Green Paper Discussion (from 24th March, 2025)

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Comments

  • gamer1
    gamer1 Community Member Posts: 81 Empowering

    There's always hope and if not we'll make our own hope. We have rights and they choose ignore it.

  • noonebelieves
    noonebelieves Community Member Posts: 705 Championing

    You’re welcome @gamer1,

    I hear you. I can truly empathise with you and everyone over here as I resonate deeply with many of your feelings. My children are even concerned about me, as I’m so determined to fight this at any cost. The problem is… my family worries that they could lose me before the battle is even fought!

    I even hate to use the word “reforms” here, as it’s clear from day one that these proposals are rushed, “bogus,” (as said by Benefits and Work Organisation)and deceptive. We should fight this head-on. I stand in unity with the voices of millions, including yours. Not just with the WCA but with everything they’ve proposed….there is not a single benefit for someone who is vulnerable, disabled, and has no physical or mental ability to return to work.

    What makes me so furious is that some of my physical disabilities, which are permanent, were caused by the long NHS waiting lists and the bureaucratic barriers within the healthcare system. If it weren’t for that, I wouldn’t be in this position today. Now, my family and I survive because of the extra support I receive from PIP. Concurrently,Im also at a legal battle with DWP over a UC/LCWRA closure which is also taking a huge toll on my health.At whatever cost, I will fight tooth and nail to uphold my financial and human rights in this process.

    Please don’t lose hope, even though this proposal feels crushing. We must oppose it in every way possible. Let’s stand strong together.

    Best wishes.

  • carbow32
    carbow32 Community Member Posts: 256 Empowering

    They are sneaky. They will make one assessment PIP (which will be a combination of PIP and WCA as it is now). Which will have us all thinking this isn't so bad. Then look at the timing of it. It will start around the time of the next GE. So they will think we forget all this and vote them back in.

    They will also shortly I think bring in "try work and we won't reassess you for x amount of time (for LCWRA). Hoping people start trying things to avoid a reassessment and then they can claim "oh look how many people we got into work"

    They aren't stupid they know exactly what they are doing!!

  • noonebelieves
    noonebelieves Community Member Posts: 705 Championing
    edited April 2025

    @Loulou82xx,

    Thank you so much for sharing your thoughts, and I truly resonate with everything you’ve said. 

    Your post is so insightful. I don’t have a strong background knowledge in politics/economics/social media , and that’s one of the reasons I usually stay away from political debates. But what drives me to speak up now is simple - I love people, I love my family and my children. And I write all of this from a very vulnerable place.

    I never imagined I’d be in a position where I’d have to fight just to protect what little security we have. No one -not me, my family, my children, or anyone else should ever have to face a ruling government proposal that threatens to throw our lives into chaos. Every benefit we receive has come after a proper assessment, jumping through so many hurdles . We haven’t taken anything that wasn’t rightfully awarded. And yet now they want to **** it all away. That’s not reform. That’s cruelty dressed up in policy.

    I feel the same fury and heartbreak when I see how disabled people are being portrayed and treated by this government and the media.It’s deeply distressing to witness the way they demonise us, playing on divisive narratives that only serve to pit people against each other. They create an environment of fear and mistrust, especially when it comes to people with invisible disabilities, neurodivergence, or mental health struggles.

    I have to admit, now,I try to steer clear of the news and media myself, as it has a way of impacting my health in ways I can’t afford. The constant stream of negativity and misinformation can be so overwhelming, and it only seems to make things worse for me . Unfortunately, no matter how much I try to disconnect, these algorithms in our e-gadgets always manage to bring it back to me, feeding the same harmful rhetoric. It’s worse than the media itself at times. The way the narratives are designed to trigger emotions, generate fear, and divide us makes it even harder to find peace.

    I understand your frustrations around how the media fuels this hatred and division. I’ve also seen the outrageous comments, the outright lies about “freeloaders” and “benefit tourists”…..and it makes my blood boil. These views aren’t just misguided; they’re harmful. They ignore the reality of disability, whether physical or mental. It’s painful to see people who are suffering in silence being labelled in such a cruel and dismissive way. The way they portray us – especially those with invisible disabilities – as undeserving of support is heart-wrenching.

    I completely agree that these proposals are a direct attack on us, and I’m just as determined to fight back. The way they’ve framed this consultation, and now these new criteria under the Green Paper, shows their true intention-it’s all about cost-cutting, not reform. They’re stripping away vital support without any real concern for the devastating impact it will have on disabled people’s lives. The PIP changes, the removal of the Work Capability Assessment, and now the stricter daily living criteria-they’re pushing this under the guise of reform but it feels more like a calculated effort to **** away rights and leave those who are already struggling without a leg to stand on.

    Like you, I’ve had enough. I refuse to accept this as our fate. My family and I depend on the support we receive, and I will fight tooth and nail to protect that, not just for me, but for everyone who is vulnerable. I won’t allow this government to steal away the little hope we have left. We’ve been through too much already, and I’m standing with you, and with all who are ready to raise their voices in unity.

    The government’s tactics are exactly what you’ve described with the media -they want us divided, scared, and silenced. But I believe in the power of people standing together, in defying the narrative they try to impose on us. We will not back down. We have the right to live with dignity, and we will keep fighting for that, no matter the cost.

    Together,we’re stronger, and we will make sure our voices are heard. Let’s keep pushing back, not just for ourselves, but for the generations to come. We won’t let them define our worth or take away our rights.

    I feel so exhausted after pouring it all out today. If there are any other points we need to pick out from the Green Paper so people can get their views across, I think that would really help move our discussion forward. Maybe we can title it: Debunking the Lies!🙄


    Thanks for reading, Lou!


    Best wishes, and let’s keep the fight going.

    🤝

  • Girl_No1
    Girl_No1 Community Member Posts: 414 Trailblazing
    edited April 2025

    @carbow32

    I agree the timing is extremely important for them.

    I believe their intention to prioritise the (generally) time-limited conditions of high-risk pregnancy and cancer diagnoses, tells us this.

    They intend to genuinely assist these groups to return to work. I base that on the fact, generally, these individuals would have returned to work, all being well for them.

    These people will become poster children as Liebour use the stats generated by these groups to "prove" the success of their "Moral Mission".

    Expect to see smiling new mothers and relieved-looking cancer survivors on posters for the Liebour campaign in 2029.

    ETA: The almost automatic removal of those with mental health illnesses will also be useful to Liebour.

    They will be hoping they can stave off the flood of those voters heading to Reform by waving the red-meat stats around how many scroungers/ chancers/ unworthy people they moved off disability benefits.

    Particularly so if the right-wing media provide enough poverty-****(*) to satisfy those who would be voting for Trump(=cruelty is the point!) if they were in America.

    (*) Poverty-**** footage of people obviously unwell/ill-equipped to care for themselves adjacent footage of empty foodbanks.

  • chiarieds
    chiarieds Community Member Posts: 17,441 Championing

    There's no doubt that Labour (or any Govt.) have to look at the costs of everything - what is so difficult is a) the length of the 'Pathways to Work Green Paper' (thinking of people with mental health problems or learning disabilities, dyslexia, etc. yet they purport to want to hear from disabled people), & b) that we can't respond directly to the parts that (mainly) disconcert us as all as disabled people.

    Speaking also as a disabled person with a somewhat medical background; I'm a long-retired physio., I can see that there's merit in helping those able to work to do so (if the Govt. can). What I have difficulty with is a 'points' system for PIP to which the Govt. wish to add the extra conditionality that you would need 4 points in at least one activity to receive the daily living component. As has been mentioned (& from my background), I can see no way in which you can differentiate that such a claimant is 'more disabled' than another currently scoring 8 or more points over several activities/descriptors. This is not logical, nor based on any medical evidence, & PIP is about your functional ability to be able to reliably do an activity & not on any medical evidence/diagnosis anyway.

    There's much mention of health conditions/disability, but nothing taking into account those with a long term/hereditary/progressive disorder as far as PIP goes, in whom little change in their functional ability will be seen, so altho this paper is obviously about 'work,' it seems like this Govt. is forgetting that many people who claim PIP do indeed work/have worked as long as they were able, they seem to feel that this proposed change to PIP will encourage more into work. How? They do ask how those that lose this proposed change to the daily living component may be helped - perhaps by not having to jump through this extra conditionality in the first place. If any financial support is given to such claimants, then how much would the Govt 'save?' Perhaps there will be a return to the 3 tier system of DLA; so much for progress & reform.

    Simplifying things so there's just one assessment in theory sounds helpful, yet the extra difficulty in claiming PIP will have a knock on effect if the WCA is abolished. Sadly the Govt. is not consulting on the extra 4 points needed for the PIP daily living component, nor the fact they hope to abolish the WCA, & many with a health condition/disability will have to jump through the extra hoops with a PIP assessment instead. They're just hoping for answers to their ill-conceived thoughts.

    The fact that there are now more reported cases of x disorder(s) has nothing to do with disabled people 'dis-engaging' in any way from work, just that more becomes known about different disorders over time; medical fact.

  • noonebelieves
    noonebelieves Community Member Posts: 705 Championing
    edited April 2025

    Thanks for raising this @gamer1, I really value your insight.

    I have to admit, I haven’t managed to scour the whole Green Paper yet .if I had, I think I’d be completely burnt out by now. Just from a quick glance, I couldn’t see anything substantial on carers, which is concerning. I remember seeing a few posts floating around with valid points about the potential impact on carers, and maybe it’s worth asking Scope admin if they can help pull those discussions together in one place.

    In terms of your question about old-style disability benefits, I’ll be honest , I’m not too familiar, as I’ve only ever had experience with PIP and LCWRA (still pending decision). I really don’t want to spread any misinformation, but if you’re willing to dig into it more, it might make more sense in your hands than mine.

    That said, along our previous discussions,I did spot on PIP that

    Section 2 – The future of PIP, assessment processes and safeguarding

    (from point 155 onwards)

    focuses specifically on the proposed PIP changes. It’s heavy reading, but unfortunately, there’s no other way to tackle this Green Paper than to dig into it and get our comments in. I’m finding it really hard to keep track of where I’ve commented on this thread , and I’m wondering if I should start copying key points into a Word document to help pull them together into the consultation response.Might be a helpful idea for others too.if Scope Admin has any advice in that area, it would be very welcome😊

    (Just a heads-up: this Green Paper takes so much emotional and mental energy to read…it’s like it was written to wear us down. Please pace yourself.)

    We’re all navigating through this fog together, and I really appreciate your efforts. None of us should have to carry the burden alone.

    Wishing you strength and solidarity always.

  • gamer1
    gamer1 Community Member Posts: 81 Empowering

    No need to tire yourself out. Thanks for your help. Thank you.

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  • noonebelieves
    noonebelieves Community Member Posts: 705 Championing

    @carbow32

    Thanks for your thoughtful reply . I completely hear what you’re saying, and I think we’re actually aligned in a lot of ways. You’re right ….they’re absolutely not stupid. None of this has been thrown together carelessly.

    An 84-page, purposefully wordy document with 301 points isn’t written without precision - it’s deliberately layered and deceptive.
    It’s been shaped not only from years of Tory policy erosion but also now with Labour signalling a continuation under financial desperation , despite their promises of change in improving lives for everyone, including vulnerable & disabled communities .
    The problem for many of us isn’t with the idea of work itself - like you said, a lot of us (myself included) were working while receiving PIP. That money isn’t a luxury ….. it’s what helps keep us in work. It supports transport, therapies, equipment,training and even just basic energy levels to function through a working week. For those on flexible or part-time work, and on reasonable adjustments (temporary redeployment),it’s a lifeline as top up wages to pay off essential needs/bills . And now that’s being put at risk.
    What really breaks my heart is knowing how many people -especially those on long-term sick leave(under recovery), or who will never be able to work again are staring down a future of being forced into a system with no safety net, no eligibility for PIP, no WCA(as it would’ve been abolished by then).It’s not a reform; it’s a trap almost like a sentence to indefinite/Temporary supervision under Job Centre work coaches under “right to try” guarantee (as they call it ) without any safety net of disability financial support. Again , we need to know how much cost has been cut here by these proposals as WCA will be abolished ,this person will Not be eligible for pip daily living 4 points so no UC health elements-pushing an ill person who has no financial safety net or the health to engage  in work will only add to the already pressured nhs systems causing havoc not only in accessing timely supply but missing out - Can you see the damage here? Not only will the person suffer, but the NHS will also incur more costs to secure timely support.

    Yes , in the proposal I also saw their “sneakiness”(as you say) that they propose so many billion pounds in making MSK Services accessible and developing some programme(truly I cannot read the green paper anymore.  It’s causing mental pain ). 
    All the senseless proposals clearly have a countermeasure for everything. We must not naively oppose them but instead have a strong awareness of everything they’ve put forward. Ultimately, their intent is clearly to cut costs …the entire Green Paper is cost-cutting in its finest form, almost a legal narrative crafted to defend themselves in a legal arena.
    However deeply you look at it (if you have the energy to), there seems to be no other intention behind it. They sell it as though they’ve created a once-in-a-generation proposal to support disabled people into work… but I don’t buy it. Just because they keep chanting that they are ‘the party of and for working people,’ it doesn’t mean they can justify forcing all disabled people into work while cutting the only safety net people have and then making the only remaining benefit, PIP, even harder to qualify for.


    To be honest, some of the proposed changes within the NHS are great and much-needed for preventing long-term , chronic and irreversible disabilities(As long as timely interventions are accessible). But their proposals to abolish the WCA and toughen eligibility criteria are incredibly cruel -because of the intent behind them. I still cannot believe our own government could cause such agony to its own vulnerable citizens — disabled people, their families, and children.


    Unless I were Hitler ………… if I were a Prime Minister of UK (I wish !!) 🇬🇧or the reincarnation of Liz Kendall😵‍💫 proposing these plans, especially at a time when the cries of so many are being heard through different sources, including from within my own party  ,I would have ordered the withdrawal of the proposal with immediate effect and committed to rewriting the proposals in collaboration with disability rights organisations and charities.

    Leaving all that aside ,you make a sharp point about the timing. I feel like they’re really banking on public forgetfulness. Throw just enough “hopeful” language into the Green Paper (aka)-a single PIP assessment, encouragement to try work but we know how these things get twisted in practice. It’s about numbers(money), not people…
    I appreciate you sharing your perspective….it really helps to hear from others who are also thinking critically about what’s being presented. Let’s keep this dialogue going and support each other through this.


    Best Wishes Have a great day!

  • noonebelieves
    noonebelieves Community Member Posts: 705 Championing

    I’ll be okay @gamer1. Just understandably overwhelmed. Thank you🙏🏽.

  • charlie72
    charlie72 Community Member Posts: 259 Pioneering

    I agree, watching the news makes me worse but it seems hard to avoid, especially online, I only really have a quick look on here and other disability charities sites to see if any of them have any news on a future court case againstb these cuts. I'm a bit fed up and disapointed with the lack of fight back from them, maybe I'm wrong and theyr'e working behind the scenes to start a legal case but so far Iv'e heard absolutely nothing and it's very worrying to think they might have become resigned to the fact they will push these so called reforms through.

  • Danny123
    Danny123 Community Member Posts: 223 Empowering

    The way I interpreted it was ....

    March 2026 , new claims for LCWRA get a cut , existing frozen

    From November 2026 , Pip criteria change's....for New and existing pip claiments.... Descriptors remain same but you will need one 4 in daily , and have to get a minimum of 8 points to receive new health element

    From now to 2028 reassessments for LCWRA will continue as normal with no change in criteria.... Then in 2028 when the wca is scrapped , pip assessment will take over , if you qualify you will receive the new health element which is the equivalent to LCWRA.... If you don't you will be expected to look for work

    My god 😂🤦

    They have not thought this through at all ....

    People in pip have a tough enough time qualifying for it anyway

    People who have just ESA or LCWRA or a mix of both and do not receive pip are in some serious danger , it's actually frightening

    Whats even more frightening is ....

    1. They don't actually understand what their proposing and how much danger their putting people in

    2. Even worse they don't care ....

    I mean we all talk and second guess on here , but if we all put that to one side and just really think about what they are proposing , I can't think of any way that this could even remotely work .... People will get desperate , can you imagine the chaos it will create for the government , the DWP the claimant 🤷 imagine trying to force people into work work with serious mental and physical illnesses....

    They say 200000 people want to work , there's not even enough jobs for half of those ....

    They say that every single person will have tailored support 😂😂😂😂😂 I mean that's actually laughable , I mean we all know what a complete state the DWP is in , not to mention the country , look at the incompetence at the moment , and they are actually trying to tell us every case will have specialized Tailored support .... That just won't happen

    We all know this is simply cuts and has nothing to do with the welfare of us ....

    Every one of our situations are different ....

    All I can do is look at mine to understand why these reforms will not work ....

    I haven't been out of my house in nearly six years , not once , not even in the garden.... I couldn't go to either of my nans funerals which I will never forgive myself for , I couldn't visit my mum in hospital after her heart surgery , my life is a constant long list of rituals that if any of you saw me doing would think I was absolutely crazy , honestly you wouldn't believe it .... I live in Constant terror , physically and mentally terrified with the darkest most awful intrusive thoughts , alot of the time I'm paralysed , can't move , can't talk , stay in the same position for days without movement....

    Now again this is just my situation , I'm sure everyone can relate , as everyone on here has there own disabilities with there own challenges and obstacles....

    Now how is it that they think that making an assessment that is already hard to pass , EVEN HARDER , to the point of nearly impossible , which will also have this black and white tick box culture to it make people's lives better ? Not to mention it will be the main assessment to be able to qualify for extra money , otherwise you need to look for work .... I mean this sort of blows their. " tailored surport " mantra out the water doesn't it ....

    Theres nothing tailored about making everyone undertake a one size fits all assessment to qualify just to keep the extra money we already get now ....

    I mean again I'm just looking at my situation as I'm not familiar with everyone else's .... But ok , I take the pip test and i fail let's say ....

    So now I have to come to the jc and look for work .... Ok no problem....

    Ill do that then ....

    How do I get there when I can't get out my house ?

    Ill have to do it when I'm not completely paralysed and shut down

    Also I'll have to do it in-between all my rituals....

    Also I won't be able to do it when I'm talking to myself and trying to push the intrusive thoughts away

    Ill need to get ready , but my personal hygiene is completely knackered as I can't even get in the shower for months or brush my teeth regularly 🤦🤦

    But other than that I'm fine to do it 😫

    And as you read this I'm sure you can all relate so much to this as you have specific needs and ways to navigate your disabilities

    I can just imagine going for a job interview 🤦🤦 I mean it wouldn't be possible , can you imagine them asking me a question but before I can answer it I need to do about 10 different rituals ! .... Tailored support my **** !

    Theres just no way this could work , I mean it's almost criminal

    As much as I think these reforms will come to pass one way or another , I really am starting to have serious doubts how they could do it in current form , far to much of it is not workable , it just makes me think there will have to be amendments , won't there ?

  • jul1aorways
    jul1aorways Community Member Posts: 397 Pioneering

    I hope you are coping OK @noonebelieves 😊

    Aren't there times when this all this becomes SO overwhelming AND draining. 😔 We should all be so proud of ourselves by knowing that we with near impossible odds, being forced to go through what no human being should have to through, we are STILL doing everything we realistically can to challenge these proposals and to raise all the awareness we can in the face of such overwhelming properganda.

    To do this, we have to keep ourselves throughly informed about what's going on and therefore have to keep coping with so many things that are so triggering!! 🥺

    We would not be able to do nearly so well with out each other's support, encouragement and individual knowledge though. Bring us all together as a collective voice and, although it's still extremely difficult, it's much easier to get yourself in a better place, making you much more capable of finding the inner strength to challenge what is happening. 💪

    Let's look at it this way. Our adversaries in the government WHAT us to be completely isolated from each other, drowning in despair, and becoming more ill. This would then make us incapable of functioning at all, never mind being able to challenge their evil, flawed and misrepresentative intentions.

    I don't think that is happening, as I'm sure you'll agree!! 🤗

    I've not long joined this community but I feel so proud and privileged to be here. I would be doing certain things towards fighting this, I know, but would not be coping nearly as well as I am, or doing as much as I'm doing. A substantial part of that is because of you @noonebelieves👌🤗

    As you've said, we are not only fighting for ourselves but for our families too. My partner and I are both disabled and claim PIP and are both paid to care for each other. If you can call Carer's Allowance and Carers Element being paid. 😒 The situation isn't as bad as it sounds because I have two 4 pointers on my daily living but my partner doesn't.

    It will still result in a significant financial loss if he doesn't get 4 points in his upcoming review in 2028. At least he is state pension age and if the PIP fails (he gets standard daily living) he will certainly qualify for the standard rate of Attendance Allowance, as the criteria to get it is easier than with PIP, as it will be then, if it is not stopped. I would lose my Carer's Allowance though, as by that time I would still not be State Pension Age, I would still be three years away from that. We are a mixed age couple, my partner is 11 years older than me.

    I have worked out that once I get to state pension age, with our Pension Credit for a couple, my PIP and either my partner's PIP or Attendance Allowance (standard for both are at the same payment rate) we would have the same money as we have now, as we wouldn't feel the loss of the Carers Allowance. However, our income would be before housing costs (we're in social housing) as we would get housing benefit back instead of the derisory amount of housing element that you get with UC. 😒 This means that we would have more disposable income so, in real terms we would actually be little better off.

    The point is that at least we will, at our lowest point be able to pay the rent, to feed ourselves, to pay our bills and look after our cat and dog, who as far as we are concerned are family members too.

    What about the thousands of people who are not going to be able cope!! 😮 Disabled people who are nearing or already in poverty, WHO KNOW that they will not be able to eat, pay bills or keep a roof over their head! People who face destitution, temporary accommodation or even the streets!! 😥

    Whatever did they do to deserve this? 🤔 😔

    The answer of course is NOTHING!! 😡

    They are most likely to be people who are of working age, who are nowhere near pension age, who live alone. They will lose EVERYTHING. 😱

    Plus thousands MORE, whether they are on their own or not, who might just about scrape by but the smallest change in circumstances will tip them over the edge. 😣

    I hope that I'm not really depressing you even further, 🙏 especially as I don't know what your circumstances are and don't need to know but I feel that whatever we go through ourselves, we have to fight for them too. THERE IS NO CHOICE IN THE MATTER, I believe.

    Many of our fellow disabled, with the greatest of respect to them of course, don't have the ability to being able to fight this, like we can and many can't cope with, or can afford to use the internet.

    They would very likely to also be unable to, for instance attend a real world disability cuts protest in person, which, to be honest I'm not up to either and by the sounds of it, neither are you.

    All these things are organised online and unless they have someone else to help them with the process of finding out when these events are happening, they won't even know what's events are going on, never mind be able to attend.

    I apologise also that this post has been so long but it breaks my heart 💔😥 to see what is happening to us all. I admit that I've had a hard life and ill health for the last 21 years. I have had to go through all the previous government's shenanigans with this situation but I have never been through anything quite this bad. 🥺

    It is the sheer scale of the deverstation to disabled people's lives that gets me, in a rich, developed country that is civilised and a democracy. That our governments could have bought us so low........ This government, I have not got the words that can sufficiently describe what they have bought us to.

    I must say I do feel better for letting all this out but I do hope that this hasn't got you down too much. It's a beautiful, warm day again, ☀️another reminder that there are so many positive things that they can't take off us , not unless you allow them to. I won't let them do that, they are not worth it and I'm sure that you won't allow yourself to do that either.

    Do take care of yourself 👍 and I promise 🙏 that I will continue after this post in my usually, largely positive self in the future! 😊

  • Martinp
    Martinp Community Member Posts: 249 Empowering

    I will crawl in that job centre on my stomach, half **** and pee myself, every time they want me there. I will have to have an ambulance every time, if that’s what they want that’s what they will get

  • Topcat71
    Topcat71 Community Member Posts: 194 Empowering

    Was disability benefit as once called if I am correct change to pip so that it makes it easier to not associate the benefits with the word Disabled

  • Zipz
    Zipz Community Member Posts: 4,352 Championing
    edited April 2025

    Before PIP there was Disability Living Allowance. As ESA took over from older out of work benefits, words such as "disablement" were lost. I remember being assessed for the Mobility Allowance we had before DLA. The assessment was tough but I saw a doctor. Gradually, words that clearly state the claimant's situation have been removed. Universal Credit could mean anything.

This discussion has been closed.