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Paying for things....
I'm in a bit of a quandry at the moment. We have two disabled adult children living with us who seem to have grown up without me noticing. Both of them have benefits in their own names. My husband is also seriously disabled and I'm full time carer for all three. My quandry is this - we're hopefully moving house in the next…
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Parents in Law - help
My wife (and carer) lives about 140 miles away from her parents with me. Her mum was rushed into hospital on Wednesday - leaving her dad (aged 96) home alone - we don't think that he can survive on his own - what do we do ? We can't go up to collect him at the drop of a hat - and he has no other support…. Worried is not…
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From DLA to PIP
Hi Everyone My son has Diaplegia Cerebral Palsy he needs the daily use of AFO's/splints on his lower legs to be as mobile as it is possible ,the health professional are concerned however going forward that his needs will get greater He turned 16 three weeks ago & I had a letter asking him to apply for PIP which we duly…
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Covid booster just finished antibiotics
My covid booster is due tomorrow, I've just finished antibiotics, amoxicillin, does anyone know if I can still have my booster jab, can't get an up to date answer on Google. Any help would be much appreciated. Thanks
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Can I have childcare costs paid if I get LCW.
Hi everyone I’m currently self employed. I heavily rely on UC to cover my childcare costs. Will I still be entitled to the childcare costs if I start receiving LCW, so I can work but with adjusted hours. Thank you in advance.
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Carers allowance
If carers allowance is £354.why am I getting £327 per month. Thanks
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Help with aggressiveness
Hello, I am Dumisani's mom, a 7 year old boy with autism and would like to join a cmmunity that shares about autism and related conditions. Dumi, is verbal and in between level 1 anbd 2 , his language skills are improving but we're struggling with aggresivenes, he hits , bites and kicks and can't take instructions,…
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At wits end
Hello my name is Babs and I am new here. My mum passed away 11 years ago and my brother went to live with my sister and her husband as they had the facilities to care for my brother. They are now in their late 70s and my sister is having chemo for breast cancer and is very ill. We asked social services for respite and they…
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What do families want from Scope?
We would like to know what families need from Scope so we can plan to meet those needs. Please select from the list of suggestions below and/or add you your own suggestion at the bottom.
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Child health visitor
Hi all. Can I get some advice please.I've had a call about a health visit for my 1yr baby, They want to see him etc, can I refuse a visit? And do the health visitors communicate with the dwp- I am on LCWRA and haven't notified the dwp that my child is staying with me at the moment( I only found out i have another chill).…
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Court of Protection: Property and Affairs - Deputyship Application
Hello, My name is Daniel, in July 2023 my brother Sam (37 years old) was the victim of assault, resulting in a severe brain injury. We (myself, our mum, and Sam’s fiancée) are applying for a deputyship / to be deputies for Sam’s property and affairs. Sam doesn’t have much in terms of finances or assets, however, we are in…
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Hi, my name is mum002! Child's respite stopped suddenly with no alternative given
Hi, I've just found this forum. And looks like a wealth of information. I have 2 sons with high needs. 1 funded by council and 1 funded by chc. Such a minefield. My son who is funded by chc has just had his 1 night a week respite stopped with immediate effect with no thought to the detrimental effect it will have on him…
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Opportunity for carers or professionals to take part in research project about impact of Covid
Hi there! My name is Jacqueline Paterson and I am undertaking a research project with the University of Kent for my PhD about the impact of Covid and the lockdowns on young people with a disability or special educational need. For the second part of my study I am keen to engage with parent/carers and professionals who…
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Continuing Healthcare - Inaccuracies on the report
I have recently received a continuing healthcare decision. I was wondering if it was possible to ask for corrections to be made in the report. I am aware I can appeal however I am more concerned about the inaccurate information in the report. Does anyone know if you can ask for corrections?
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Hi, my name is jon1108! Son with Duchenne struggling to keep up with friends
Hi, I am a dad to a wonderful son of 8 with Duchenne. He is getting really upset that he can't keep up with his friends at school, which is heartbreaking and I am struggling with how to support him. Thanks
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My young son who has CP, struggling with emotional regulation and settling into nursery
I’m looking for support/advise for my young son who has CP, struggling with emotional regulation and settling into nursery
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Any help getting a laptop for my daughter for college?
hi I’m struggling to get my daughter a laptop so she can do her college work wondering if u can help at all x
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Hi, my name is Hartley61! Needing help with my daughter. Formal complaint raised against LA.
I have my own challenges with MH however my main reason for this is to assist our 19 yo daughter who lives with PDA, OCD and SEMH and has done since 11 yo. We are currently fighting the local LA who continually fail to support us even though she has an EHCP and they are refusing (!) to come to mediation even though we have…
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Failing probation in a job
hi I am a bit upset at the moment, I suffer from severer osteoarthritis and was working from home as a customer service adviser, when I started this job the training was not that good and I have never worked with a energy supplier before, I had regular call scores but even though, I had a 100% calls and performance was on…
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Help with carers please!
Hello, I’m after some advice. I live with my disabled mum in housing association home. I’ve bought a house and she’s coming to live with me. It’s in a different authority. Getting her care transferred (4 calls a day) is proving to be massive stumbling block. Social workers say the new authority are dragging feet in…
