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⭐️Summer Holiday Support - An Introduction for Parents & Carers of Disabled Children ⭐️
We’re at least a week into the summer holidays now, perhaps even longer for some of you! How is it going? The summer holidays can be a time of fun and freedom but it can also bring some challenges. The structure of the school day disappears, routines can get disrupted, support services may be less available and the days…
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Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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Severe CP prognosis after HIE
Hello, I am writing from a neonatal reanimation ward in France, baby in arms, in hope of finding some clarity. I suffered a uterine rupture and gave birth by emergency c-section (11min from rupture to birth) on the 14th of july to a beautiful baby boy, without a heartbeat. The doctors performed cardiac massage on him for…
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re-enablement bad visit - advice
Hi I wonder if anyone can give me advice, I'm on my third week of re-enablement after requesting a care needs assesment due to various disabilities and health issues including but not limited to CFS and ADHD. The re-enablement is one visit per day geared around food/meal prep at around 5.30pm. Prior to this I didn't have…
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💫🤩What Has Your Child Taught You? - Disability Pride Month🤩💫
Part One - Disability Pride Month For Parents & Carers of Disabled Children As we’re in Disability Pride Month, I thought it would be a good time to shine a light on the children of the wonderful parents and carers here in the community! As parents and carers of disabled children you all do so much such as advocating,…
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WHAT IS ABUSE
Hi all. Not sure if its right section.. What exactly is gaslighting ? Is it classed as abuse? Thank you
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lady with son who has autism needs help
hi all im posting here my story is today i met lovely lady jodie is her name.I met her whilst in a supermarket in bradford leeds lovely lady she was having a terrible day today i stopped to ask her if she was ok, And she told me this week she's only had 2 hours sleep with her son he is 12 yrs old and has autism,Becasue its…
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need help for my Visual impairment adult son
Hello I have a son age31 still living at home with visual impairment with possibility of autism/ADHD, I'm really looking for help for his mental wellbeing for him to begin living independently as I now have have my own health issues and he's getting to much for me, as i find him very challenging when he becomes angry and…
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Your not alone
Hello all It’s been a week since my daughter had a severe mental health crisis, and I’m still trying to process everything. She has SEN and has been struggling with extreme school-related anxiety for some time. I’ve been raising concerns for months—logging behaviours, attending meetings, sending emails, doing everything…
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Help with finding accessible hobbies for teen
Hi ,I'm just wondering if anyone has any good links or advice on where or how to start helping our cp/asc teen get involved in a hobbie , they have been in autistic burnout for almost a year and not at school due to this so lost any peer support or any feelings of worth , they currently have showed an interest in formula 1…
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first time mummy to my Isabella who was born with spinabifida mylomeningocele and hydrocephalus!
I am a first time mummy to my Isabella who is currently 3, she was born with spinabifida mylomeningocele and Hydrocephalus! I am the only one of my friend group with a child who has special needs, so seeking out for some mummy friends like me!
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Carer Support from LA
My LA does not offer any support to Carers at all ! My wife and carer is just about ready to give up - she's stressed beyond belief, (worried about her own parents who live 150 miles away) having cared for me for 23 years without a single days break and has her own health issues (Arthritis) to contend with (Menapause as…
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Hi, my name is TJH_Fields69! Daughter transitioning to adult services
Hello there. I'm not sure how much I will use this resource but thought I should sign up, I am naturally quite private but there comes a time when everyone needs to vent. My daughter, currently transitioning to adult services, has been under S-CAMHS for a number of years. She was prescribed fluoxetine aged 14 and that…
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Hi, my name is fizz1! It can be quite a lonely place as a carer.
Hi everyone, I'm a carer for my son who is severely disabled, I also work part time as a teaching assistant.
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😄✨Disability Pride Month For Parents & Carers of Disabled Children ✨😄
Part Two - What Has Your Child Taught You? Disability Pride Month is a time to celebrate disabled people, identities, and communities. For parents of disabled children, it can also be a time to reflect on how far you’ve come, what you’ve learned and what disability pride means to you and your family! For many parents, it…
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Not sure this is the right category! ASD daughter not wanting to see her dad anymore
Hi everyone I'm looking for some advice as I've run out of ideas! My daughter is 11. Her dad and I have not been together since she was around 18 months-2 years old. She used to go to his every weekend. She is super attached to me (which I understand as I'm her constant and safe space which makes sense as there's…
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Experiences with a personal assistant?
Hi everyone! I've been working with a development worker for some time and did a strengths and needs assessment a few months ago and we have kept talking about potentially getting a personal assistant, but I'm really unsure on it and I was looking for advice. My view is a little bit someone or muitple people of different…
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12 year old son who is suffering with school anxiety
I have 12 year old son who is suffering with school anxiety.We haven’t been able to get him to school for 10 weeks now.as the summer holidays are approaching it’s a worry for us that if he doesn’t go in then it could be harder for him when he starts his 2nd year in September.We are in constant contact with school who are…
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HERTFORDSHIRE PARENTS/CARERS
Cathy Reay, author of the children's book 'How to be Disabled and Proud (or at least kinda sorta okay with it...)' will be giving a talk at WGC Library later this month. This evening event is aimed at parents and carers to help support and advocate for their children. Thursday 26th June 7.00pm Welwyn Garden City Central…
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Step daughter advice needed
So I have got to a point that step daughter and I don't speak or have contact any longer, I have always tried made lots of effort and my partner agrees it a problem on her side as she doesn't want to play "" happy families "" her words not mine she is 25 and mainly lives her own life with her partner job and leaves us…
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Hi, my name is munma2three! Where can I get advice on behaviour issues for my two boys?
Hi. I have 1q21.1 microduplication. I know that two or my boys both have it. Waiting on ADHD testing for the 3 of us. And an autism test on the oldest son. I have been having so many behaviour issues with both boys. And tbh I have no idea where to look and I do not understand it all. Any help aor info would be greatly…
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Struggling to help son with asking for a job
hi I’m new my son has just left school he is socially awkward has limited facial expression and quite rigid in thoughts .we have always known Leon has ASD but he refused an assessment and because he’s high functioning and been ok at school and with his group of friends we have let him make that choice .however now he’s…
