Suspected AuDHD at 56 (is it or am I being daft?)

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  • Tanga
    Tanga Community member Posts: 10 Connected

    to be honest I cant remember anything that obviously was affected by it in work. I know I enjoyed things that were defined, like accounts/book keeping etc. I enjoyed work where I gave people information. I was praised by a manager for having a tendency to tell her/give her facts/what she actually needed rather than what she asked for and thought she wanted!

  • NDmummy
    NDmummy Community member Posts: 22 Connected

    I so know what you mean about not being able to bite your tongue, years as a senior staff nurse tried several times for promotion but always the bridesmaid never the bride. A consultant I hadn't seen for a few years asked me Sister ? when I said no he said all you have to do is keep quiet and bite your tongue, just till you get the post. I told him I tried it once lasted a month and it nearly killed me. As for how to cope with it, well it got my card marked for refusing to play the nasty politics , a colleague with MS was bullied into medical retirement, she was fighting so they trumped up some imaginary mistakes and complaints, I stood up for her at the disciplinary hearing, when no one else would. They got rid of her and I became next in line. I'd do the same again. Think if it's minor things , not dangerous or not bullying I learnt to pick my fights. When a manager would try to undermine me or bully me I developed a poker face. Inside I'd be seething, lots of expletives , but I would smile, agree with whatever they were saying in a vague non committal way then make my excuses and walk. Funniest was when a manager had had a talking to from a senior, He spluttered at me about how he had been caught off guard , some figures or something he should have forwarded and that they were needed today , I responded with " and you want me to do what with this information " didn't earn myself any favours. So sometimes just need to take a deep breath and think is it worth it, or more to the point are they worth it, always give a second chance, but never forget.

  • Amaya_Ringo
    Amaya_Ringo Community member Posts: 90 Empowering

    With regards to work, the biggest challenge for me is getting through the interview. I am very bad at them. Let's leave it there. The problem is that none of the standard stereotypical adjustments are helpful to me, since first point is can I find the place, let alone get into it. And giving me more time to answer a question I can't remember is…also not helpful. I get fed up with being scored against nondisabled people ON POINTS.

    This happened at my current workplace, so I currently have the lowest rank job and the fewest hours. BUT. I have proven that I can do the job, even if I can't talk to someone in an interview. And I actually love the colleagues who got the positions ahead of me. One in particular. But now I need more hours. And I would rather have them where I work now, because I can find it and know what I'm doing - but it's a public sector job and currently political parties are queuing up to cut chunks off the funding, so good luck with any extra hours coming up any time soon…

    I work with the public, I have always done this, I love doing this. Do I like people in my space outside of work? No. But at work, do I like helping people? Yes. It's very weird. I'm really good at customer service. But when I get out of work, the work switch goes off and I'm in travel home mode, do not disturb xD.

    I finished study right before the pandemic, I had a lot of trouble finding work of any kind after because I was so disjointed and our lockdown lasted longer. I had one job chance I had to turn down mid-pandemic because of no relocation support. I just feel like more than the job itself, the actually GETTING INTO A JOB is harder. I can't work full time either - my brain can manage 25 hours in a week before it starts to implode - so that's also a challenge. No transport, no interview skills and no full time hours = limited opportunities despite my experience and qualifications being pretty good.

    For me the week or two before an interview, and the time after waiting for the result is a meltdown situation. Most people don't have to do job interviews when they're also in fight or flight mode. Maybe if more NT people had to do a job interview while being chased by a bull, the playing field would be more level…something to consider.

    I did have a situation at a previous job where they pushed me to apply for a promotion and put me through all that stress only to give the job to someone else. That did a LOT of damage at the time. So yeah. Getting into work is the biggest challenge.

    Also, Albus, I don't know if you meant it or if it was a typo, but I love neurospicy xD.

  • Catherine21
    Catherine21 Community member Posts: 1,128 Pioneering

    I'm 52 diagnosed bpd bdd pmdd dyslexic to the point don't know alphabet after all these years still can't get right don't know how to put capital letters full stop ect I'm awaiting adhd test 100 percent have adhd and autism makes the most sense don't get comfort from people an hour in anyones company and I'm drained spent hours in my own head get very angry rages talk non stop iny head don't like being touched stared at haven't been able yo hold jobs down I always feel overwhelmed my life is actually unbearable at the moment have menopause and it's ramped everything up and with goverment saying disabled go back to work I'm terrified I know I want make it I'm so tired of the constant noise in my head all saying bad things I cant deal with this I'm drained

  • Albus_Scope
    Albus_Scope Posts: 7,182 Online Community Coordinator

    I'm so sorry things are affecting you so much recently @Catherine21 we're all here to help you get thorugh it though. 😊
    Interestingly, many women are misdiagnosed with BPD, when it's actually autism. It's frustratingly common.

  • Catherine21
    Catherine21 Community member Posts: 1,128 Pioneering

    It makes sense to me and now thier saying disabled go back to work I cant eat sleep have rages and meltdowns and now I'm completely drained I always pretend I'm OK but I cant hide it get rages with family friends it's just constant in my head all the time

  • Albus_Scope
    Albus_Scope Posts: 7,182 Online Community Coordinator

    The politicians are being very vague about everything right now, I've seen "those that can work, should work" which I don't see as an attack on disabled folk. I'm trying not to let it get to me too much. We'll have a better picture of things in a few weeks hopefully. I hope the brain calms down for you soon. Have you spoken to your GP about all of this? It may be worth getting back in touch with them for a catch up.

  • Catherine21
    Catherine21 Community member Posts: 1,128 Pioneering

    Yes I'm doing one to one managing emotions thankyou

  • eeL
    eeL Community member Posts: 39 Contributor

    Very interesting comments from everyone here that I can relate to and make me laugh and cry! Yeah, I got sacked from a company after being vilified by management and everyone hated me but oddly during all that time management was receiving letters of commendation for me from customers! I think I can do 'socially correct and pleasant' in a professional capacity but on a personal level not so much. Close and personal is a bit too messy for me. I kind of know what's expected or polite or correct or welcomed with a customer - get back to the office with all the bitching, sarcasm, politics, 'cliques' and gangs, unwritten rules, all the things I 'should have known or must surely have realised' (and didn't), ladder climbing, game playing, creeping, crawling, manipulating, lying, telling tales (with brass knobs and bells added on), rumours, gossip, two-faced assassins…..and it all goes horribly wrong because I can't understand what's going on or why. It's a minefield, like a parallel universe!

    I do think a diagnosis is useful in later life if you've had the issues others mention of low self esteem because it gives you permission to blame autism for some part of things going wrong rather than totally hating yourself for being a rubbish person, and it helps you to identify why things go wrong and sometimes that helps you to guard against the pitfalls (although I've never managed to eradicate them!). For example, I too get stressed about people doing the wrong thing at work, but I've learned to make a personal choice - if the thing is morally wrong and someone needs my help then I'll wade in and suffer the consequences because I feel it's the right thing to do. But if it's just lazy people or someone's late all the time I try to let that be the boss's problem rather than mine. I've learned that some bosses seem quite happy to let people get paid for doing a really bad job, they're not bothered. And after all it's their loss, unless people's idleness impacts on my own work. I've learned to do MY job well and ignore what the rest are doing as much as I can. It really helps if you can learn to stop trying to make everything FAIR. However wrong and irritating it is, most work places aren't fair. It seems you face has to fit to get up the ladder and with autism mine's unlikely to do so. No, that's not fair, but getting stressed, angry and ill about it changes nothing and just makes my life / health worse, so I make it harder for myself. Sometimes you can't stop them from making you the loser, but you don't have to do it to yourself as well❤ I'm trying to learn to have inner peace and self respect so that what others think of me that isn't true affects me less. YOU know who you are - if THEY don't then they're the ones losing out. You got to let some of it go, for your own sake and sanity. I tend to think that people who can't see past my autism are probably the sort of narrow-minded, superficial, shallow, unkind and unintelligent people whom I wouldn't get any joy from knowing anyway. It's hard to have an interesting two-way chat with bigots so if they can't be bothered with me then it's probably for the best for all concerned! When people reject me and say 'I don't want to know you!' I've learned (rather than feeling devastated, hurt and self-loathing) to ask the question, 'But do I really want to know YOU?!' Maybe they think I have nothing to offer them. But what have THEY got to offer ME?!

    And I get really angry and kick off but I'm trying to learn to count to ten and think - is that REALLY going to achieve what I want? It generally just alienates people and they stop listening to your (often very valid) point. The rest of the world just seems to be playing a game and nobody told autistic people the rules so we never win the game! It seems we have to learn to 'play the game' the way the neurotypicals do and it's goes against the grain alot of the time. I'm constantly exhausted from having to step outside my front door and pretend / try to be somebody else so as to placate the rest of the world. I don't believe it should be that way, we should be allowed to be ourselves, but we're a long way off from that world I'm afraid. If you're a minority you're expected to adjust yourself to fit in and morph into the same as the majority - I'm sure you'd hear the same from people of colour or people with ginger hair or people from non-native religions or different countries. 'Different' doesn't seem to be easily accepted - it's too inconvenient for the masses😊

    Catherine21 I find it helps to pull it all apart into tiny steps and fix the bits you DO have control over. For example, even neurotypicals find everything harder if they're not eating and sleeping! So maybe fix your health first. Sometimes when I'm anxious I have to FORCE myself to eat and sleep, even if I don't feel like it. I treat myself as the parent of my 'inner child' and say, 'Ridiculous behaviour, you're over-tired, go to bed!' or 'You haven't eaten all day, I don't care if you're 'not hungry', you're going to eat SOMETHING!'. With autism I find things go pear-shaped because the emotions take over - I'm too anxious to sleep, too angry to sit quietly, too excited to go to bed, too upset to make a good decision. My emotions are so extreme I can be on a rollercoaster because things are hyper-important to me. Sometimes I think neurotypicals are lucky because they don't seem to care about anything so much. They don't get overwhelmed and have meltdowns, they never seem to get so upset, so angry, so depressed, so worried, so scared. But then I think they're never as naively happy, enthusiastic, dedicated to something, brimming with good intention and caring as me either😊It's a sever inconvenience for sure, but I've never been convinced that 'caring' is a bad thing. I think it's just that we have to keep our 'caring' in perspective and not self destruct because of it.

  • Catherine21
    Catherine21 Community member Posts: 1,128 Pioneering

    Oh thankyou x

  • Catherine21
    Catherine21 Community member Posts: 1,128 Pioneering

    I'm a great one for fairness and had a boss who absolutely drove me insane her voice the way she looked at people like thier crazy! And I had Monday to Friday job in care she moved me next door which involved night shifts longer hours I didn't relize at the time I was burnt out I got signed off I got rage and started a witch hunt on her I have pmdd as well I was phoning leaving messages on the works answer machine just had no fear it went on and on I'm sure I had a breakdown I got arrested and warned obviously lost the job after that I've totally isolated myself but when I think somethings not fair I go in on it

  • eeL
    eeL Community member Posts: 39 Contributor

    Catherine21 I totally get that - I think it's only with 'old age' and in the last 3 years that I've realised it all did me more harm than it did to the unfair person. If I could advise my younger self I'd say 'Give yourself a break, let it go, walk away and sometimes you can't put the world to rights'. I wasted so much angst and stress over things I was never going to be able to change. Truth is, some people are just rubbish people, and unfortunately somehow alot of them seem to have got into positions of power. It's taken me years to realise that people are entitled to think and be as they like, and sometimes that's really unpleasant. But that's on them, not you. Let it be THEIR problem - the minute your behaviour gets out of hand all anyone sees as the problem is you, which is unfair in itself but it's how it works. When I have a meltdown no one asks what bad thing someone did that caused it, they just see ME being 'ridiculous'. Instantly we're the ones criticised and the 'bad' person then gets a degree of sympathy because people think however awful they were being it was probably justified because WE'RE behaving badly. I had it pointed out to me by a counsellor when I told her I was going to rip into one of my neighbours and she asked, 'But is that REALLY going to change things in the way you want?' and I had to admit, no, it'd make it all worse. So now I try to walk away when I feel the 'red mist' rising - sometimes ten minutes later I'm still sure I need to say something (although I might say it in a more appropriate or considered way!) and sometimes the 'mist' clears and I decide it's not worth it. The same counsellor told me that I'm entitled to say, 'Excuse me, I need a minute' and remove myself from a situation. The 'breathe in for four and out for six' thing is hard enough to take your concentration, slow your emotions and at least look after your own wellbeing. Don't let idiots make you ill! Stress is bad for us - I read somewhere that autistic people often have a shorter-than-average lifespan. That'll be the stress then I guess - bad for your heart, your immune system, digestive tract, etc. Says the person who's constantly stressed lol But we can TRY to regulate things and look after ourselves. It makes me laugh to think of the phrase, 'Leave it, Kevin, he's not worth it!' Because these rubbish people seldom ARE worth it, and if we end up looking the bad guy it must make their day. Don't give them the ammunition! And if people are determined to be tools then let them get on with it on their own or try it on with someone who's not you. I have a photo of 'Gunny Highway' (Clint Eastwood) at home with his phrase, 'Go hump somebody else's leg, mutt face'. If somebody's refusing to be reasonable, walk away. ❤

  • Catherine21
    Catherine21 Community member Posts: 1,128 Pioneering

    So true I'm having one ro one sessions on controlling my emotions my trouble is I have no attention span I go into my own little world but still appear to listening and not! That's why spelling bad never focused listen dyslexic the one thing I did retain breathing methods I'm always envious of people who just get on with life relationships and work I cant trust myself to go to work everyday I have major meltdowns cant leave the house literally my mind and body won't let me

  • eeL
    eeL Community member Posts: 39 Contributor

    Honestly, it's dead true what my autism assessor told me (I was in a really bad place at the time after being fired) - you CAN work, if you're in the right environment with the right people. People who understand and don't judge, people who just shrug it off and don't take it personally if you have a meltdown, people who will ask, 'What can we do to help?' if you're struggling rather than driving the knife in. Those jobs are few and far between but they ARE out there. I'm interested to hear how all these politicians think they're going to get us all back to work - by making workplaces fair? By making people understand and accept diversity and disability? By making employers give us a chance? Not being able to work isn't ALL on you. It's true, I think, that society disables people with a disability. People could be more helpful. And if they can't find it in their hearts as a fellow human being to do so maybe employment law should be there to enforce it. And be upheld rather than just being a whimsical notion nobody adheres to. Don't beat yourself up over it - our past bad experiences create anxiety and make it harder and harder. We just need someone to meet us half way. I hope you find that good place❤

  • Catherine21
    Catherine21 Community member Posts: 1,128 Pioneering

    Oh bless you thankyou most my life was given to masking and I didn't relize it all makes sense now I also developed body dismorphia they say personality disorder but sure adhd and I'm dyslexic I never listened at school always aware of how I was acting how i looked not in a vain way in a repulsive way I haven't had a real career feel at 52 scared vulnerable by the politicians saying really made me look at myself and see I have no skills and that's really scary I don't trust myself to look after myself of that makes sense

  • eeL
    eeL Community member Posts: 39 Contributor

    Totally! You're not alone - there's at least two of us lol Nobody even knows the extent of how badly I'm doing, I daren't say it because it'd be further owning up to my 'failures' and make me look even worse. I've always been completely dysfunctional, can't take care of myself. Life's one big struggle, isn't it?! I said to someone yesterday, if we couldn't do school and university then we pretty much cut our own throats before we even started, and without all the education and skills you'd only make it by sheer winning personality, which we also don't have. I admit it's hard, but don't panic and don't be hard on yourself over it. You gotta learn to love yourself even if nobody else does❤

  • RGN007
    RGN007 Community member Posts: 8 Connected

    I too was a nurse, and I know I am "on the spectrum" and my autistic son laughs at my ADHD traits though I wouldn't bother seeking a diagnosis now I've reached 70, especially as I'm the carer and supporter of 3 adult children so I don't really have that cliche of "choice".

    But I am sorry for all you have gone through as a nurse, but I believe the problem is the toxic nature of people who choose a caring profession then turn out to be the least caring colleagues and managers. In my opinion, there is something amiss in how people are selected to have such jobs on the assumption that academic A* is a good way of identifying intelligence.

    OK, so I stated I assume I am autistic…lol…and I was reading SIgmund Freud at age 15, alongside Motorcycle Mechanics and a Lambretta workshop manual, but crack on a few years, failing GCSE, but succeeding at Master's level clinical modules, but the latter was mostly at my own expense and time because managers and colleagues saw me as "different", being described by some as aloof, another "you're approachable and friendly once we get to know you", and best of all, "odd but nice".

    I wondered, when I defaulted to nursing because my sisters were nurses, how so many in charge of care could be so horrible. This was experienced from age 16 as a nursing cadet, psychiatric training at age 19, and being a junior general nurse in my 20's. There is a book called "The Dark Side of Nursing" by Ingrid Teresa Pryde who wrote about her experiences of being bullied as a nurse, by nurses and other colleagues.

    Since I was searching for psychological research on my thoughts on academic qualifications does not seem to attract the best people for the job, and realising my middle child was clearly "different", even from 2 weeks old, I really buy into the views of Howard Gardner, an American psychologist intelligence theory of multiple intelligences where I suspect autism is just a new kind of normal and part of where people like us, with a different insight should be recognised and respected for not enjoying the Friday night party, but have enhanced abilities, maybe at the deficit of other abilities such as linguistic, logic/mathematical, spatial, body kinetic, musical, interpersonal, natural, and critical.

    In my opinion, many who get into medical school as highly intelligent, have been trained to pass exams, not necessarily really understand concepts, and can have a huge lack of intuition and emotional intelligence and so can be very dangerous in roles of caring and working with others.

  • Amaya_Ringo
    Amaya_Ringo Community member Posts: 90 Empowering

    I'm probably on that list as I relate to a lot of what you have said (and thank you for the "but do I really want to know YOU" reflection, because I've noticed some neurotypical generally assume everyone wants to be in their company, and that they have the right to dictate who is and isn't socially acceptable. While mostly being horrible people.

    What I understand less is why the nicer NT people just go along with it. Is it just too much effort to fight back?

    As I said before, I'm quite lucky in my workplace. But I have one NT colleague who is lovely but every time I talk to her I feel like her comments are a trick question, or that she's looking for some nuance that I haven't put there. I'll ask a question and she'll answer in such an unexpected way, I wonder what signals I'm inadvertently giving out.

    We do get along fine. It's just she's way NT and I'm way ND and sometimes we're speaking different languages.

    I also have a couple of ND colleagues. I never have this issue with them, but random conversations are a lot more common ;)

  • eeL
    eeL Community member Posts: 39 Contributor

    Yeah, I'm afraid NTs are obsessed with the whole 'social group' thing and challenging a pal's behaviour might upset the status quo so I find they're usually what I would see as pretty gutless and morally void😊

    I get the 'trick question' thing - I had one manager who'd see me stressed with my work load, come over and say, 'Shall I do this bit for you to help you out?' and if I agreed she'd tell all my colleagues that she'd had to do half my job for me AGAIN. It took ages before I caught her bitching and realised, I was so upset. She's been replaced with another who asks me how I'm getting on then if I mention any issues she tells all my colleagues (and my boss) that I've been whining and slagging them off. Sometimes I wonder who's got the disability lol🤣

  • eeL
    eeL Community member Posts: 39 Contributor

    This (I think) is one of the main ND/ NT differences! Our moral compasses and passionate stands differ - I find ND people are very honest and morally true to themselves, we'll happily get in a scrap to our own detriment if it means doing the right thing. We're used to being ourselves and standing alone. However, NTs live in a world where the social group is everything, and 'making a stand' might upset the status quo or get them targeted or cause them a disadvantage or a conflict or get them disliked or thrown out of the group so they'd avoid it. I once asked a colleague why he stood by when he could have saved someone by speaking up, and his reply (as if he thought I was insane for asking) was, 'Why would I get involved when I don't have to and end up getting bullied as well?'. And I was equally incredulous that he would say that. I've lost out loads of times by doing the right thing and I'm not sorry, but I see why others just look out for themselves. It takes guts to call out your peers, and the average person has none. It's why there's racism and sexism and any other 'ism' - didn't somebody say something like 'All evil needs to prevail is for good men to do nothing'?! It's easier to do nothing though, right?!

    I once did some early Police training - all the handbooks said you must ALWAYS challenge these things. And yet the Trainers sat by whilst it went on amongst the Trainees under their noses and they never confronted it in house, so I didn't see how they were ever going to manage it with the general public. If you can't challenge a colleague during a coffee break in a classroom I doubt you will on official duties during a conflict on the street…

    My colleagues fall into three categories:

    1/ Nice to my face but not behind my back and put onto me their version of an autistic person based on whatever they've read or been told, which is nearly always misconceptions, misjudgements and prejudgements. They try to be 'pink and fluffy' in a very stilted and awkward way then complain about having to do so to anyone who'll listen.

    2/ People who just openly hate me, mock my autism and call me a freak.

    3/ People who avoid me and don't speak because they think I'm too complicated, can't be bothered and don't want to get called out for being diversity adverse because they don't know what to do and see problems where there aren't any - it's fear. Plus probably a bit of the 'not wanting to stand up to peers' thing.

    I'll be honest, I'm learning to ignore the ignorance - it seems the only way to get by. If you keep pulling them up it just pours petrol on the fire so you just have to take it all it seems. Unfair, but I've not found anywhere or anyone different. Of course there are more intelligent, compassionate, open-minded people who find the differences fascinating and like to learn. I just don't work with any😊I've come to the conclusion that, unfortunately, because autistic people often don't get on well at school and therefore often don't do loads of further education we often end up in low-end jobs where the people are -shall we say - more BASIC. I think more educated, intelligent and diversity aware / interested people might value me differently. But I base that on the very few better people I've met. Or maybe it's upbringing - I'm not over-educated but I was brought up to be aware of other people's differences and that my views aren't necessarily the only or right ones, it's basic consideration for others. The trouble is, NTs are like a huge GANG - the majority always ends up prevailing over the minority just by huge overpowerment. If ten people think one way and you think another then YOU must be wrong, that's their view. And they don't do 'different', everyone has to do the same so they can all feel comfortable and complacent and know-all. Because they couldn't deal with the constant uncertainties we have to face all day every day! And I'm afraid it's got worse as people seem to be getting more selfish and self-serving / self-protective and everything seems more 'dog eat dog'. If you're going to take TIME or CONSIDERATION or EXPLANATIONS or ASSISTANCE or if they have to fall out with a friend to support you or you're going to challenge them on stuff then you're just a thorn in a NTs side. They don't speak up because it's just too much trouble for them. They'd rather avoid you because they fear you than ask a question, get to know you and NOT be scared! I find that all round they are just completely gutless compared to a ND who was born having to be inquisitive about their world and courageous about it's challenges. They see ME as the poor person with the disability, but I think it's them who are unfortunate lol Putting everything in your NT life into a comfortable pigeonhole and ignoring the rest means you notice less, care less, learn less, try less, enjoy less, feel less, improve less, appreciate less…

    I get the 'trick question' thing. I used to have a manager who'd come along if I looked stressed with my work load and ask, 'Shall I do this bit for you to help you out?' and if I agreed she'd tell my colleagues that she'd had to do half my job for me AGAIN. It took my innocent little brain a while to cotton on to what she was doing and it quite upset me the day I overheard her bitching. I now have a new one who does the same - asks me how I'm doing and then tells everyone I've been whining about everything or slagging people off. Two of my managers quite often 'repeat' conversations with me that we've never had. Another ND / NT thing I find - we're more likely to report accurately - NTs read things in that aren't there and tell stories with brass knobs on. I tell you, it's like the Wild West out there!🤣