The Green Paper Discussion (the document link is here too!)

Chiari malformation is one of the investigations theyre looking into for myself. Also, have

spondylosis+ c5-6-7 spinal stenosis.

Im not sure how low my cerebellum tonsils drop; from the MRI's ,it doesn't look as jammed down into the spinal column as some other folks, but nonetheless!

I'm convinced it's what's affecting my vision: bright zipping lights and flashes that are peripheral. Although i have this one zipper, like a grain of rice-coloured electric blue lol that comes in from outfield to quick centre then off again😂.. seems to have a darker centre!

Had my eyes checked extensively, twice; and got the all-clear for the eyeballs, so!..😎..

I had read the cerebellum tonsils is where vision is linked?🤷

I think I heard is mentioned that assessors will be more skilled.

Even if this is the case; many GPS are'nt necessarily adept at times.

I have a long convo with a lovely lady from CA who i detected,,as we proceeded to chat; had far more general knowledge of my co-morbid's and symptoms; than many assessors and some gps!

I had to ask her if she had a medical degree. She mentioned that she had worked in the "field"(she didn't stipulate) in the past. In 7+yrs of interviews, she was hands down the most knowledgeable person I had chatted to concerning my issues. Whereas the assessor who came to my home 6+yrs ago, who was an ex-paramedic; had no general clue concerning my specific ailments.

So what skills will these new or retrained assessors, have?. They've often given me zeroes, where corroborating evidence was given by an entire team of specialists, that should have given me close to maximum points.

It does look like those of us who are unable to work and have no way out of that are going to be punished for being disabled (again), while they plan to give more to people who are able to work but don't. It's austerity plus!

well the lot of them need to go but I meant reeves . Think tank reckons that there predicted savings of £5b will actually only amount to £100m . By the time it’s extra resources to the NHS etc . I imagine GPs are feeling this already . Then there’s the tribunal service. When it went from DLA to PIP they had to quickly train staff including judges GPS and disabled people to sit on tribunals. In my case they hadn’t been trained properly and it was unprofessional to where it went to upper tribunal. The DWP even had someone sitting in to question me who thought she was ironside and I’d committed murder . Absolutely shocking. This all costs money and ppl are warning them that from past experience these things don’t work and costs more .

It wouldn't suprise me at all if it's "only" £100m - I mean can any of us imagine that amount of money to throw around - I can't imagine £1 mil let alone anything like that! Austerity has pretty much stripped every public service to the bone. There's nothing left to cut. Nothing. It's almost as if sick and disabled people aren't rolling in cash and living the high life…

One of the best GPs at my local clinic has left due to burnout (everyone wanted to see her because she didn't rush people). The govt has no clue how much ordinary people actually help them out by being unpaid carers, by not claiming benefits they or their loved ones are entitled to.

I'm sorry you had to go through that. One piece of advice I got about re-assessments was to record it on your phone. I think you have the right to do that. It apprantly does have an effect on how people are treated and also gives a record they can't argue and try to gaslight you about.

That said money talks at govts far more than people do. If the figures aren't there, maybe they'll abandon it (wishful thinking I know) - if they do they won't do that for another year and do a lot of tough talking about why it's necersary to still do it but quietly and slowly abandon it, but everything's just so uncertain with what they'll do.

I read something else mentioning more cuts which basically means we are back into austerity. But if psycho starmer says it’s not then I guess it’s not 🤷‍♀️. They seem to be running around with no clear plan as though they were suddenly thrown in at the deep end . Everything they’re bringing in our Tory ideas that they blocked while in opposition. Ppl

Abroad must be laughing at the mess they’re making in such a short space of time . But thank god ppl like Ellen Clifford are already looking into action to take .

I just feel so hopeless. I’ve got an ongoing 10 year award - well actually a bit longer as I’ve just been informed by PIP today that my recommended review date is June 2027. I was originally applied in 2016/award letter received in 2017. So my light touch review will happen, just after these changes happen, I’m so frightened that i will lose my lifeline. I don’t want to be claiming UC LCWRA or PIP I wish I could cure my cerebral palsy.

I can’t use my left hand or move my left foot. I need help to prepare food, and my sensory awareness is impaired and I can’t recognise when something hot. I just go to touch it. It’s like I can’t process that something is boiling hot! I got 4 points for this and for managing my condition because I have a lot of passive stretches and need someone to do this for me. I also recently started a specialised exercise regime but I need help to use the equipment - so I’m hoping that I should be okay to retain the 4 points here too. A long with the other descriptors I was awarded previously. However, I don’t trust that it will objective at this point because they will want to remove this for as many as possible. I do feel very vulnerable right now and scared I’m going to lose it all, I feel like I’m drowning and my anxiety is through the roof. Might it be worth to end it all here?!

I think it’s a good point, if you need mobility to get from A to B for some roles that will seriously compromise you. I think they’ll come back with off the wall example such as’There are amputees that work’ etc. It’s that bizarre. There are folk in heart failure/ COPD who might just about fail the criteria for daily living but cannot walk a distance. Is it going to take extra confirmation from your doctor that working might severely worsen your condition or even kill you for example?