HEREFORHEMI by Cianna Howard

hereforhemi
hereforhemi Online Community Member Posts: 3 Listener
in Start here and say hello!
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Hi everyone 💛


I’m Cianna, a mum to a child with hemiplegia, and I’ve recently started a community called Hereforhemi 🫶


After diagnosis, I found it really isolating not knowing anyone going through the same thing, so I wanted to create a space where families could connect, feel understood, and support each other.


In just over a week, it’s grown really quickly with over 200 families joining, and we’re now organising local meet-ups across the UK so people can connect in real life too 💛


I’d love to connect with others here and hear your experiences — whether you’re a parent or living with CP yourself 🫶


If you’re UK-based and would be interested in meet-ups, feel free to reach out 💛

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Comments

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 411 Pioneering

    Hi @hereforhemi

    Welcome to the community. This sounds like a great initiative for children with cerebral palsy and their families.

    I'm Sara one of the CP specialists in Scope's CP Network. Our network supports people with cerebral palsy and their carers, so please feel free to contact us.

    We also have a Facebook page dedicated to families who have children with cerebral palsy. Here is the link in case you are interested in joining. Parents of Children with Cerebral Palsy Scope

  • hereforhemi
    hereforhemi Online Community Member Posts: 3 Listener

    Hi Sara, thank you so much for your lovely message 💛


    It’s really nice to hear from someone within the CP network, and I really appreciate the support you offer families.


    What I’m finding already is that so many parents are really craving local, in-person connection as well as online support, which is what I’m trying to build alongside everything else that already exists.


    It’s grown really quickly in just over a week, with families joining from across the UK and meet-ups already starting to form.


    I’d love to stay connected and see if there’s any way we could support each other moving forward 💛


    Thank you again for reaching out, it means a lot 🫶

    Cianna

  • hereforhemi
    hereforhemi Online Community Member Posts: 3 Listener

    @SaraC_Scope ^

  • Mary_Scope
    Mary_Scope Posts: 4,383 Scope Online Community Children and Family Specialists

    A warm welcome to the community from me @hereforhemi 😄

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