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"Am I happy with the way that I am - and if not - what can / will I do about it ?"
This is a question put to me by my wife/carer this morning and to be honest - I don't know where to start …. Anybody got any ideas ?
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Getting support (physio, OT etc)
Hello Our 10 months baby is significantly delayed. Motor and cognitive. We've been told since he was a few weeks old by all the specialists we have seen privately that physio is absolutely key. We've also been told in the past 2 or 3 months that he should see an OT. We are getting nowhere with the NHS. We are on a waiting…
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How do you identify
Throughout large anonymous organisations we get asked this question a lot. I find it intrusive personally. Skin colour, gender, religion, age and sexual orientation. Sometimes I feel like saying why? I understand that it’s supposed to show the demographics of today, but it doesn’t ask if you have a disability. So do you…
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Abysmal NHS
My local NHS is poor - such things as WAITING 12 weeks to hear the result of a 5day Heart monitor test or waiting 8 weeks to hear the results of a bowel cancer CT scan…….. and ABSOLUTELY no response at all to emails sent regarding accessories available to allow me to carry a cup of tea, from the kitchen to the living room…
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Alexander's Lucodisraphy
Hello all I am 30 year old and I have a rare condition called Alexander's Lucodisraphy.
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My council are breaking the law and ignoring my complaints
This has been going on since February 2015 and there's no sign of them budging on the issue at all. Short version: - Registered partially sighted with them since June 2007 - Moved out of parents house in February 2015, which now makes me liable for council tax - I asked the council for all letters to be in large print -…
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Hi, my name is Temitopeakanbi_1982! Lumbar Spinal Stenosis, any advice about treatment?
Curious!! About what may happen to me ; if should go for lumber spinal stenosis surgery as the only option for me . In brief. I have been suffering from a severe back pain since two and a half years ago. I was diagnosed with lumber spinal stenosis (L4 and 5) I have done two infiltration ( injection of steroid into my…
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Ankle Fusion Surgery
I would be interested to hear peoples views/ experiences about this surgery , the positives and negatives. I had a discussion with my consultant at Royal National Orthopaedic hospital about this on Monday this week. Although the team at Royal National Orthopaedic feel this is not an option for me now it could be in the…
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Scoliosos and Spinal Fusion Surgery Help
Hi! Does anyone know anything about scoliosis and spinal fusion surgery please? I have had scoliosis for most of my life. It’s a condition that can affect areas of the spine usually during the formative years. I was diagnosed in my early teens and regularly monitored. Years later, having grown up without it affected me…
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Hi, my name is SallyEuston! Spinal Stenosis, is it worth having the operation ?
Just been diagnosed with Spinal Stenosis, is it worth having the operation ?
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For people with physcial disabilities
Hi guys, my name is Ricardo (20). I was born with a condition called Poland Syndrome. I don’t have a left hand nor a left pectoral. I am working on developing a website for empowering and supporting people with physical disabilities. The target audience is mainly teenagers and young adults and the goal: to accompany them…
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dealing with spinal stenosis pain. Does anyone have any tips?
I'm not sure if I am in the right place but I hope so. Please let me know after my post if I am in the right place. I have been searching for someone who is suffering like me or has experienced what I am going through with a possibility of hope to be able to be pain free, Well here goes. About 2 and a half years ago I was…
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Aquired Brain Injuries and Rehabilitation
Have you been to rehab for aquired brain injuries, how are you coping???
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Hi, my name is phump! Had my first seizure, does anyone have any recommendations?
Hi I had my first seizure 10 days ago, all very new to me and the family. Husband ran out to buy me an Apple Watch and downloaded siezalert app. Does anyone else have experience with the app or anything similar they might recommend? Thanks !
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Robot guide dogs for the visually impaired
https://www.abc.net.au/news/2024-07-02/robot-guide-dog-could-help-visually-impaired-people-daily-life/104047974
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Hi, my name is gaz123! I have a problem with spinal stenosis
I have a problem with spinal stenosis
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Living with degenerative back issues
I've had this bad back since September 2017, I have a degenerative back pars defect. I have pain continuously. Ive had an operation and was not successful, but it did stop the sciatica in my leg, but my other leg was fine going into surgery I have no feeling. I've had three appointments as a follow up and been cancelled…
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UCTD?
Does anyone else on here have this and it's problems?
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Hearing Loss & Hearing Aids
Hiya :smile: I hope you're having a lovely day. I'm not sure what I'm hoping to achieve really by posting! Only, recently I was diagnosed with moderate to severe hearing loss affecting all frequencies across both ears just before I turned 29. I've always known my hearing isn't good (many tests as a young child that were…
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Voting privacy as a person with limited vision.
Recently there's been a lot of talk on the topic of voting privacy, particularly concerning those with visual impairments. Fret not, as there is now a fantastic solution - the "McGonagle reader". This little box of brilliance is set to completely reshape the way we approach voting privacy. Our friend, the brilliant Lucy…
