-
Worrying health concerns
I’ve not posted this for the sympathy but more for the support. I’ve kept this quiet from family and friends because I don’t want to worry them. I haven’t been feeling very well for nearly 12 months and I have my ups and downs. I don’t want to list all my symptoms or go into detail it’s too personal. I’ve luckily had the…
-
Bell's Palsy / Anxiety. Should I change my role to a non-facing one?
Hi, I was a long time user of Seroxat (paxil) 12 years+ which I took to curb debilitating panic attacks owing to social anxiety. I weaned myself off them 3 years ago. Last year I was hit by Bells Palsy which has affected my confidence as I can no longer smile as one side of face is lopsided. I work as an engineer for a…
-
Hi, my name is Eunomi ! I have FND, and believe research is key
Only had symptoms for six months just diagnosed as FND now partially sighted and mobility problems. as a retired nursing sister a little knowledge doesn’t do you favours. When it is a condition that even Drs don’t understand. So research is key to keep on top of the latest centres of excellence. And help fellow sufferers.
-
Hi, I'm Leebrom! Looking to find information on Myasthenia gravis (MG) + help others.
Hello every my name is Lee from Manchester I was diagnosed with mg in 2014 just thought I would come on here to see if I could find information on the illness and also to see if I could help an1 out who suffers with mg
-
Weird symptoms for the past 3 days
Hi, I quit smoking weed on Thursday last week after smoking heavily for 2 years and have been having strange symptoms the past few days. I would smoke as soon as I woke up all day to the point I went sleep. I have crohn's disease, gilberts syndrome autism and schizophrenia too. I also have a perminent ileostomy. I keep…
-
Epilepsy
Epilepsy Action support Brighton and Hove coffee and chat All local branch and group face to face meetings and activities have been suspended. We realise that many people rely on their group meetings and activities for information and support. Some of our groups are offering information and support through local virtual…
-
Body feels heavy, numb, tense, tight, stiff, weak, rigid - headache - eye pain - brain fog - voices
Hello all, I'm a male and I'm 23 years old. Below is the detailed list of symptoms of my undiagnosed illness. If anyone has heard of any illness like this, please let me know! I hate living like this! This undiagnosed illness has caused me to drop all of my classes at college. It also stopped me from doing the things I…
-
Has anyone been through the menopause with lupus? Can you give me any pointers?
Having been diagnosed with lupus since 2015 it has been managed well with varying doses of steroid. I am 51yrs, the last year has been pretty dreadful, Covid caused me a great deal of stress and anxiety, on top of that my sister who lives abroad came close to death on 2 or 3 occasions due to bowel cancer complications, I…
-
Has anyone got experience of coming off Adhd medication?
Hello, im a woman in my 30s who has always been told ha suffered high level of anxiety since childhood that’s never resolved with therapy or medication. My gp has referred me on for an adhd assessment after I flagged a lot of boxes and he wanted me to be investigated. I’ve been told treatment would be medication but the…
-
Tourettes syndrome
Hi everyone, My name is Helen and I live in Pembrokeshire with my husband and 3 girls. My 16 year old is autistic and my 13 year old has tourettes syndrome, adhd and is selective mute. I am supporting a campaign to get medical care for our children with tourettes syndrome. Most of the UK has none. Wales has 1 specialist…
-
Microvascular ischemic disease and memory loss
Hi there its been a while since I have been online. I have been investigated for MS after lesions were found on my brain in January but thankfully the lumbar puncture and other tests were clear. The neuro has now diagnosed microvascular ischemic disease (small vessel ischemic disease) which I believe is common in elderly…
-
Hi, I'm denise787! I have chronic IBS + multiple food allergies, is anyone else like me?
Hello its nice to be a member of your community. I am a long term sufferer of ibs symptoms, and now in my 50s have multiple food allergies. Is anyone in the community like me
-
Actually, this one is real.
Not really.
-
9 months undiagnosed and feel so lost
Hi all, decided to start joining some forums for support as i feel so lost. It's been a long nine months with no end in sight. I am an otherwise healthy 28 year old, used to be very active and for the past nine months I have been suffering with a myriad of "non specific" symptoms. Prior to this I had never been to a…
-
Hi, my name is LoraKae! I've just been diagnosed with Myelomalacia. Anyone else?
Hello, I’ve just been diagnosed with Myelomalacia. I’ve had two ACDF surgeries. The most recent Dec 9, 2021. This started Aug 24,2020 with my legs giving out, my whole body going totally numb. I could hardly walk. I couldn’t control my limbs. Electric shock feeling from the base of my skull to my toes. The Dec 9th surgery…
-
Fibromyalgia advice
Hi, I had blood clots both lungs in December last year. I am currently on blood thinners to prevent another clot happening. Do you think this could have brought on Fibromyalgia as I have a lot of the symptoms. I was surprised to learn you can be tested to confirm this is what you have.. Thanks for your help
-
Hi, I'm LucidDruid! I'm struggling to manage symptoms of Neuralgic Amyotrophy.
Hello :) I am here seeking other peoples experiences and possible advice on living with Neuralgic Amyotrophy. I was diagnosed with NA in 2010 when I was 15 years old; I had my right deltoid which is the most effected side paralysed for a good month or so, I couldn't move it, even people at school at the time said it looked…
-
ADHD diagnosis..Do you work…how do you manage?
With a recent diagnosis of ADHD Inattentive type my adult daughter really wants a part time job. The medication prescribed doesn’t help and I’m worried what she will be able to do work wise in the future. Anyone out there who is going through/has been through this?
-
I have ME and long COVID. Anyone got tips on dealing with guilt of having an invisible illness?
Hi everyone ?? I’ve never really been a part of a community like this before. I was only recently (March this year) diagnosed with ME and I also suffer from long covid which is obviously pretty new as well haha. I guess it’d just be nice to be able to talk/rant to others who feel the same as me. It’s pretty rough as I work…
-
Does anyone here with MS suffer with sleep apnea?
Hi, anyone here with MS suffer from sleep apnea? I have read that MS can cause it and I am soon to be tested for it. Thanks
