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Parent Survey - Talking and Thinking About Disability in Education
This sounds like a great opportunity for parents and carers to get involved in😀
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Eating Disorder Awareness Week- Types and Signs of Eating Disorders in Disabled Children
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Three As part of this weeks focus being Eating Disorder Awareness week, this post will look at some of the types of eating disorders, their traits and how to recognize signs of eating disorders in disabled children. Types of Eating Disorders…
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Eating Disorder Awareness Week - What To Do If I Am Concerned About My Childs Eating Behaviour?
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Two As we wrap up this weeks focus, this post is about the steps you can take if you feel like your child has an eating disorder or if you are concerned by your childs eating behaviours. This post also includes where you can find for additional…
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Disability Price Tag - Changing from DLA to PIP at 16 - For Parents and Carers
As we're focusing on the disability price tag of raising a disabled child this week, this post talks about the transition from Disability Living Allowance (DLA) to Personal Independence Payment (PIP). I know this change can be quite overwhelming for many parents so I've created this post to hopefully make the process a…
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Disability Price Tag - Tips and Guidance for Applying for DLA - Parents and Carers
This weeks focus is the disability price tag of raising a disabled child so I am going to talk about the different benefits you might be able to claim as a parent. To help you get started, I've already put together DLA Information for Parents and Carers and todays post is a follow-up to that. I hope it makes the DLA…
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Eating Disorder Awareness Week - Introduction For Parents and Carers
Eating Disorder Awareness Week - Part Two Eating Disorder Awareness Week - Part Three This week is Eating Disorders Awareness Week and often the intersection of disability and disordered eating can often go unnoticed but creates unique challenges. This is why we are making it this weeks focus. For many parents of disabled…
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Exciting Launch Event with Cerebra and Pedal Power
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
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Disability Price Tag - DLA Information for Parents and Carers
This information only applies to England and Wales. Disability Living Allowance (DLA) helps with the extra costs of raising a disabled child. You can claim DLA for each disabled child under 16 who.. • has difficulty with mobility • needs more care than a non-disabled child of the same age Your child does not need a formal…
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Cerebral Palsy-Social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Grants and funding for families
Life costs more if you’re disabled. On average disabled households need an extra £1,067 a month to have the same standard of living as non-disabled households. These can mean having to decide where to allocate your money. Your family might miss out on the little extras, or it can take a long time to save for a piece of…
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I'm new here and really need some advice
Hi, I have three children my eldest is 5 and has epilepsy, autism and a genetic condition. I'm not sure if anyone on here has had a disabled facilities grant. We had one a couple of years ago and my son's OT wants him to now have a wetroom so another dfg. The council have apparently put a charge on the house for 10 years…
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Social services the relationship has totally broken down.
Owing to historic issues that started when I was a child Social services got it badly wrong, I had one amazing social worker sadly she burned herself out and had to quit, things got worse in the end one social worker actually screamed at my mother who was getting over breast cancer to "get the hell out of the room", My…
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suffering from sensory processing disorder and been bullied
I am 20 years old, I am Jack I have sensory processing disorder and some special needs recently take us tennis as a hobby, been teased by some lads around my age about the underwear I wear pants/slips not boxers never worn boxers I need to be wearing very tight and stay up type underwear like slips/pants due to my…
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Hi, my name is Sil, a mum of two, I’m autistic with ADHD and a children's yoga teacher
Hi everyone, I’m Sil, a mum of two, and I’m autistic with ADHD. My personal experiences and challenges have shaped my journey into becoming a yoga teacher and personal trainer, both of which have been key to maintaining my physical, emotional, and mental well-being. I’m now looking to start yoga and speech therapy…
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I need somewhere I can talk about carers
Im not feeling this the right place to discuss my topic. My issue is that I feel that my carers are acting in a way that is demeaning & belittling me on a daily basis. Ive just started with this new carer and she is going to destroy my mental health. After a few months of being treated like this Im going to feel its normal…
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Hi, my name is Chamberlin_scope! I joined this group because I want to meet people like me...
I joined this group because I want to meet people like me who are in similar situations. I am in my early 20s, and my mother had her second stroke in 2013 and has been disabled since. I was 9 when I found her. She is the strongest woman I know. In recent years, things have become really tough for her, both emotionally and…
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Experiences with a personal assistant?
Hi everyone! I've been working with a development worker for some time and did a strengths and needs assessment a few months ago and we have kept talking about potentially getting a personal assistant, but I'm really unsure on it and I was looking for advice. My view is a little bit someone or muitple people of different…
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International Epilepsy Day - Support and Signposting for Parents and Carers
As we wrap up our focus on epilepsy this week, I want to provide resources and support for parents of children with epilepsy. This post offers signposting to organizations that can offer further support, information and advice. Epilepsy Action Epilepsy Action provides information, advice and support to people with epilepsy…
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Children's Wellbeing and Schools Bill
I'd like to bring your attention to an issue that I have been working on since the 17th of December last year when the government decided to introduce a new bill that could potentially strip parents of their parental rights in certain situations. We approached Steve Broach Specialist Barrister KC when the changes to rights…
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Hi, my name is NannieAnnx5! I'm hoping I can get some help/ advice to pass on.
I'm hoping I can get some help/ advice to pass on. I have a grandchild who has a disabled mum and has periods of chronic pain, she tries at all costs for him to be aware which has a huge impact on her energy levels. Her little boy is often aware and at such times he becomes emotional, very demanding of her no one else will…
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International Epilepsy Day - Reflecting on Childhood Experiences with Sara
As part of International Epilepsy Day, this is a conversation with @SaraC_Scope who was diagnosed with epilepsy as a very young child. This interview talks about her childhood experiences, explores the impact of the condition and highlights the positive and supportive role her parents played. We hope this is a helpful read…
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International Epilepsy Day - What Questions Do You Have? (For Parents & Carers)
It is International Epilepsy Day today and this is a worldwide event dedicated to raising awareness and understanding about epilepsy. It is a little bit different from the well known Purple day as International Epilepsy Day is a collaboration from the International League Against Epilepsy and the International Bureau for…
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Three year old boy with cerebral palsy running 500m to raise money for charity
Jacob Fallows, a three year old from Devon is running 500m around his school playground in 30 days. Jacob has spastic diaplegia cerebral palsy which affects his legs, but hearing his parents were running to raise money for his local school, he wanted to get involved. Read the full story here Devon News
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Depression
How do I deal with a depressed Wife/Carer ? She's got a history of depression but I've never seen her so bad before… Any advice please
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Children's Mental Health Week
It's Children's Mental Health Week this week (3rd - 9th February). What a great way to raise awareness of Children's Mental Health and Wellbeing. Each year the charity Place2Be run and organise this event to raise funds, and encourage people to get involved in spreading awareness of mental health in children and young…
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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Accessibility Project
I'm currently working on a project for college, looking at accessibility in clothing for disabled individuals and their carers. I'm going to post my proposal and a link to an online survey. It would mean a lot if some of you were able to fill it out to aid my research. I plan on working on this project further than college…
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Carers assessment, and applying for pip for myself
Hi, I am a carer for my disabled hubbie, who amongst a host of things is on dialysis, which is the major problem of the moment. In June I fell and broke my right shoulder, and my daughter had to come every day and help out for three weeks till I could get around without too much pain and just use my left arm. I found out…
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I would like the LA to consider a move to specialist school, how do I go about this?
I have a annual review for my sons EhCP and he is currently going to a mainstream high school in year 7, but is not coping and I have taken him out due to suicidal thoughts and started to self harm, my concern is now I have taken him out of school, he does not want to go back and I would like the LA to consider a move to…
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A heartwarming story from Asda's Stockton store
Man with cerebral palsy steps in to help young boy with cerebral palsy. When an eight-year-old boy with cerebral palsy wasn’t sure if he had enough money to buy a big cuddly toy from our Stockton store, checkouts colleague Paul stepped in to help pay for it. Paul, who has cerebral palsy himself, said: "I told the boy it…
