Text message pip review

poppy123456

I've never bothered with having an assessment recorded. I don't really see the point because you can't use the recording, (unless it's professionally transcribed) if you need to go down the MR/Tribunal route.

It's your decision whether you request the report before the decision is made but it does tend to cause a lot more needless anxiety.

Good luck and please let us know the outcome.

durhamjaide2001

I mean it's up to you if it was me I would probably would even though I hate things recorded as the assessors don't decide weather you get it or not it's the judges they might have another name but I don't know what you call them but for the sake of this lets just call them judges. The assessors might see things differently as they don't have your illnesss but you do. Just think of it as another pice of evidence. 

Binky1234

Thank you both so much I think I will as for report once decision is made.

Thanks for the feedback much appreciated 👍

durhamjaide2001

Binky1234 said:

Thank you both so much I think I will as for report once decision is made.

Thanks for the feedback much appreciated 👍

Your welcome 

poppy123456

durhamjaide2001 said:

it's the judges they might have another name but I don't know what you call them but for the sake of this lets just call them judges.

They are called decision makers. A judge is someone at a Tribunal.

durhamjaide2001

poppy123456 said:

durhamjaide2001 said:

it's the judges they might have another name but I don't know what you call them but for the sake of this lets just call them judges.

They are called decision makers. A judge is someone at a Tribunal.

Thanks for letting me know 

Binky1234

Lou67 said:

@Blinky1234

Hi Blinky I got the same txt on the 10th off November.
Then another txt last Thursday my appointment is Thursday 5th off January by telephone.
Be glad to get it over with.

Good luck when you get yours.

Take care ❤️

@Lou67 hope you got on OK today with your assessment 👍

Fingers crossed you will be hearing good news soon, take care and try not too worry xx

Lou67

@Blinky1234
Aww thanks for your kind words, yes it was good to get it over with.
It lasted an hr exactly but seemed to go faster.
I will let you know once I do hear anything.

Won’t be to long till yours is over with to,

Take care ❤️

Binky1234

I know tbh I'm at the stage of not sleeping either due to pain as every part of me seems to be so sore and tbh I definitely think anxiety and stress is making fibromyalgia worse then I have also to contend with my IBD thankfully I have a telephone consultation on Monday with my gastroenterologist and on Thurday I have a zoom meeting with the pain management so hopefully they will have some suggestions to help atm.

@Lou67 I'm so pleased your assessment time went by quickly for you, hopefully I will be the same. I plan on taking pain relief beforehand to help get me through the assessment and hubby won't be at work that day and has promised me he won't do any overtime that weekend as he knows that if he is not here their is a good chance I won't manage the assessment due to my anxiety, he is my rock and has been since I was a teenager.

Anyway fingers crossed you hear good news soon Lou67 🙏 🙂

Lou67

@Binky1234

So sorry to hear your in so much pain, it’s a nightmare when pain keeps you awake, hopefully the pain team can sort some better pain relief out for you.

Im on quite a bit off morphine and recently my pains got worse again I got one knee replacement in June and I’m still having bother with it, it’s actually making me doubt getting the other done. Got more X-rays cpl weeks ago and the arthritis is in both hips now.🤦‍♀️

Sorry Iv went on a bit there lol 

Take care ❤️

Binky1234

@Lou67

Hope they get your pain relief sorted soon as you say it's not nice being in pain as it affects everything you do even sleep.

Sorry to hear about your knee replacement pain. I can only imagine the pain your in. Sending virtual hugs your way 🤗


My rheumatologist has asked me if I would be willing to consider getting a Lidocaine infusion think this might be a new thing but not too sure.

durhamjaide2001

@Lou67 I'm pleased that it's all over for you @Binky1234 goof luck for yours hope it goes well 

Binky1234

Thank you @durhamjaide2001

durhamjaide2001

Binky1234 said:

Thank you @durhamjaide2001

Your welcome 

Lou67

@durhamjaide2001
Good morning thanks for your lovely message, I hope you have a nice peaceful day. ❤️

Lou67

@Binky1234

Good morning I’m glad they are looking at trying something new for you.Iv never had the lidocaine infusion but Iv been on lidocaine patches for a long time, and I couldn’t live without them, theyr the first thing I put on when my legs are out off bed.
Let me know how you go with them once you get started on them.

Good luck with them it’s so difficult been in pain constantly.

Take care ❤️

durhamjaide2001

Lou67 said:

@durhamjaide2001
Good morning thanks for your lovely message, I hope you have a nice peaceful day. ❤️

Thank you this has made my day 

Binky1234

Morning everyone I had a missed call from a mobile so I called it back and it was to do with my pip assessment on Sunday asking if I was still OK with it, explaining the call will be from a with held number and she told me the lady's name and that she was a nurse.

Is this the norm? Especially with a mobile number not being withheld!

Lou67

@Binky1234

Hi and I hope your doing ok today,
I only got a call the day before to ask me if I was still ok to go ahead.

You getting the call today is probably better for you, as it has let you know you are definitely getting a woman assessor.
Im so glad for you.
I hope you can relax over the weekend.

Take care ❤️

Binky1234

@Lou67 thank you for your swift reply when I read your post I breathed a huge sigh of relief.

Yes definitely a female and a nurse which I'm glad off.

I'm hoping this nurse knows all about my health problems and as seen 1st hand how debilitating they are.

Will post on Sunday and let everyone know how it went.