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Growing up with cerebral palsy, then, now and what comes next. Podcast
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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Wife/Carer - cancer ?
My wife/carer has been given an appointment at hospital next Thursday for the results of a cancer blood test - (she's been bleeding from her cervix recently) ! It probably is not menopause related - that was over a few years ago…….. I just hope that it is caused by something else and not cancer.
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Inefficient carers
Hello all, I’ve been having visits from carers from adult social care providers for a month now. There are several different ladies who visit. One visit is for some sort of domestic services and twice my bathroom has been cleaned, however I closed the bathroom door after turning off the radiator in there and was horrified…
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Hi, my name is Jimbones13! my child is stuggling at school.
Hi, i am guardian to my 6 year old granddaughter, she is currently on the waiting list to be diagnosed for adhd. She has only just been accepted on the list for diagnosis and could take a year/18 months to happen. The reason i am here is to try and get some advice or help regarding my childs school. She struggles with…
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My son has panayiotopoulos syndrome and autism
Hi my son has panayiotopoulos syndrome and autism just looking for any advice or anyone whos child has this condition, as we're feeling quite isolated at the moment
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Carers Allowance - temp loss
Does my wife lose her carers allowance - if she is unable to care for me for 6 weeks due to undergoing an operation, in a weeks and half, to remove her womb due to cancer ? Bear in mind that she has cared for me for 22 years without a single days break and has been claiming CA for 14 of those years. She is planning on…
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Hi, my name is Juana! Son using my address but doesn't live here
my son used my address for his company but he doesn’t live here and getting benefits for disability is this a problem for me
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Our Son is nine and Autistic. My husband is ...
Our Son is nine and Autistic. My husband is very bothered by what others think when our Son is lashing out or behaving in ways that at best seem unusual and at worse could be very dangerous because of problems communicating or Sensory processing difficulties. Any advice?
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SEND Parents Help - Free AI Tool (England only)
A parent of a child with autism has decided to create a free AI tool to help parents in England navigate things like DLA, EHCPs, Blue Badges and school support. "I built it after my daughter was diagnosed with autism. I tried using ChatGPT but found it confidently wrong on things like DLA criteria and EHCP processes - so I…
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Lack of staff in the care sector
Above. I just had to cancel an important meeting in Town at 11 AM today due to lack of staff/transport available to go with me. I wouldn't mind but the guy who came to the last meeting the week before last knew I'd got the meeting this morning because he was there when I booked the bloody thing. Sorry for the rant but I am…
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School is recommending for residential placement. Local authority panel refused
My son is having a school breakdown. School is recommending for residential placement. Local authority panel refused
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Mums teeth dropping out
My mum is 87 and has Alzheimers. She lives in a care home and her teeth are in a terrible state and falling out one by one. I suspect neglect but the home manager says she resists having her teeth cleaned by them so much that it becomes impossible to do it. When action would you take? I know dental care is not free unless…
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HELP ME | Cerebral palsy
Greetings ! I have cerebral palsy and I am very tired of living. I have depression and apathy..... Are there any moms who also have children with cerebral palsy. I wonder if you could give me moral support. It's very difficult when you don't have someone to turn to with questions.
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Anyone else?
Does any one else have anxiety about what others think of you as a parent because of your child’s behaviour related to their special needs?
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Hello I have a 9 year old grandson he has autism I...
Hello I have a 9 year old grandson he has autism I don't know how to help him he doesn't like leaving the flat all he wants to do is stay in his pjs on his phone I have tried to talk to him but he won't talk and tell us what's wrong is there any advice you can give me please my daughter is a single parent
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Looking for other mums for support
I have a son called Finlay who is two and has global developmental delay. I am thinking that he may be autistic but we wouldn’t know until he’s older about that. He stims a lot, he cannot speak or walk yet but bum shuffles everywhere to get himself about. He’s very funny and babbles all the time, he says mama and dada and…
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Support for chldren under 5
Good afternoon all, I am new here, I'm a single mum with my autistic son who is nearly 4 yrs old, he's become increasingly difficult outdoors, i tried to let him run off some steam at a local park, early in the morning so the park was fairly quiet, and my son would not leave, kicked and screamed and was hurting himself and…
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Welfare deputyship
hi I am thinking of applying for welfare deputyship for my 15 year old non verbal child who has learning disabilities. So I can make decisions for him in regards to care etc once he’s an adult. But I have heard the court don’t issue these orders unless in severe circumstances. Anyone had any experiences. Any help would be…
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How to get support for adult daughter after my death
hi my daughter is 32 and lives with me (mum) she is autistic , Asperger’s as well as moderate learning difficulties. A social work assistant said years ago my daughter presents better than she functions. so while she appears capable, life for her is really a struggle. She makes poor diet choices , poor hygiene choices ,…
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Care act
Have any of you had any care - paid for by your local authority ? Was it simple to obtain or did you have to fight for it ? The care act says : 8.14 The local authority must not charge for certain types of care and support which must be arranged free. These are: • intermediate care, including reablement, which must be…
