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Frustration getting on the housing ladder as someone with CP
Hello! First post, so apologies in advance if there's some kind of forum etiquette! Was made aware of this forum by speaking with an adviser today. This post is mostly just going to be me venting and asking for advice from anyone who has gone through the same process. I'm a 30, soon-to-be 31 year old who is trying to buy…
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I stopped drinking water so I wouldn’t need to use the toilet
Article by Melissa Parker. From the Metro I’ve always needed help finding accessible bathrooms – and it’s always made me feel like a burden (Picture: Melissa Parker). ‘Please may I use the bathroom?’, I asked. Desperate for the loo while on a family holiday in Spain, I clearly remember the expression on a relative’s face –…
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Holiday company/Gay Mens Community and Wheelchair Accessible Venues
I have been a member of the Edward Carpenter Community for over 30 years and in 2017 I became a part time wheelchair user. I need to be in my chair the majority of the time to manage spinal and neurological symptoms. The Edward Carpenter Community is a ltd company, that puts on retreats for gay men. We pay to attend and…
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New accessible flat still presents challenges for wheelchair user
Article written by Emma Purcell in Crip Life Sophie moved into the new alternative flat temporarily starting on 22nd May 2026, but an immediate permanent relocation isn’t possible at this time as Sophie now has the additional challenge of needing to restart recruitment for two new PAs. Therefore, she will continue to live…
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Petition for housing in Haringey
While this is one individual, who sadly became disabled in a car accident, I lived in the same borough, and the housing story is familiar to me. In my case I was given 40 years on the waiting list unless my family through me out on the street. I didn't wish to be a 40something still living with aging parents if I could…
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LEGOLAND Windsor Resort 30th Anniversary Cake Guy Mascot
Has anyone been to LEGOLAND Windsor and met the cakecellent Cake Guy mascot? Who else is a big fan of theme parks?
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Frustration at NHS Waiting Times 😤
I fought blood, sweat and tears to get the right help and support. I have been battling Psychological troubles since the mid 80s when I was diagnosed with Autism and ADHD. This obviously impacted not just myself but also my family in a great many ways. I was placed into a Children’s Psychiatric Unit and attended school…
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Hello, I'm New Here
Welcome! I'm Eturknity, a Christian gamer living with Nemaline Myopathy. Through gaming, faith, encouragement, and my testimony, I share how Jesus Christ has carried me through life's greatest challenges. Here you'll find Christian gaming videos, inspirational messages, disability awareness, Bible encouragement, and…
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My GP has contacted the DWP, local MSP and MP.
I have been made redundant 4 times now from my most recent employments. I have severe anaphylaxis due to allergies, anxiety, being hearing impaired- Right ear. My GP and myself have sent this email to the local MSP, MP and DWP regarding this fact. I cannot keep a job due to when I have an anaphylactic attack and suddenly…
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A fair bite of the apple......for everyone - By way of V_s introduction
Scope article: “A fair bite of the Apple, The wobbly apple falls from the same tree as the perfect one. None of its flavour is impaired by its exterior appearance. It’s still as sweet and juicy as the perfect one. The first bite proves its merit. Shape, size, looks, illness, grief, disability and pain all play their part…
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Hackcessible: Could you help shape the next generation of assistive technology?
Hackcessible 2026 is looking for disabled people who have a problem, challenge or everyday frustration that they think could be improved through engineering and design. Hackcessible is a student-led assistive technology make-a-thon at the University of Sheffield. Over several months, student teams work alongside disabled…
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Looking for wheelchair users to help test RollSense
Hi everyone, We’re building RollSense, a mobile app designed to help wheelchair users understand how sidewalks and outdoor routes actually feel to travel on — not just whether they are technically marked as wheelchair accessible. The idea is simple: Your phone is securely mounted or fixed in a stable position on your…
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I Am Too Proud To Ask For Help 🤔
I have lived on the old Blue Spinning Ball for 43 years and it is fair to say that life has been like a Donkey Kong Roller Coaster….. I have battled multiple mental and physical conditions for every single breath I have taken. I was often told that I wouldn’t amount to anything, that I couldn’t do this, I couldn’t do that…
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Accessibility issues
Just wondering which organisation I should report an inaccessible venue to. The reasonable adjustments they have said that they will provide still put me at a disadvantage when compared to non disabled people
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📋 Research Survey: Workplace Support for Disabled Employees
My name is Doreen, and I'm an MA student at the University of Essex researching how workplace accommodation frameworks affect whether disabled employees stay in work. I'd love your help! Whether you have lived experience of disability, work alongside disabled colleagues, or have managed employees with health conditions,…
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Free app to find toilet, parking and health facilities: Find Nearby
Hi everyone, My name is Callum and I’m the Glasgow-based founder of Find Nearby, a mobile app that helps people quickly find toilets, parking, benches, playparks, health locations and other useful places nearby. I’ve recently made several key accessibility, family and health searches completely free with no ads, including…
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Young voices lead the way on accessibility at Ysgol Bryn Alyn. Disability Pride!
There is a huge accessibility project happening in Wrexham, chaired by the author Samantha Maxwell. Awareness of the work is growing in the area and throughout Wales. Last week I attended a presentation from pupils at Ysgol Bryn Alyn, Gwersyllt, Wrexham. The pupils have only recently got involved in the work, but they have…
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Young voices lead the way on accessibility at Ysgol Bryn Alyn. Disability Pride!
There is a huge accessibility project happening in Wrexham, chaired by the author Samantha Maxwell. Awareness of the work is growing in the area and throughout Wales. Last week I attended a presentation from pupils at Ysgol Bryn Alyn, Gwersyllt, Wrexham. The pupils have only recently got involved in the work, but they have…
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Hi, my name is pipmarshall!
hi everyone
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The power of listening to lived experience
The Cerebral Palsy Network was invited to a World Café event at the University of Sheffield. The project looked at how to improve access to cervical screening for disabled people. It focused on the barriers that disabled women and other disabled people face. I was proud to represent the Network. I listened to people with…
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Isolation as a disabled person
It's hard to feel connected when I'm pretty much housebound. I'm hoping joining the scope community can change this
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Is it acceptable to return PIP2 with attached typed responses?
I’m preparing to return a PIP2 form and want to check whether this format is likely to be accepted. I plan to send back the original paper PIP2 form, signed and dated. In the answer boxes I would write “Please see attached typed response.” I would attach a typed response document which follows the same question order and…
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Looking for wheelchair users to take part in a UCL research interview
Hi everyone, I'm Harini, an MSc student at UCL. I'm doing research on how fire crews could better understand and support wheelchair users when they arrive at a fire in a residential building. When a fire crew arrives, the first minutes count. Right now they often have little or no information about what wheelchair users…
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Hi, my name is Lorraine_W! challenges people face when trying to open or close..
Hello everyone, I'm not sure if anyone cam help, but I am looking to set a challenge for university students around designing accessible packaging. I would love to hear any thoughts, gripes or particular challenges that people face when trying to open or close packaging. All idea welcome 😌
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Wheelchair skills at Scope's Community Hub!
Amy and Adrian from Experience Community will be at the Scope Community Hub. When Every Thursday in June Time 12:30 to 3:30 pm. Amy is a wheelchair user and will be leading our drop-in sessions. We are equipped to teach everything. This includes the basics of pushing and manoeuvring to getting up and down kerbs. If there…
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Derotation osteotomy
Hello, My Husband (38) with CP, has had a femoral/tibial derotation osteotomy. He was completely independent before (no walking aids). 6 months post surgery he is walking with elbow crutches & has reached a plateau in his rehab, and he's becoming frustrated with not being back to his baseline mobility yet (although we were…
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How accessible is Eurostar?
Source from The Independent Eurostar has introduced improvements on its trains for travellers with disabilities – Carrie-Ann Lightly boards at St Pancras to see how they stand up in practice Train travel gave me my independence. In my early twenties, it opened up a version of the world I hadn’t thought possible. It was the…
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Working from home as reasonable adjustment when you're looking for work
Hi all, I am completely housebound due to ME/CFS. I can maybe go to the dentist once a year, but that's it. Due to a redundancy I'm also out of work and I don't know how to find a new job. I have several years of experience as software engineer - a job that can easily be done remotely, but so many employers ask upfront if…
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Website accessibility barriers - Questionnaire
Hello, I am currently completing my TM470 Computing and IT project with the Open University as part of my T honours degree, and I am looking for participants for a short academic questionnaire about website accessibility barriers and support needs. The questionnaire is mainly intended for people who experience…
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I became my sister's carer at six - she amazes me every day
From BBC News Shannen Headley West Midlands Trigger warning - mention of sexual assault. One of Sarah Lilly's earliest memories is pushing her younger sister Vicky's wheelchair aged four. She became her second carer two years later. Vicky was diagnosed with both quadriplegic and athetoid cerebral palsy at birth, and Sarah,…