Scope's reply to the governments planned concessions to the green paper.
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I read today that starmers old law firm have looked into the bill and say it’s against equality laws
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On the front page of the telegraph it says reform are now expected to vote against the bill .
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This is like a really bad carry on film that’s just not funny . As you say he has nothing to gain . He’s ruined the party and any hope of a second term for a few billion from the sick disabled and pensioners. Yet in order to save a few billion they’re spending £300 billion to bribe the country. They would have been in a stronger position now had they left us and the pensioners alone . It’s hard to see how Starmer reeves and Kendall , not forgetting their lapdog Timms, can be so stupid. It’s almost as though Blair’s told them yo purposely ruin the country.
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Thank you for the update @MW123 - she genuinely seems to be acting as a MP should by listening to her constituents, & there's hope that you'll have a voice in 'Timms tinkering' with the PIP assessment.
I've just been busy emailing a response to the Green Paper in my own words rather than replying to the consultation itself, & asked questions rather than answering theirs. Just got it in by the skin of my teeth! I did question the use of the word 'constantly' with the severe conditions criteria, as promised @secretsquirrel1
It's been a busy day with looking after my son's dog, then having a great chat (2 hour long as usual) with poppy123456, which cheered me up from thinking about these dratted reforms, tho we did talk about them!
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I think I'd like to echo @JasonRA 's words - a big 'thank you' to everyone for supporting each other through all of this, for the amazing number of emails sent to MPs, etc.
I never thought I'd get pulled into a political discussion, but it just matters so much right now to get our thoughts out there & fight, & I'm sure we'll keep on fighting, to help all disabled people.😊
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It wouldn’t hurt at all to email Jeremy. It might be a helpful way to clarify how conditions like ME or fibromyalgia are being interpreted under the current proposals. And yes, my MP is Labour. She is also a parliamentary secretary and has indicated she will vote in favour of the bill.
When I saw her last Saturday, I was incredibly frustrated. I came close to asking her to step down from her parliamentary role and vote against the bill as a matter of conscience. Instead, I chose to remain professional, say nothing and focus on working with her, so she can hear directly from those with lived experience and gain a proper understanding of the impact this legislation could have.
From early in my own profession, I learned that when you enter negotiations and let emotion lead, you often end up closing the very doors you are trying to open. It is not about staying silent, it is about staying engaged long enough to be heard. For now, I am keeping my powder dry. Timing is everything, and I want to make sure that this time we actually get a real chance to directly participate in shaping the PIP descriptors, because let’s be honest, they have done their best to shut us out.
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You’ve done really well in fighting our corner MW . If they were to ask me I’d say we really need a descriptor for fatigue as not only do we have ME and fibromyalgia but also long Covid now . Plus being in pain both physically and mentally causes fatigue and I don’t think it’s given enough thought . If I’m in pain I can at least take painkillers at times when it’s too much but there’s no treatment for fatigue.
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Thank you for thinking of me chiaried I really appreciate it as you know what you’re talking about . I read on another site that ME wouldn’t be classed as severe as we can go into remission , though I don’t nit even for a day . But I just read on here a post I think from MW that it’s apparently not condition specific. My ME since Covid has gotten worse and I’m sure inched closer to severe from highest moderate. I mentioned this to my GP as I started as mild the went to highest moderate after a second infection of glandular fever and my GP agreed. My brain fog is terrible now too so I hope I make sense .
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Your post made me smile! “Timms tinkering” indeed, if this is tinkering, I’d hate to see what full-blown meddling looks like.
I’m currently writing up an account of last Saturday’s meeting. It’s a bit too long to post here, but I’d really like to share it with you, and I’d really value your balanced take on it. I’ll send it to you privately once it’s finished.2 -
You always do make sense @secretsquirrel1 - I made sure to get that very important question in about the use of the word 'constantly' with severe conditions. I gave a little background about myself so they hopefully will realise I 'might' know what I'm talking about, saying that no-one could 'constantly' fit a descriptor.
I also said that if they're hoping to align UC with PIP assessments then they should go back to saying the 'majority of the time,' as that's what's used with PIP, & they're going to be using the PIP assessment in the future.
I couldn't agree more with @MW123 - I found the same as in I had to work with Drs & remain objective if I wanted them to listen. The more you engage, at least I found, the more they become willing to engage with you. You've got to listen to them in the first place, & then you get listened to. Asking pertinent questions, & listening to their replies before saying anything further then also helps as you've found!
I look forward to hearing from you.
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They are so evil, if they could kill us all off I think they would
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I’m so glad it went smoothly for you . I wish I’d migrated over years ago now .
Yes I’m not a fan of this heat though my fans on 24/7 which helps . When my dogs allow me to enjoy it that is 😂0 -
Thank you so much. But it really has been a collective effort, every member here played their part. Our members didn’t just speak up, they made it impossible not to listen. Still, if we are handing out gold stars, @Catherine21 deserves a constellation. I am pretty sure Catherine sparked that Labour rebellion single-handedly!
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@Catherine21 has been fantastic. You all have been and kept the momentum going. I never thought I'd have the courage to contact so many MP's. No matter what happens tomorrow we will all continue to fight on. This forum has made me feel less alone. A big thank you to you all. 👍️
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Yes, as I am talking about what I have heard live in the debate.
That quote is typed in bad english, but looks like it says if someone requests a reassessment, it will be under the new rules. However the english is bad, its hard to treat it with credibility.0
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