Upcoming changes to benefits
Comments
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I have both ME and fibromyalgia and I have diagnosis going back 14 years with detailed consultant and gp reports confirming how these conditions affect my level of functioning.
I send them in each time I am reassessed yet I only get 3 year awards and twice they reduced my mobility from high to standard but I got it back by doing mr.
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I don’t think they actually know what they’re doing at this point. I wonder how many times they’ve changed that green paper ?
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There are some in the UC LCWRA group ( ESA Support Group ) who are in a 'severe conditions category' ( it can be Googled ) whereby they are completely exempt from further assessments - this is apparently explicitly set out in their award letters. It 'may' or 'may not' be those claimants who will be 'protected' from a rate cut tomorrow or they will be given a new named health benefit.
All will be revealed tomorrow.
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I have to fight even for half of my family to understand this, just how awful constant pain is and how much it drains. What hope do we have of getting the government to understand it.
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just saw this Catherine. Hope you’re ok . At least tomorrow we will know where we stand and so will ppl like Ellen Clifford .
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that’s what I keep telling myself - at least tomorrow we’ll know
If there are cuts, for example, it’ll make me panic but it’ll also mean I can look at my budget and know how much I’ll actually have to spend etc
Weirdly that’s somewhat better than not knowing 🥹
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I think my diagnosis was about the same time but the specialist worked out I had mild ME from age 21 but became reinfected and it made my ME highest level of moderate. If I get glandular fever again I could end up even worse.
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I’m sure this has been mentioned somewhere, but when the green paper is out and Scope have had a looksi, will they post an easy-to-understand break down of it on the forum?
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I’m currently going out of my mind, if I loose lcwra I’ll be homeless. I can’t do this :( so fed up with it all, not ate in days, I don’t sleep as it is due to insomnia. Now I’ve not slept in 3 days 😭😭 yeah I’m only 23 yet I’ve been ‘living’ with my anxiety for years
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And if you do you suffer for it afterwards
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My question then, and forgive me if I’m being dense everyone, is would this be 4 points on PIP as a whole or 4 points for each section (Daily Living & Mobility)?
For instance, I get 18 points for mobility, an 8 and a 10, and currently 10 for Daily Living (though that is going to appeal) - With five lots of 2 points each.If I get another 2 points elsewhere for the 12 at my appeal, when it’s next reviewed would I still get enhanced for Daily Living as I got more than 4 in Mobility?
Or would I suddenly be ‘cured’ and drop to nothing for Daily Living because I get no more than 2 points in each section of it? It’s madness!1 -
I’m so sorry you’re going through this!
Remember, we don’t actually know what’s going to be announced, and we might not lose LCWRA (or if there is a cut, it might not be as much as we’re worried about) so hopefully it’ll be better than expected and not our worse-case-scenario 💜
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I agree , it’s not knowing that’s worse . But I’m sure it’ll take time to come into effect , if it comes in .
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It definitely makes everything harder. Thankful that some understand at least
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There are some in the UC LCWRA group ( ESA Support Group ) who are in a 'severe conditions category' ( it can be Googled ) whereby they are completely exempt from further assessments - this is apparently explicitly set out in their award letters. It 'may' or 'may not' be those claimants who will be 'protected' from a rate cut tomorrow or they will be given a new named health benefit.
All will be revealed tomorrow.
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Can I just say how grateful I am for this forum? It feels like such a safe space and I’m so thankful for all of the support from everyone ❤️
I hope everyone is looking after themselves tonight. I feel too worked up to sleep… I’m in bed waiting for my meds to kick in
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One other thing I don’t know if the Decision Makers take into account - I know everyone’s conditions are different, but I also have supposed ‘lower level’ illnesses like Autism & ADD which I could deal with, even if it was a struggle, while I was fit and healthy.
However now I’ve got long covid, COPD and other illnesses that have taken all my energy, I don’t have the same reserves to deal with problems I could ‘manage’, albeit with great difficulty, when I wasn’t sick. Will that be taken into account?0 -
This is the category I would fall into
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@FluffyCatMeow I guess so, but if I loose any of the money I won’t be able to afford anything :( will it take a vote in parliament to change the amount people are paid? And if they plan to do that, then why did they increase it for April x
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if it’s going to appeal does that mean you’ve already put a review form in ? Cos if you have I don’t think it would change to any new system they’ve planned as nothing has been passed yet .
The way I read the points and I could be wrong but it’s 4 points on one question then any 4 points on other questions so 8 total for lower
4 points one question plus 8! Points for other questions total 12I haven’t read anything on mobility but the points are different on that . It’s strange but I haven’t seen anything regarding motability at all .
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