Welcomes and introductions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Hi, my name is Vickymay87!

Vickymay87Vickymay87 Member Posts: 60 Connected
Hi everyone. My names Vicky. I’m new on here. I hope everyone is ok 😁

Replies

  • Ami2301Ami2301 Community Co-Production Group Posts: 7,744 Disability Gamechanger
    Welcome to the community @Vickymay87 I'm not too bad thanks, how are you? Are you having a good weekend? :)
    Disability Gamechanger - 2019
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    Hey 👋 I’m not to bad thanks. I have a neurological disability and at times I feel alone. Came across scope and I think it will help 😁 have a good day 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,744 Disability Gamechanger
    I have 2 neurological conditions, among other conditions too. We can all relate to feeling lonely, but we are a friendly bunch and someone will always be about if you want a chat :)
    Disability Gamechanger - 2019
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    Awww that is lovely. Yeah I was reading some discussions. You all do seem a friendly bunch. It’s great 👍🏼 
  • Cher_ScopeCher_Scope Posts: 4,022

    Scope community team

    Hi @vickymay87 and welcome to our online community :)

    I'm glad you found us, it's lovely to have you here.  You might find our Neurological Conditions discussion board interesting to see what other people with similar conditions have been talking about.

    Also, our Coffee Lounge is a nice relaxing space to join in with general chit chat and play games.

    I'll be about most of today so if you need me give me a shout! Do you have anything nice planned for today?
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    hi it’s great to chat. I’ve looked through the neurological disorder discussion and I came across my disability which is great 👍🏼 I have got Hereditary Spastic Parapelgia and I have added a comment to the discussion. 

    I’m having a day in bed, I’ve not been to well lately. I had suspected coronavirus in April and since I’ve got no energy. I’m having tests to see if I have got CFS/ME.

    hope you have a good day 😊


  • Cher_ScopeCher_Scope Posts: 4,022

    Scope community team

    Ah, it's good to find others with the same impairment.  I haven't heard of Hereditary Spastic Parapelgia before, I'll make sure to inform myself about it!

    Oh heck, I'm sorry you aren't feeling too good.  I have heard that it can take some people a long time to recover from corona-virus.  I have my fingers crossed for your test results.  

    Enjoy your bed!! I love a day in bed watching movies  :) It's good to do what our body is telling us to do too, so make sure to relax.  
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    It sure is 😆 yeah it’s quite a rare condition to be honest. Me and my sister have got it and we’ve never met anyone else with it. We still don’t know what gene is involved but eyho. 

    Thanks I’m going to have a good old rest. Hopefully I will have the answers soon 👍🏼

    Yeah apparently there are a lot of stories about this post fatigue syndrome that can affect people months after having coronavirus 😳

    what are your plans for today? 
  • Cher_ScopeCher_Scope Posts: 4,022

    Scope community team

    It's always good to be medically unique  :) Let me know about the test outcome!

    I'll be on the forum until around 6pm and then I could do with getting a bit of fresh air so I might go for a little potter around the local park.  I'm off tomorrow but need to spend that finishing my uni work - the joy  :D
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    A little walk around the park sounds nice. I’ve just brought a couple of rats 🐀 they are chilling with me on the bed. Hope your studying goes well 
  • Cher_ScopeCher_Scope Posts: 4,022

    Scope community team

    Aww what are they called?  Thank you  :)
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Vickymay87Vickymay87 Member Posts: 60 Connected
  • Vickymay87Vickymay87 Member Posts: 60 Connected

    They are called Pinky and the Brain (bra) for short 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Vickymay87

    Welcome it’s great to meet you today.

    Yes I have also got a number of “Neurological Problems”

    Please please come back to me if there’s anything that I can help you with???

    @steve51
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    It’s great to meet you too. I’m glad to join to have chats with you and everyone else. 

    I won’t get  so lonely now 🤣😊

  • Cher_ScopeCher_Scope Posts: 4,022

    Scope community team

    edited August 2020
    @Vickymay87  Squeal!! Pinky and the bra are so cute!! Look at their little faces  :)

    I've never had rats before.  I used to have a hamster called Greg who was amazing and always running around in his ball  :D

    Yep, no need to be lonely!! We are always here for a natter. 
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • chiariedschiarieds Community Co-Production Group Posts: 9,129 Disability Gamechanger
    Hi & welcome from me too @Vickymay87 - It's good to meet you & your new pets! I hope your batteries feel a little charged after a day resting; it must be awful feeling so fatigued.
    As you see, there's always someone here to chat with in this friendly & supportive community, & do try the 'Coffee lounge.' I hope you enjoy being here. :)
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    They are so affectionate it’s unreal. I had pet hamsters too when I was younger 

    yep I will always be here to have a natter too 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Vickymay87

    Yes you won’t be lonely anymore 😎

    @steve51
  • janer1967janer1967 Member Posts: 11,161 Disability Gamechanger
    Hi @Vickymay87 Welcome to the community from me too, glad you have joined us and look forward to seeing you around.
     
    I dont like rats myself its the tail that puts me off but have had hamsters before

    I have physical disabilities and sight loss I am usually around most afternoons on here
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    Great to meet you janer1967. Yeah I will be here if you ever want a natter. Yeah I can see why the tails can put you off. I’m still trying to convince my mate to holding them but she is put off by there tails too 😳😂
  • Cher_ScopeCher_Scope Posts: 4,022

    Scope community team

    edited August 2020
    I'll be honest.  Sometimes I see the odd rat about outside my house and I totally scream :open_mouth:

    Have you got any other pets @Vickymay87?  I have 3 cats!
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • janer1967janer1967 Member Posts: 11,161 Disability Gamechanger
    You might want to join in on some of our games on the coffee lounge just join in
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    i have got 2 lovely cats both girls Pebbles and Munchkin. They are beautiful ❤️
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    Yeah I will have a go 
  • Cher_ScopeCher_Scope Posts: 4,022

    Scope community team

    edited August 2020
    i have got 2 lovely cats both girls Pebbles and Munchkin. They are beautiful ❤️
    @Vickymay87 I think we need to see a photo :) Cute names! I have one boy cat, Frank and two girls, Trinity and Lavender.
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Tori_ScopeTori_Scope Posts: 5,002

    Scope community team

    I know I'm late to the game here, but your rats are SO cute @Vickymay87!

    I've heard rats are really intelligent, have you been able to teach them any tricks? 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    Hi @Tori_Scope they are adorable. They are so intelligent and loving I can’t believe it’s only now I’ve got them. I’m hooked for life very few years now I will be getting more rats 😊👍🏼

    Nah not managed to teach any tricks yet 🙄🙄😆
  • Tori_ScopeTori_Scope Posts: 5,002

    Scope community team

    Get the cats involved and you could start your own circus show @Vickymay87 :smiley:

    Here are some simple tricks you can teach your rats, if you're interested or can stop cuddling them for long enough!
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
Sign in or join us to comment.