How is the cost of living crisis impacting you?

Penybont

Here is a link that shows what the new requirements are https://tfw.wales/info-for/over-60s/travel-card-eligibility. Before all you need was proof your on pip and a letter from a doctor or someone who knows about your disability.

poppy123456

Penybont said:

Here is a link that shows what the new requirements are https://tfw.wales/info-for/over-60s/travel-card-eligibility. Before all you need was proof your on pip and a letter from a doctor or someone who knows about your disability.

Just read that link and it says a PIP award is proof of a disability. If you scored points in the following acitivity/descriptor. What PIP award do you have exactly?

Department for Work and Pensions (DWP) Personal Independence Payment (PIP) Statement of Entitlement, which shows: 

8 or more points under Descriptor 7 “Communicating Verbally”; or 

12 points under Descriptor 11 “Planning and Following a Journey”; or 

8 or more points under Descriptor 12 “Moving Around”. 

Please note:  The PIP descriptors and their individual scores MUST NOT be added together.

poppy123456

Username_removed said:

I can’t help thinking this will happen in England in those places where the national scheme has extended local criteria. Imminent and inevitable local authority cuts make such things an easy target.

In my LA a PIP/DLA award doesn't automatically qualify you to the disabled bus pass.

Penybont

poppy123456 said:

Penybont said:

Here is a link that shows what the new requirements are https://tfw.wales/info-for/over-60s/travel-card-eligibility. Before all you need was proof your on pip and a letter from a doctor or someone who knows about your disability.

Just read that link and it says a PIP award is proof of a disability. If you scored points in the following acitivity/descriptor. What PIP award do you have exactly?

Department for Work and Pensions (DWP) Personal Independence Payment (PIP) Statement of Entitlement, which shows: 

8 or more points under Descriptor 7 “Communicating Verbally”; or 

12 points under Descriptor 11 “Planning and Following a Journey”; or 

8 or more points under Descriptor 12 “Moving Around”. 

Please note:  The PIP descriptors and their individual scores MUST NOT be added together.

My pip is basic/standard. I was awarded the disabled bus pass back in 2018 here is the points I was rewarded back in 2017. I contacted pip and asked if they could sent out a letter showing my points. That’s why the date on the the letter in screenshot is this year.

poppy123456

I'm assuming you didn't score any points for mobility?

Amberpearl

I'm really struggling 
I'm on uc 
I have to rely on food banks to get food 
Prices have gone up 
I don't go out unless I'm. Forced to due to anxiety and depression and ptsd

Penybont

poppy123456 said:

I'm assuming you didn't score any points for mobility?

there two issues I have here the first is I did not need any points in mobility to get the bus pass in 2018. The second issue is with pip the disability I have is ankylosis spondylitis which is a mobility issue yet from what I know they give me 0 points in mobility need to find out why.

poppy123456

Penybont said:

poppy123456 said:

I'm assuming you didn't score any points for mobility?

there two issues I have here the first is I did not need any points in mobility to get the bus pass in 2018. The second issue is with pip the disability I have is ankylosis spondylitis which is a mobility issue yet from what I know they give me 0 points in mobility need to find out why.

If you were entitled to the bus pass previously, did you have a mobility award then? According to Mike the rules haven't changed at all.

May i ask when was the decision made on your PIP claim? If it was within the past 13 months you can request the Mandatory Reconsideration on that but you will need to state your reasons why you didn't request this within the first month. Do also bear in mind that PIP isn't awarded based on any diagnosis.

Penybont

Username_removed said:

I just worked through the TFW form out of interest. With the various documents to hand, which I always have stored on my iPad anyway, it took around 8 minutes even with my VI. The criteria looked identical to a cached version of the pass application which used to be done via the Bridgend site. Very linear and straightforward. The added bonus of a companion option too. As far as I can tell nothing has changed criteria wise at all. Other than the inevitable use of red and green, which is always unhelpful, I was pretty unimpressed. Absolutely nothing like as long as claiming PIP. I wonder if there’s some misunderstanding here?

When bridgend did it all that was required was proof you where getting pip and a letter from doctor, social worker or someone else that knows about your disability.

Now with TFW you need points in certain categories from pip to get the bus pass.

poppy123456

Amberpearl said:

I'm really struggling 
I'm on uc 
I have to rely on food banks to get food 
Prices have gone up 
I don't go out unless I'm. Forced to due to anxiety and depression and ptsd

Are you currently claiming either PIP or DLA? If not, have you had a look at the criteria for PIP? This is a good link to have a read of. https://pipinfo.net/

Amberpearl

poppy123456 said:

Amberpearl said:

I'm really struggling 
I'm on uc 
I have to rely on food banks to get food 
Prices have gone up 
I don't go out unless I'm. Forced to due to anxiety and depression and ptsd

Are you currently claiming either PIP or DLA? If not, have you had a look at the criteria for PIP? This is a good link to have a read of. https://pipinfo.net/

only claiming uc atm     my dwp health assessment is next friday   my 3rd one     scored 0 points few years ago

Amberpearl

im worried i will score 0 again     im much worse now that i was years ago

ive been up most of the night again due to my bladder issues     plus the nightmares are bad too

i rarly leave the house due to anxiety ptsd and the need for a toilet all the time

L_Volunteer

I hear that you are worried @Amberpearl. That sounds really difficult. It is understandable that you are finding this tough based on your previous experiences even though you acknowledge that you are much worse now. Is there anything which usually helps you when you are feeling worried? 

It doesn't sound like being up most of the night again due to bladder issues and bad nightmares helps. Have you got the support you need in place for these at the moment and is there anything which might make this feel more manageable for you at the moment?

Similar to not leaving the house due to anxiety and PTSD. How does this make you feel and have you got the support you need in place for this at the moment or would you like more support with this?

Good luck with your DWP health assessment. Please don't hesitate to let us know if you have any questions or would like some further support with this. Otherwise, we'll look forward to hearing from you when you have the outcome if you would like to share it with us. 

We are all here for you. You don't have to face this, or anything else, alone if you don't want to 

Amberpearl

The lady who did my cbt therapy says try anything that makes me feel better when I'm. At my lowest. I said listening to music
I was reffered to age concern as they do visits to the over 50s now but I thought they were for pensioner's only.  Apparently not 
I've been put on their waiting list for there be freinding service. They do a telephone service and a home visit apparently and someone can go with you if you go out.  Big waiting list

I don't have any support 
I live alone 
I have 3 daughters but rarely see them as they don't live close by

Dr just doubled my dose of ocxybuytin for over active bladder, but its not working. Plus im not keen on being on lots of medication
I can wake up anythimg between 4 and 18 times a night for the bathroom 
Plus night sweating and nightmare s
I even dream of needing the loo 

I'm. Very jumpy and can and have his behind my sofa and shut the curtains if i get very scared 
Yesterday was windy and just the fact my washing was blowing made me jump out of my skin for a second as I thought someone was there
I don't leave the house unless I'm. Forced to then I get a taxi 

I don't know how I can get to the assessment centre next Friday afternoon, as I cannot get the bus. Its too much for me
I can get a taxi as I think the assessment centre refunds fares 
The local church delivers food bank to me 
I don't really eat well anyway 

I'm, worried I will score 0 points again
How can I work like this 
I cabt function or concentrate and get very little sleep 

Tomorrow is my birthday too 
Nothing planned. I just cabt leave the house

It's nice to have the good people on this forum to talk too





I 

Sandy_123

Hi @Amberpearl just wanted to say Happy belated birthday, sorry only read the post just now. Plus good luck in your asessment

bart70

I thought I was coping but then every time I go shopping my money seems to buy less. Adding the extra cost of gas and electricity plus as I run a mobility car(would be house bound without it) the cost of petrol is putting on the squeeze to where I’m now using a credit card to bridge the gap which of course needs repaying. My only hope will be IF I get this cost of living payment next month I’ll be able to clear the card and reset my limit to bridge my finances. Just not sure how im
going to cope if things don’t start to drop on price again. 

But a question for anyone in the know. I’m on new style ESA, which it states is not getting the cost of living payment however I also receive UC with the Limited Capability for for and work related activity payment and pip. It does say if you receive other disability benefits then you will get the payment. So will I receive the cost of living payment? I know I’ll get the £150 in September which again will
help. 

Amberpearl

Sandy_123 said:

Hi @Amberpearl just wanted to say Happy belated birthday, sorry only read the post just now. Plus good luck in your asessment

thank you

i never left the house or saw anyone     
im scared of the assessment like id be judged

Middleton

Ross_Scope said:

Good afternoon  

Scope are trying to find out how families with disabled children are being impacted by the Cost of living crisis.

 

We’d like to know what issues you are experiencing during the cost of living crisis? What is your primary worry at this time? For example, food, fuel, energy or something else?

 

This will directly inform what Scope focuses on for upcoming work on this.

Thanks  

All of the above

Middleton

Ross_Scope said:

Good afternoon  

Scope are trying to find out how families with disabled children are being impacted by the Cost of living crisis.

 

We’d like to know what issues you are experiencing during the cost of living crisis? What is your primary worry at this time? For example, food, fuel, energy or something else?

 

This will directly inform what Scope focuses on for upcoming work on this.

Thanks  

All of the above

I received very conflicting info regarding my recent award review(i wont get into this here) and now have the horrific feeling ,that if i was to have my PIP  reduced or gone completely.
I simply wouldn't be able to function, nor survive!

Loss of PIP ,as those in the know, would then have such a major knock on effect,Council tax reduction gone. LWCRA issues etc...

Worsening co morbid, life long health symptoms.

No living parents, and other than one strained person in my life (this poor soul is going through issues themselves) then i personally could not see how i could continue on.
This is not a hyperbolic comment, but a very real consideration!

To lose benefits, have the same illnesses(symptoms) ,no vehicle, no network of support(would have to ask OT ,social workers, but theyre stretched, + not much they could actually do anyway.

Then whats the option! ... to slowly starve to death, remain frozen throughout the coming winter( when energy costs are going up again)..
Regrettably some people will be driven to desperate measures.
Especially those who are already vulnerable, with multiple co morbid conditions .

 Having to wait for Tribunals, which can take an age. I can see very bad times ahead for individuals in this situation. All these price hikes, makes disabled people live further in fear, of the benefits process.

Because dwp  do get it wrong, and people are left in limbo for such a long time(Tribunals) how on earth do these people cope.

poppy123456

bart70 said:

 however I also receive UC with the Limited Capability for for and work related activity payment and pip. It does say if you receive other disability benefits then you will get the payment. So will I receive the cost of living payment? I know I’ll get the £150 in September which again will

help. 

To get the first Cost of Living Payment of £326, you must have been entitled to a payment (or later found to be entitled to a payment) of either:

• Universal Credit for an assessment period that ended in the period 26 April 2022 to 25 May 2022

https://www.gov.uk/guidance/cost-of-living-payment

It doesn't say "other disability benefits". What it says is.. You may get a payment of £650 paid in 2 lump sums of £326 and £324 if you’re getting any of the following:

• Universal Credit
• income-based Jobseeker’s Allowance (JSA)
• income-related Employment and Support Allowance (ESA)
• Income Support
• Pension Credit