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Growing up with cerebral palsy, then, now and what comes next. Podcast
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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Wife/Carer - cancer ?
My wife/carer has been given an appointment at hospital next Thursday for the results of a cancer blood test - (she's been bleeding from her cervix recently) ! It probably is not menopause related - that was over a few years ago…….. I just hope that it is caused by something else and not cancer.
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Help for my family
hi hope someone can help me and my family. i am nearly 19 with cp learning difficulties my mum is 47 also ill she has ccopd arthrtis through her body diabbities and mental health then there is my dad he is 44 and the family carer. also i have aq 16 year old brother who has problems but we dont know what they are we just…
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Taking away carers allowance?
Help desperately needed! My carer isn’t caring at all and never has or will, I think he thinks that carers allowance is for caring about someone! As a result our home is in a terrible condition, its filthy, cluttered and almost everything needs replacing (carpets, furniture etc) he’s not even doing the basics, washing…
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Living with brain injury
hello. I’m looking for answers, as to why my life has basically been so difficult. I underwent extensive brain surgery with complications long ago. I’d really like to give my children , who weren’t born when I had the surgery , reasons as to why, I didn’t do what thier friends did as a family. Maybe My brain injury played…
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Snazzi buggy accessories
My son is a year old and is getting a snazzi buggy soon to help with his posture and I was wondering if someone could point me in the right direction for a sunhood and rain cover as it doesn't come with one I've been told I can get a universal cover but it's no good with the hood I was quoted over £200 from the supplier
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ASD Therapy/schools/help
hi my son has ASD, non verbal aged 5. Was due to start school sept 25 but due to no EHCP he stayed in nursery till he turned 5 in December. He now has his EHCP waiting to go to panel for a place at a special school. In the meantime they want me to send him to mainstream (this isn’t suitable and I am fighting this) but in…
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Support group nearby
Hello, My son has cerebral palsy and is currently 3 years old. We live in Birmingham/Solihull area and I was just wondering if anyone knows of any support groups around here that we could go to? We're trying to encourage him to take some steps with his walker and I think if he saw other children using walkers he might be…
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Disability Sports Wales Event. New opportunities for children.
I attended the Disability Sports Wales Insport event at Cwmbran Stadium in Torfaen, Wales, on Friday, 20 February 2026. It was a great opportunity to try several sports in one space. There was boccia, golf, table tennis and boxing. But the sports attracting the most interest were wheelchair rugby and curling. Attendees…
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Psychiatrist report
Hi after my psych report I asked the gp if he could update my health notes to complex ptsd and not depression or anxiety so I am clear where I am in my journey . To be fair the depression and anxiety part of the report was fluffy but said I didn't display signs and was upbeat and positive . My gp has messaged me to say he…
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Social Services - advice wanted
I would like to ask for advice on behalf of a friend. My friend is a vulnerable woman with learning difficulties, but is able to live independently. She has been divorced from her abusive ex husband for many years. She has 2 adult daughters, also with learning difficulties, who were being cared for by her ex husband. Until…
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Carers allowance
Morning all I would like to ask a question that I have never seen discussed or asked. I became a carer for my mam 10 years ago, I applied to the dwp everything went OK and they started paying myself carers allowance. A year ago I had to stop caring as her dementia was just too much,and sadly not long after she died,…
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i really need some help
where to even begin i know this is going to come across like i am only focussed on money and sounds terrible but it im struggling a lot and do not have any support sorry if this does not make sense i am panicking and crying i do not know how i will cope today my statement has come and i have been benefit capped and they…
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Carers Hourly Rates
Checking rates for private carers on the Curam homecare lists the cheapest carers i can find in my area are £20 per hour but most are around £25-£30 per hour. With the national minimum wage currently set at £12.21p are some carers pricing themselves out of employment because at £25ph that's double the minimum wage.
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Tips for Hiring a Personal Assistant
When the
times comes to hire a Personal Assistant (PA) it can seem like a very big task,
especially if this is something you have not done before. Essentially the role
of a PA in this instance is support a disabled person to live their life as
independently and fully as possible. What have
people said about having a PA?…
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Feeling guilty as a carer when you’re exhausted – how do you reset?
I care for my parents alongside a full-time job and, most days, I just about manage. But every now and then I hit a wall and feel completely worn out. On those days I’m not as patient as I’d like to be with my dad, and afterwards I feel really guilty. I know I’m not the only one juggling work, caring and trying to have…
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Christmas Bonus
I was paid my £10 for PIP - over 2 weeks ago My wife/carer has still not been paid hers as a carer yet !!
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Universal credit : Carers element
If you receive high rate care component of PIP for yourself so you receive limited capability for work also and you look after a disabled child who gets PIP, high rate care and mobility, you receive Carers allowance for them are you entitled to the care element for them also, or no because you get the limited capability…
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pedro boot ,splint ,gaters
my daugther has not had her boot on for 4 mounth and now has to where splint and now gatters to has her tendens are very titte and finding it hard to walk ,I do not know that much about cerebral palsy ,she is 31 years old and 31 kg 4 feet tall ,born with small brain microcpaly ,I need some help with this she is wheel chair…
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Appointees
I am an appointee for my child, I have a bank account for them but in my name, as appointee. What happens if I die, can I request that another family member has access to this account/becoming their appointee? I have looked into Deputyship but it is so expensive I’m not in a position to apply for this at present.
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Carers Assesment
Hello Hoping For some advice . I’ve cared for my husband pretty much solely since he had his life changing RTA accident 19 months ago. He got lost in the system as I only found out two months ago and thought it was normal the way I had it deal with everything . Anyhow, adult social care team and the occupational therapy…
