Autism/Depression

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  • WhatThe
    WhatThe Community member, Scope Member Posts: 2,362 Championing
    edited October 25

    Sweet Strawberry 🍓 it was very much like that for me too. Started looking at the characteristics associated with autism and realised that I matched so many that my daughter probably was onto something…and she was right. As you probably are. Too many very specific features of behaviour, appearance and preferences to be coincidences.

    We understand you and know what you're going through. Believing in it enough to accept it takes a while and we all hope you don't have to wait long for assessment and diagnosis.

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    Thank you @WhatThe , I always appreciate the support and kindness and time and feedback.

  • WhatThe
    WhatThe Community member, Scope Member Posts: 2,362 Championing

     usually it's others comments that make me that way.

    Nightcity, I've come to the conclusion that my autism is as much about other people as it is me.

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    Sending GIGANTIC BIG HUGS TO @Kali85 , @WhatThe and @Nightcity and anyone else on this forum page who's names I've not mentioned ( apologies my memory is rubbish) . Take care of yourselves and please be kind to yourselves too. Best wishes always

  • Kali85
    Kali85 Community member Posts: 91 Empowering

    thank you sooo much @Strawberry1 I’m just so down and fed up with everything 😢 it was nice to hear your kind words ❤️

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    So sorry to hear how things are for you @Kali85 , if you need to talk about anything I would be more than happy to listen. Your welcome.

  • Kali85
    Kali85 Community member Posts: 91 Empowering

    thank you @Strawberry1 i really appreciate that ❤️

  • Jimm_Scope
    Jimm_Scope Posts: 5,281 Online Community Team

    Hey @Kali85, sorry to hear things aren't going great. Hope thinks pick up for you very soon!

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    Your welcome @Kali85 , please take care

  • Kali85
    Kali85 Community member Posts: 91 Empowering

    thank you @Jimm_Scope ❤️

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    I have most probably asked this question before my apologies. Do any of you worry alot about things and do any of you feel panicked before appointments or phone calls ? Thank you in advance. Sorry to interrupt once again.

  • Kali85
    Kali85 Community member Posts: 91 Empowering

    yes anytime I have to go somewhere whether it’s an appointment or even just visiting family the night before I struggle to sleep as I lay in bed worrying about being late or acting awkward or something bad will happen and lots of other worries, then on the day I always get panicked before I go, it’s like my body is gushing with adrenaline

  • Amaya_Ringo
    Amaya_Ringo Community member Posts: 155 Empowering

    Going back to what Whatthe said, I agree. I've worked out 50% of my autism is on me to manage because it's my brain. The other 50% are the obstacles I have to use energy to get around because of all the misunderstandings.

    The biggest frustration for me with autism is that there are so many of us literally screaming to be understood properly, and still the people talking for us are the friends of family of or the "experts". And all the funding money seems to go into researching how to socially normalise an autistic person (probably at their expense), rather than the other potential medical concerns autistic people tend to have, or making places more inclusive just generally, eg work, or waiting rooms, or transport…

    Having been kicked out of the disabled area on a train to make way for a bike on one occasion, I think transport is a biggie. (Albeit when that guard saw my disabled railcard he was very uncomfortable…and I got an apology from the company).

    In sort, fed up with the world telling me how autism affects me rather than listening to me talk about autism. (And by me I mean all of us, because we're all different and all our experiences matter).

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    Thank you for your feedback @Kali85 , it took me ages to want to go to sleep last night . I don't think I've slept very well at all and I didn't want to get up and face the day and my stomach is I'm knots . I really appreciate your feedback ❤️. Thank you I'm glad its not just me .

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    Bless you @Amaya_Ringo . People really don't understand do they . We are all doing our best . Please take care of yourself

  • Nightcity
    Nightcity Community member Posts: 2,359 Championing
    https://forum.scope.org.uk/discussion/comment/932658#Comment_932658

    yes so much so I'll get rid of them where possible

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    Bless you @Nightcity .

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,209 Championing

    Feeling a bit emotional sorry everyone 😔 😢

  • Nightcity
    Nightcity Community member Posts: 2,359 Championing
    https://forum.scope.org.uk/discussion/comment/932669#Comment_932669

    💜💛

  • Amaya_Ringo
    Amaya_Ringo Community member Posts: 155 Empowering

    We all have days like that!
    I worry about lots of things, and tend to think of worst case scenarios even when I know they're ridiculous.

    Sometimes we just need a moment to take care of ourselves :)

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