Scope's reply to the governments planned concessions to the green paper.

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Comments

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,052 Championing

    You’ve done really well in fighting our corner MW . If they were to ask me I’d say we really need a descriptor for fatigue as not only do we have ME and fibromyalgia but also long Covid now . Plus being in pain both physically and mentally causes fatigue and I don’t think it’s given enough thought . If I’m in pain I can at least take painkillers at times when it’s too much but there’s no treatment for fatigue.

  • [Deleted User]
    [Deleted User] Posts: 1,170 Championing
    The user and all related content has been deleted.
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,052 Championing

    Thank you for thinking of me chiaried I really appreciate it as you know what you’re talking about . I read on another site that ME wouldn’t be classed as severe as we can go into remission , though I don’t nit even for a day . But I just read on here a post I think from MW that it’s apparently not condition specific. My ME since Covid has gotten worse and I’m sure inched closer to severe from highest moderate. I mentioned this to my GP as I started as mild the went to highest moderate after a second infection of glandular fever and my GP agreed. My brain fog is terrible now too so I hope I make sense .

  • YogiBear
    YogiBear Community Member Posts: 415 Pioneering

    Thank you so much for everything you are doing @MW123. Much appreciated.

  • chiarieds
    chiarieds Community Member Posts: 17,441 Championing

    You always do make sense @secretsquirrel1 - I made sure to get that very important question in about the use of the word 'constantly' with severe conditions. I gave a little background about myself so they hopefully will realise I 'might' know what I'm talking about, saying that no-one could 'constantly' fit a descriptor.

    I also said that if they're hoping to align UC with PIP assessments then they should go back to saying the 'majority of the time,' as that's what's used with PIP, & they're going to be using the PIP assessment in the future.

    I couldn't agree more with @MW123 - I found the same as in I had to work with Drs & remain objective if I wanted them to listen. The more you engage, at least I found, the more they become willing to engage with you. You've got to listen to them in the first place, & then you get listened to. Asking pertinent questions, & listening to their replies before saying anything further then also helps as you've found!

    I look forward to hearing from you.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,052 Championing

    They are so evil, if they could kill us all off I think they would

  • [Deleted User]
    [Deleted User] Posts: 1,170 Championing
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  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,052 Championing

    I’m so glad it went smoothly for you . I wish I’d migrated over years ago now .
    Yes I’m not a fan of this heat though my fans on 24/7 which helps . When my dogs allow me to enjoy it that is 😂

  • YogiBear
    YogiBear Community Member Posts: 415 Pioneering

    @Catherine21 has been fantastic. You all have been and kept the momentum going. I never thought I'd have the courage to contact so many MP's. No matter what happens tomorrow we will all continue to fight on. This forum has made me feel less alone. A big thank you to you all. 👍️

  • [Deleted User]
    [Deleted User] Posts: 1,170 Championing
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  • worried33
    worried33 Community Member Posts: 1,054 Championing

    Yes, as I am talking about what I have heard live in the debate.

    That quote is typed in bad english, but looks like it says if someone requests a reassessment, it will be under the new rules. However the english is bad, its hard to treat it with credibility.

  • worried33
    worried33 Community Member Posts: 1,054 Championing

    Yeah I thought so, the quote I replied to just above, isnt even a proper phrase, a misspeak (or typo) makes sense, and good its confirmed.

  • worried33
    worried33 Community Member Posts: 1,054 Championing

    Kendall was asked in the session if the changes are complaint with human rights and equality laws, and gave a straight yes, so she is in trouble with ministerial code if someone proves her wrong.

  • worried33
    worried33 Community Member Posts: 1,054 Championing
    edited July 2025

    From my understanding you will be protected, and I am saying this with high confidence.

    1 - you should be migrated before the date the new law comes into effect.
    2 - for WCA puposes you are an existing claimant.

  • worried33
    worried33 Community Member Posts: 1,054 Championing

    Thanks for this.

    This quote from the reply you got, seems to be a strong indicator, so that the protection is only a 2 year reprieve for the intermediate 4 point change.

    Once the review of PIP descriptors is complete and implemented, any reassessments will be made against the new descriptors

  • worried33
    worried33 Community Member Posts: 1,054 Championing
    edited July 2025

    In my opinion its the prime policy of this government, look how early they did it after the election, the rush for the pip descriptor overhaul as well, all the pre election campaigning from Kendall.

    Plus factor in the Labour parties history, although you mentioned earlier you felt Keir was going to be compassionate, there was little evidence of that, a sympathetic disability shadow minister got moved to a whip role, Kendall got moved to the top DWP job, Reeve is chancellor, so its a Blairite party, Blair has made it public what he thinks of disabled people, Labour have always been ideologically opposed (as an official stance) of Incapacity benefit, and they tried to kick a million sick people off with ESA.

    Politically I agree he is weaker for sure, but they are getting their main thing put through, even if the full effect will be delayed by a few years from the concessions.

  • alexroda
    alexroda Community Member Posts: 381 Trailblazing

    Some rebel MPs are willing to vote in favour of this bill now because their current disabled constituents are protected.

    As long as I’m ok, who cares for the rest.

    Sickening

    What will happen to that 55 year old who is now working in full health and in 2027 becomes disabled, but not enough to score 4 points in one descriptor?

    No UC health element either?

    And then what, poverty-death

    What does it say about us as a society?

    It’s just sickening and evil

  • mawempathy
    mawempathy Community Member Posts: 150 Empowering
    edited July 2025

    We’ll all earn our points using the revised descriptors, but existing PIP claimants won’t need to hit 4 points for any of the categories.

    The 4 points requirement is written into the main bill, existing claimants will be exempted from it in said bill, and is not part of the Timms assessment review.

    That said, they have the freedom to make it as hard as they want to be awarded points using the revised descriptors. They could easily take it back up to 250,000 plus being put into poverty using this mechanism. This is the sense by which people are suggesting MP’s will be giving the government a blank cheque later today if they pass this bill.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,052 Championing
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,052 Championing

    I’m sure I even read one of them say that too . Happy for my constituents

This discussion has been closed.