assement just a letter saying they were at 2019 cases that was in 2022 I got that letter & I'm still waiting βœ‹οΈ thank god for spell check on my device or no one would read what im typing hahaha πŸ˜…, hello everybody hello πŸ˜€