National Epilepsy Week 2026.

SaraC_Scope
SaraC_Scope CP Network, Scope Posts: 420 Pioneering
edited May 18 in Talk about your impairment

Shout out to all those living with epilepsy and the support network around them.

National Epilepsy Week.jpg
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  • Holly_Scope
    Holly_Scope Posts: 5,516 Online Community Team

    Thanks for sharing @SaraC_Scope. Both my nan, mum and brother have had epilepsy. My Nan and Mum don't anymore but my brother still does. It was very big part of my upbringing as my mum suffered really bad with it. You could tell it was coming on as she would jitter (as we used to refer to it) and she wouldn't be aware it was happening. The amount of times she would hurt herself falling down the stairs etc.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 420 Pioneering

    @Holly_Scope Thanks for sharing your family's story. Epilepsy has a massive impact on the person with the condition and the wider family. It's so unpredictable and scary for those caring for the person. My epilepsy is now under control but I take a large amount of medication to keep it that way. It's the hidden side effects many people don't understand.

    Because I've been seizure free for 19 years, people assume I'm better! But it's so much more complicated than that.

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