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Barriers to accessing education-Free wellbeing session for parents of disabled children
FREE for Families in Wales Barriers to Accessing Education Is your child struggling to attend, or maintain attendance in school? Join our drop-in session for parents; a relaxed and supportive space where you can seek advice, speak to others, or simply listen. What’s It About? • Guidance and Advice: Get practical tips on…
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World Autism Acceptance Month - Pathological Demand Avoidance (PDA)
Part One - World Autism Acceptance Month – Introduction for Parents and Carers Part Two - World Autism Acceptance Month - Practical Strategies for Parents and Carers Part Three - World Autism Awareness Month - Autism and Girls Pathological Demand Avoidance(PDA or sometimes known as Persistent Drive for Autonomy) is a…
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World Autism Acceptance Month - Autism and Girls
Part One - World Autism Acceptance Month – Introduction for Parents and Carers Part Two - World Autism Acceptance Month - Practical Strategies for Parents and Carers Part Four - World Autism Acceptance Month - Pathological Demand Avoidance (PDA) For a long time, autism was seen as something that mostly affected boys and…
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World Autism Acceptance Month - Practical Strategies for Parents and Carers
Part One - World Autism Acceptance Month – Introduction for Parents and Carers Part Three - World Autism Acceptance Month - Autism and Girls Every autistic child is unique and what works for one may not work for another. But, I hope these practical strategies may be helpful for your child and offer some guidance along the…
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World Autism Acceptance Month – Introduction for Parents and Carers
Part Two - World Autism Acceptance Month - Practical Strategies for Parents and Carers Part Three - World Autism Awareness Month - Autism and Girls Part Four - World Autism Acceptance Month - Pathological Demand Avoidance (PDA) As we are right in the middle of World Autism Acceptance month, I thought we could make it this…
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Sibling Day🤗
Happy Sibling Day!! Children often understand more than we think and siblings of disabled children are no different! They may experience a wide range of feelings—pride, love, frustration and sometimes confusion. Siblings of disabled children have a unique perspective on family life and their role is often overlooked in…
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Disability Price Tag - Changing from DLA to PIP at 16 - For Parents and Carers
As we're focusing on the disability price tag of raising a disabled child this week, this post talks about the transition from Disability Living Allowance (DLA) to Personal Independence Payment (PIP). I know this change can be quite overwhelming for many parents so I've created this post to hopefully make the process a…
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What Do Parents/Carers/Families Want To See From The Community?
I am interested in what parents/carers of disabled children and their families want to see from the family side of the online community. This will let me know what content to create and how I can be most helpful for you and your family! Please vote in the poll or comment below what you would like to see on here from me or…
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Suicidal teenager
I have just discovered that my son has been thinking of ending his life quite often.I took him to see the gp where he convinced them he is fine but I know he is not from his behavior.i phoned cmhs yesterday and they said they would call to speak with my son yesterday at 4.30pm.I told my son about this call but they never…
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I am so stressed with being a SEN Parent
I am currently a single parent to 2 sen children aged 12 and 4. My partner left just before Christmas. My life is incredibly stressful and doing it alone now is even harder. Both my children are on the ASD AND ADHD pathway. My eldest has attempted suicide, has school anxiety and I have to collect her everyday...my youngest…
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Hi, I'm new here, soon to be single mum with a disability, I could do with some advice.
Hi all, I'm new here, I'm a soon to be single mum with a disability and I'm hoping to get some advice and help as I'm feeling very overwhelmed right now
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daughter refusing to attend school - suspect PDA?
Hi everyone, Charlotte here. My daughter is undiagnosed but going through the process. She’s refusing to attend school and has not been for 8 weeks now. Anyone here with children who they suspect has PDA?
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Hi, my name is welbeck! My ASD teen has noise sensitivity, any advice?
Hi,my ASD teen and noise sensitivity
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Hi, my name is Francisx! I am a middle age man with severe Osteoarthritis...
I am a middle age man with severe Osteoarthritis. I am also a carer for my mother with Alzheimer, epilepsy and now lung cáncer. I am increasingly struggling in my daily life, physically and mentally with my condition. Also this is affecting my ability to care for my mum, who needs 24/7 care. I am worried that I won't be…
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Struggling
Hello all, I'm not surebif anyone can offer any advice or information about my current struggles or.not, but at this point, I don't know what else to do or where to turn. I was diagnosed with Fibromyalgia in 2018 after over 20 years of dealing with pain and other symptoms which all declined year after year, I also have…
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Adult children still living at home.
I'm sure this is a common problem, especially with the current economic climate and more young people not being able to afford to live alone. We have three of our 'kids' still at home. The youngest is still at college and planning to go to university in a couple of years. The older two are 25 and 29. All three are…
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Suspect our son has ADHD, any advice?
Both me and my husband are in our 40s and have ADHD, our son is 5 and we also think he may have it. The lack of sleep we both recieve is just awful,and is severly effecting all our mental health. We have asked for support from drs and other professionals but nothing seems to help him, we are at a total loss and need some…
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Struggling as a parent with a disability
is there any sipping out there?
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Hi, my name is VaniC!
Hello All.. I am looking for a support group for parents with children with Cerebral Palsy (CP). My son is 14 years old on the severe spectrum. I have never reached out to anyone or joined a support group. I live in Northwood, London.
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need help for my Visual impairment adult son
Hello I have a son age31 still living at home with visual impairment with possibility of autism/ADHD, I'm really looking for help for his mental wellbeing for him to begin living independently as I now have have my own health issues and he's getting to much for me, as i find him very challenging when he becomes angry and…
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Hi, my name is Kermit_12!
Hi my child is autistic and has PTSD symptoms on going for almost 5 years she has been out of education and has now got an EHCP the content in the EHCP doesn't reflect her needs as written in reports the local authority are wanting a teacher to come to our home this would tramitise her as we still can't mention school…
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Hi, my name is caz2025! Looking for groups for my disabled daughter, any advice?
i am a mum of a disabled daughter and would love to find groups they could go to. They are in a wheelchair
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Whats the wait for a decision on a child disability claim?
hi wondering if anyone could help me I made a child disability claim in October but was late handing the second part in so when I send that in the called and done the first part again that was in January does anyone know how rough the wait is for decision and do they take support and social work letters into account mines…
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Dance Study for Children and Young People with Cerebral Palsy
If any parents and carers of children with CP live in East London or surrounding areas, this might be an interesting study to be a part of. Dance study for children and young people with cerebral palsy
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Tax free/funded hours childcare
am i entitled to funded hours for Nursey if I am being paid carers allowance
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Hi, my name is Shamu! My mother recently received her first Direct Payment for her PA...
HI my mother recently received her first Direct Payment for her PA, the original SW said it would be back dated to the 14th October that's when the OT assessed her and we signed the contract on the 14th November but the new key worker has said DP cannot be back dated and they have only paid from the 02.01.2025 - does…
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Hi, my name is Duncan33! I am Dad and sole carer for my 40 yo son who has special needs and learn...
I am Dad and sole carer for my 40 yo son who has special needs and learning difficulties, I am 79 and not in good health,, Fibromyalgia, CFS , osteoarthritis kidney failure etc. we are approaching the time for my son to go into Shared Living. He is terrified. He suffers from depression, getting very angry and out of…
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Carer now has own mental health issues. What can we do?
This discussion was created from comments split from: How is your day going?.
