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Hi, my name is SANDRA65! asking for any tips/advice about ataxia
hello,just asking for any tips/advice about ataxia always had it but did nt know much about it till i was about 38, thanks
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Hi, my name is susiedavies!struggling with mg symptoms but my neurologist has not acknowledged mg
Hi everyone im struggling with mg symptoms but my neurologist has not acknowledged mg yet even though 2 blood tests showed up one marker for it waiting to see him again as my symptoms have progressed to weak legs
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Pension payments
I am 64 on the 28th of January and have recently checked out my pension amount and realised that I will be six years missing from my full pension as when I was able to work for two different employers I paid in to there private pension scheme and when I was made redundant from the second job I withdrew my pension and used…
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Deregistered at surgery
Was just wondering what to do as I have been deregistered at my surgery. All I did was ask for help getting this smelly yellow (parasite?) thing off my skin. Whatever it is it's been very resistant to come off. I don't know where it leaves patients when clinicians can't engage with the real world. I went privately to two…
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Guide dogs
Hi I’m registered SSI I have tunnel vision with a nystagmus. I applied for a guide dog and all the assessments were going well until the last one. it’s much harder than I thought to follow the guide dog. I know that sounds insane. Today I walked with the assessor holding the harness. I’ve adapted to getting around my own…
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Hello, I want to get advice for going to the doctors about M.E/CFS
Hello, I'm new here. I want to get advice for going to the doctors about M.E/CFS. I'm very nervous about it
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FND & the physio that actually works ?
Hi everyone I was diagnosed with FND 8 months ago after 2 years of limbo. At first I thought it was a relief and the promise of access to services like community Neuro and neurophysio seemed great. But 4 months of back and forth I realised there is never a physio involved all we did was talk. I feel I gave them a lot more…
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Hi, my name is frodobo1! Does anyone else have phrenic nerve palsy?
Hi. I have had phrenic nerve palsy for 14 months and have been unable to work due to dyspraxia, brain fog, dizziness etc. My respiratory physician tells me he has never had anyone fully recover from this. I am desperate to share experiences with others who suffer/ have suffered from this injury. Would love to hear from…
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Hearing Aids and hearing loss - Brilliant and not
I received hearing aids in august last year and at first they were amazing, i could hear birds signing, all sorts of noises I hadn't heard for a long time. Its a different storey now. We have a parrot at home who screams when my partner doesn't get her out, the screams hurt my ear when I don't have my aids in, so I know…
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How?
How do you deal with knowing your never going to recover from a brain injury plz
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Hearing impaired - a hidden disability
Hi, I've recently introduced myself as a newbie to the forum - as a carer for my other half who is disabled. I've come across this category about sensory impairment and thought that I'd just share some of my own views. I'm moderately to severely hearing impaired (across all tones and pitches in both ears) and have been…
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Hi, my name is Ingy50 I have AS on L1 to L6
Hi just joined and I pleased to see there are forums for AS, as I have AS on L1 to L6 plus two fractures as well in my spine. I am totally numb in my feet and numbness has now gone up to just below my knees, I can only stand for 5 minutes unaided without have massive spasms which makes me having to sit down. Does anyone…
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Manipulation after total knee replacement
Hi has anyone had manipulation done after they have had a knee replacement? My husband has been told he needs this doing & we have been wondering what it’s like after it has been done? Is it weeks of more physio? Or just as long as you move it your ok? He had his knee done at the end of august & it’s been a nightmare both…
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I am Still Waiting for My Operation
Hi to all, I have had a blood test done which has come back fine i am still waiting for a date to arrive this is so very frustrating and annoying and causing me anxiety and stress i was told after my blood test came back they would give me a date i need it done before xmas. Sparklebright628.
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Hi, my name is Eric70! had a spinal fusion operation in 2009
I’m 53 been working as a decorator for 22 years had a spinal fusion operation in 2009 which left me with nerve damage to right leg and foot gave up my blue badge and went back to work full time because of young children anyone out there coping with similar disability
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New inhaler for Copd.
Hi to all I am feeling really rough i have a new inhaler for copd called Trelegy i ve been getting very breathless and constant fatigue tight chest ect peak flow lowest at 90 ever. Not got energy to do anything just want to sleep all the time. I have no motivation no energy dont understand why apart from bladder and bowel…
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GERD and CP
Hello, we have a teenager with Hemiplegia, ASD and GAD (Generalised Anxiety Disorder) Since being 5 years old he's suffered with acid reflux / heartburn. he's been taking omeprazole for the last few months, it worked for a few weeks but he is now back in a lot of discomfort. Is this something anyone else has experience…
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Hi, my name is suziwoozy! I had a complete knee replacement 5 weeks ago
Hi everyone. I'm new to this forum and hope everyone is recovering well. I had a complete knee replacement 5 weeks ago. I find I have a good day and a bad day. I only get about 4 hours sleep at night now due to the discomfort. Pain has now gone just discomfort and knee feels sore. I seem to have alot of swelling on the…
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Hi, my name is 44flower! I am allergic to general anesthetic, but have to have cataract surgery soon
I have cerebral palsy and alergic to General anesthetic. I am about to have catarract operations on both eyes. I am deaf and 79 years old. Is there anyone out there who could advise me. I have refused the General anesthetic.
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Peripheral neuropathy or something else?
Long story saw rheumatology back in June told him about problems with feet. No feeling in little toes and one next to them on both feet and cramp like pain he put it down to osteoarthritis which I did not think it had anything to do with osteoarthritis had face to face with GP who referred me to MSK specialist in feet and…
