The Green Paper Discussion (the document link is here too!)

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Comments

  • pinkrose
    pinkrose Online Community Member Posts: 160 Empowering

    What does everyone think of them bringing in 'direct digital sharing of medical records'(with permission of the claimant) ?

    I personally prefer to send in any medical evidence myself, in a way that focuses on my needs and disabilities .

    Not sure how I feel about 'direct digital sharing' between NHS and DWP.

    Fair enough that it needs the claimant's permission but if any of us were to refuse it would obviously be detrimental to our claim.

    I like to be in control of the evidence provided...but that's just me.

  • MW123
    MW123 Scope Member Posts: 1,001 Championing

    Since you're waiting for your UC50 form and still need to provide more fit notes, your assessment will follow the current rules. They’ll check how your health affects your ability to work or do work-related activities. Your claim will be reviewed under the current system, as the changes being discussed here won’t take effect for over a year, if they happen at all.

    For questions about your current claim, it’s best to repost in the Benefits and Income category, where someone more familiar with the system can give you more specific advice. This thread is focused on the recent green paper, so your questions might be missed here.

  • luvpink
    luvpink Online Community Member Posts: 1,778 Championing
  • luvpink
    luvpink Online Community Member Posts: 1,778 Championing

    I haven't heard anything about 'digital sharing' of medical records with the DWP

  • Zipz
    Zipz Online Community Member Posts: 1,871 Pioneering

    I don't rate the idea for DWP use. Records regarding my disabilities date back almost fifty years and are a convoluted mess, full of misdiagnosis and medics personal remarks that are as hazardous as a PIP or ESA assessor's vacuous thought. I have all my records scanned and present only what is relevant, annotating what is inaccurate. Moreover, these days doctors are writing scantily.

  • sunshine1981
    sunshine1981 Online Community Member Posts: 230 Empowering

    I'm unable to walk without a boot and crutches, stand for what would be classed as a normal amount of time or sit with my leg down. I have CRPS. My foot hardly moves, goes numb, burns, swells, is incredibly painful, causes me to stumble, sometimes I can't move, sleep the list goes on but I'm scared I will end up with nothing and all the years I've worked to build up savings to give me security will be taken away because I won't qualify for UC and I will have to use all my savings to live. What an absolute **** show, working pays, what a joke. In their plans you get help for a limited time then sorry you have too much money you get nothing. Working doesn't pay, having nothing gets you more. I need to think of a way to earn some money to try and save, may I ask what crafts you sell. I'm very arty and crafty, I can't go out to work so this might be something I can do from home to earn some money. Any advice or help from you would be appreciated

  • Zipz
    Zipz Online Community Member Posts: 1,871 Pioneering
    edited March 19

    Hi @Danny123 It appears that changes to the PIP descriptors will only be determined after the current proposals are in force. The Green Paper states:

    155. In future, under proposals set out in this Green Paper, the WCA will be scrapped, with the PIP assessment becoming the single assessment to receive both financial support in PIP and any extra financial support related to health and disability through UC. This places additional importance on the PIP assessment and making sure it remains fit for the future.

    156. The PIP assessment needs modernising. It is over a decade since PIP was introduced, during which time there have been significant shifts in the nature of long-term conditions and disability, as well as changes in wider society and the workplace. People reporting mental health or neurodiverse conditions as their primary condition have increased more rapidly than those reporting other conditions, and increases in disability have been more marked among younger adults than older people, although older working-age people are still more likely to be disabled.

    157. Therefore, we will launch a process to review the PIP assessment. This is a major undertaking which will take time and require extensive engagement, so any changes to the PIP assessment would only be introduced following the reforms set out in this Green Paper. To make sure we get this right, we will bring together a range of experts, stakeholders and people with lived experience to consider how best to do this and to start the process as part of preparing for a review. It will also provide an opportunity to consider how to extend the goals and approach set out as a result of this Green Paper through any future change to the PIP assessment. In particular, the ambition is to shape a system of active support that helps people manage and adapt to their long-term condition and disability in ways that expand their functioning and improve their independence.

    I think we're looking into the next parliament

  • Middleton
    Middleton Online Community Member Posts: 239 Empowering
    edited March 19

    Your past assessment doesn't matter to an extent. Things may have progressed within your fluctuating disabilities. When it comes to a review, you mention these new aspects—aka, now finding you're unable to wash your own hair due to x,y,z, etc…

    Youre not locked in simply because you didnt score a 4 in a single example in the past for care

  • luvpink
    luvpink Online Community Member Posts: 1,778 Championing

    I agree because I am n a similar position.

    Its all so unfair.

  • luvpink
    luvpink Online Community Member Posts: 1,778 Championing
  • sunshine1981
    sunshine1981 Online Community Member Posts: 230 Empowering

    everyone who works will be in this situation we need to bring this to everyone's attention and it seems to have been overlooked, no mention of this in the news. People don't know that when they work and save that they will be in this situation if they become unable to work. It sounds good saying unemployment insurance but then UC follows when the time limit is up, this is how the government is planning on reducing the welfare bill, eventually loads more people will be unable to claim UC due to getting a job and going over the savings threshold. What can we do to bring this issue to the forefront and get people talking about it. People are only discussing UC and PIP

  • Middleton
    Middleton Online Community Member Posts: 239 Empowering
    edited March 19

    PIP renewal :

    You’ll have to describe how you’re now finding each task or activity. Think about if anything has changed since your last assessment and if it’s harder or easier.

    Here is where ,(imo), you shouldnt have to overthink and worry if you scored no 4's in any care Q, in the previous assessment.

    No omission of a 4 in a previous award is written in stone! especially given that each illness has many progressive nuances.

    In any upcoming renewals, we can all explain our concerns with our previous assessments…aka- where you feel that given the evidence you gave you should have scored a 4 -in that previous assessment! And the reason why you didn't contest it at the time; because overall, you did receive the rightful award of enhanced & chose not to have to go through the entire process again for fear of the assessment becoming even more incorrect.

    I think this contentious 4 will come back to bite them and become quite the stumbling block; highlighting the very flawed nature of previous assessments.

  • Andi66
    Andi66 Online Community Member Posts: 873 Trailblazing

    Timms is on gmb news st 8.30 today

  • luvpink
    luvpink Online Community Member Posts: 1,778 Championing

    Yeah I appreciate that.

    Its all so vague at the moment.

    We really need further clarity.

  • luvpink
    luvpink Online Community Member Posts: 1,778 Championing
  • Ralph
    Ralph Online Community Member Posts: 146 Empowering

    ’A #budget that was decent & fair would not slash £590m from the disabled & hand a £630m capital gains tax cut to the wealthy few next year’

    A tweet from Liz Kendall in 2016.

  • Ralph
    Ralph Online Community Member Posts: 146 Empowering
    edited March 19

    If you have a Labour mp let them know you’ll not be voting for them again.

  • luvpink
    luvpink Online Community Member Posts: 1,778 Championing

    Yes I agree.

    Successive governments have said that work pays.

    I worked for most of my adult life and saved as much as I could for my retirement yet we are going to be penalised for it even further.

    I don't qualify for housing benefit and I only get single person council tax discount.

    I was not illegible for free nhs prescriptions until I reached 60

    There are so many disadvantages having worked so hard and paid into the system only to find ourselves being penalised for it.

  • Andi66
    Andi66 Online Community Member Posts: 873 Trailblazing

    Just caught him on BBC, Timms justifying it. It supposed also help people who are in work like my daughter, we are both going to lose it. How can us with enhanced be reduced to nothing. Who was the mp who spoke out against it, she works for work and pensions. Can this 4 point be changed

  • LouCie61
    LouCie61 Online Community Member Posts: 76 Empowering
This discussion has been closed.