Upcoming changes to benefits

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Comments

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing
  • Autistic_Superpower
    Autistic_Superpower Online Community Member Posts: 23 Contributor

    My question then, and forgive me if I’m being dense everyone, is would this be 4 points on PIP as a whole or 4 points for each section (Daily Living & Mobility)?


    For instance, I get 18 points for mobility, an 8 and a 10, and currently 10 for Daily Living (though that is going to appeal) - With five lots of 2 points each.

    If I get another 2 points elsewhere for the 12 at my appeal, when it’s next reviewed would I still get enhanced for Daily Living as I got more than 4 in Mobility?

    Or would I suddenly be ‘cured’ and drop to nothing for Daily Living because I get no more than 2 points in each section of it? It’s madness!

  • FluffyCatMeow
    FluffyCatMeow Online Community Member Posts: 95 Contributor

    I’m so sorry you’re going through this!

    Remember, we don’t actually know what’s going to be announced, and we might not lose LCWRA (or if there is a cut, it might not be as much as we’re worried about) so hopefully it’ll be better than expected and not our worse-case-scenario 💜

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    I agree , it’s not knowing that’s worse . But I’m sure it’ll take time to come into effect , if it comes in .

  • geckobat
    geckobat Online Community Member Posts: 190 Empowering

    It definitely makes everything harder. Thankful that some understand at least

  • JonnycJonny
    JonnycJonny Scope Member Posts: 253 Empowering

    There are some in the UC LCWRA group ( ESA Support Group ) who are in a 'severe conditions category' ( it can be Googled ) whereby they are completely exempt from further assessments - this is apparently explicitly set out in their award letters. It 'may' or 'may not' be those claimants who will be 'protected' from a rate cut tomorrow or they will be given a new named health benefit.

    All will be revealed tomorrow.

  • Autistic_Superpower
    Autistic_Superpower Online Community Member Posts: 23 Contributor

    One other thing I don’t know if the Decision Makers take into account - I know everyone’s conditions are different, but I also have supposed ‘lower level’ illnesses like Autism & ADD which I could deal with, even if it was a struggle, while I was fit and healthy.


    However now I’ve got long covid, COPD and other illnesses that have taken all my energy, I don’t have the same reserves to deal with problems I could ‘manage’, albeit with great difficulty, when I wasn’t sick. Will that be taken into account?

  • tcellmutation
    tcellmutation Online Community Member Posts: 341 Empowering
  • middali
    middali Online Community Member Posts: 27 Connected

    @FluffyCatMeow I guess so, but if I loose any of the money I won’t be able to afford anything :( will it take a vote in parliament to change the amount people are paid? And if they plan to do that, then why did they increase it for April x

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    if it’s going to appeal does that mean you’ve already put a review form in ? Cos if you have I don’t think it would change to any new system they’ve planned as nothing has been passed yet .

    The way I read the points and I could be wrong but it’s 4 points on one question then any 4 points on other questions so 8 total for lower


    4 points one question plus 8! Points for other questions total 12

    I haven’t read anything on mobility but the points are different on that . It’s strange but I haven’t seen anything regarding motability at all .

  • philevan77
    philevan77 Online Community Member Posts: 31 Contributor

    problem is there are people out there tonight who are worried sick by all this and I’d bet there are people who can’t take much more of this I work and have pip but I think I will lose everything I have and I feel what all you are feeling xxxxx

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    I don’t think I even have an award letter . I remember they assessed me every 11 months for about 3 times. 3rd time they called to say they’re doing paper review. I kept esa and haven’t had an assessment in about 7 years or more .

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing
  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    it’s a vicious circle. You can’t do anything cos of fatigue ( both physically and mentally) then the fibromyalgia pain is worse cos you haven’t done anything. You can’t win

  • Autistic_Superpower
    Autistic_Superpower Online Community Member Posts: 23 Contributor

    Sorry I find all these terms overwhelming, I’ve actually done a mandatory reconsideration already and I’m going to tribunal.


    I’m still at the ‘gathering evidence’ stage of my tribunal though and making sure I have further evidence, and I have someone acting on my behalf with all this as an Advocate due to my numerous issues (I’m going to call them up tomorrow actually)

    I thought the ‘4 points’ thing meant they were doing away with all things on the PIP application process that gives less than 4 points, as in they no longer counted?

    This is the problem that it’s all so unclear, I have a multitude of illnesses that will never get better and now I (like so many others) are worried this safety net has been ripped away from us all.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    I know, I think lcwra or esa is the biggest worry as i physically cannot work . That’s where they hold the power imo

  • JonnycJonny
    JonnycJonny Scope Member Posts: 253 Empowering
    edited March 17

    A 'severe conditions category' has been around for a number of years - since 2016/2017 I believe. As I say, the letter would clearly state no further assessment required.

    It could be these severely impaired claimants who are spared a cut to their benefit.

    Speculation only - facts tomorrow.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    imo whatever they put in the green paper will have no bearing on your tribunal . Hopefully you’ll get a long award so by the time you have a review things will be easier.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    how often are esa reviews usually ? Or even lcwra

This discussion has been closed.