My Son has cerebral palsy and looking for support groups!

Dalep123 · August 22

HI all

My Son has cerebral palsy he is only 16 months old..however I want to support him as much as possible and would love to get help from others in a similar situation or help other families.

Can anyone point me in the right direction, or shall I create my own!!

Thanks

Dale

SaraC_Scope · August 23

Hi Dale

Lovely to hear from you. Scope have the CP Network where families can access support and advice. We also have the wonderful @Richard_Scope who is the CP specialist.

There is a great group on Facebook called Cerebral Palsy UK where families come together to share stories and get support. Where in the UK are you based? I'm wondering if there is a local group or organisation who you can contact.

Please continue to reach out on the online community. We're always happy to answer any questions. Getting the support early and being your son's advocate is wonderful to see.

Take care

Sara

Richard_Scope · August 23

Hi @Dalep123

Welcome to the community.

Alongside my colleague's suggestion, I would also point you in the direction of Action CP and Scope's Parents of Children with CP Facebook group.

Dalep123 · August 23

Hi @SaraC_Scope

https://forum.scope.org.uk/discussion/comment/902168#Comment_902168

Thank you for your suggestions I will look online and join what I can on Facebook. Etc

I live in Oxfordshire/Buckinghamshire so if you do know of any groups that would be great.

Thanks for your help

Dale

Dalep123 · August 23

https://forum.scope.org.uk/discussion/comment/902176#Comment_902176

Thanks Richard will give this a try!!

Richard_Scope · August 23

Hi @Dalep123

I have found these groups for you. Your son might be a little young for some of them:

Support groups for parents of disabled children | Oxfordshire County Council

The Chiltern Centre - The Chiltern Centre

Thomley is a magical charity in Buckinghamshire for disabled people

SaraC_Scope · August 23

Hi @Dalep123

I've had a look online for some community support. I've come across Small steps who provide specialist support for children with neurological disabilities.

Take your time with the research. The information is available for you to access whenever you can.

Sara

My Son has cerebral palsy and looking for support groups!

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