Green Paper Discussion (from 24th March, 2025)

Yes I try to escape the news by telling the algorithms please don't feed me content about UC, PIP, LCWRA, etc. But stuff still gets through and obviously, at the moment, when its the topic of national conversation it is everywhere. At least now I've found Scope I have somewhere to turn when the news crushes me back down to feeling the lowest.

The thing I just want is some stability. If they have to cut some stuff, do it, but then please try and commit to sticking to some kind of plan. Don't come back in a few years and start making radical changes that stir up new crisis's in the mind. It's too much to take.

please 🙏

Because if they change the goal post they can say you do not qualify for daily living at all , which saves them 76-108 quid a week, but it also saves them paying carers allowance . In effect they are saying in one assessment that someone is ill or disabled enough to be awarded pip, then they change the criteria which then makes them liars because people will be assessed as not ill or disabled enough . It has to be abolished and left alone . I got 10 points daily living when I was awarded , I couldn't get the extra 2 for my hearing loss because my test was still pending , my review is after March30th this year and I have two hearing aids for profound hearing loss. I nearly got knocked down by a car last week because I do not hear traffic , and I was today at my appointment told by my audiologist I need to be very aware and keep looking as I just don't hear well . I never got any 3 or 4 in my assessment . I don't know if I will this time unless the fact I don't hear traffic gets me a 4 . I hope I am awarded again and for 3 years or more as it will take me 2 years before i retire , being awarded pip for ten years would be nice as i'd get it with my state pension . I am a cancer survivor and still having follow up until 2028 and won't be discharged as it was a high grade tumour . I hope your husband will be okay.

what condition? (sorry, I’m getting lost and confused with all the posts 😅)

Hi all, is this where reaction to the spring statement will take place please? It kept saying 'page not found'

I believe you are right.

I bet there will a lot of general outrage after todays Spring budget.

Very true, I wouldn't be able to pay even water rates who can't put me on a meter because of my health. I think that's classed as a priority bill.

I just feel absolutely sick to my stomach this morning. Stress is not good for disabled people at the best of times. In my situation it is just compounding my illness and also worry for my daughter is keeping me up most nights as it is. I feel like screaming but worry if I start I won't stop. I have been hanging on by a thread since my daughters was diagnosed with acute lymphoblastic leukaemia and have watched two of the young people on the Teenage cancer trust ward she is treated on pass with the same leukaemia she has and it just feels as if the government just doesn't care what individual situation people are in. I scored 4's on my last assessment but it doesn't mean I will on future ones. Even if we are lucky enough to be given PIP in future we will be at least £216 per month worse off as LCWRA is being changed to UC health element from 2028 and cut from £416 per month to £200 per month.

You would think cutting that much from disabled people would be enough for them and raise enough money but to then also be threatening to take PIP away which would have the knock on effect of losing your carer which in my case is my husband then you would lose the carers element of UC which is another £198 per month and then carers allowance another £324 per month and people will be literally on a couples joint claim of £617 per month and that is it.

This is not moral at all it is deliberately cruel and inhumane.

I know from all of the accounts of people on here that our situation is neither unique or even as bad as some people have it and my heart feels so heavy and hurts for all that people are going through.

Please try and stay as strong as possible today and just know you are not alone.

I didn't think any descriptor changes were in the proposals yet? The green paper just says they are doing a review of the whole assessment process. I'm in the same boat as you too as it's my 4 point condition.

can someone from scope please explain this further please . I just read on benefits and work that they’re putting are putting the green paper to the vote so once it passes it is an act of parliament meaning courts cannot intervene. Surely this can’t be correct as the ECHR seems to interfere in most of acts of discrimination.