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Fibromyalgia advice
Hi, I had blood clots both lungs in December last year. I am currently on blood thinners to prevent another clot happening. Do you think this could have brought on Fibromyalgia as I have a lot of the symptoms. I was surprised to learn you can be tested to confirm this is what you have.. Thanks for your help
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Hi, I'm LucidDruid! I'm struggling to manage symptoms of Neuralgic Amyotrophy.
Hello :) I am here seeking other peoples experiences and possible advice on living with Neuralgic Amyotrophy. I was diagnosed with NA in 2010 when I was 15 years old; I had my right deltoid which is the most effected side paralysed for a good month or so, I couldn't move it, even people at school at the time said it looked…
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ADHD diagnosis..Do you work…how do you manage?
With a recent diagnosis of ADHD Inattentive type my adult daughter really wants a part time job. The medication prescribed doesn’t help and I’m worried what she will be able to do work wise in the future. Anyone out there who is going through/has been through this?
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I have ME and long COVID. Anyone got tips on dealing with guilt of having an invisible illness?
Hi everyone ?? I’ve never really been a part of a community like this before. I was only recently (March this year) diagnosed with ME and I also suffer from long covid which is obviously pretty new as well haha. I guess it’d just be nice to be able to talk/rant to others who feel the same as me. It’s pretty rough as I work…
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Does anyone here with MS suffer with sleep apnea?
Hi, anyone here with MS suffer from sleep apnea? I have read that MS can cause it and I am soon to be tested for it. Thanks
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Stenosis
Hi I suffer from severe neural foraminal stenosis and I am in hell. I've tried every otc plus nsaids hydrocodone, gabapentin Flexeril and lidocaine patches. Nothing is working. My doctor tried to put me on lyrics but I don't care for all the side effects. My doctor sent me to a pain management doctor but he told me he…
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Please help, I cant stop shaking and vibrating on fingers and feet
M 25 YO male and obese 12 Days ago I had vibrating in my feet even when I was sitting or lying down they was constantly tingling on there own, That has gone but what has came now is when I put my feet on the floor its like ive out them in a vibrating floor and it goes all up my legs. but they dont tingle anymore when they…
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AWAITING NEUROLOGIST APPT
Hello QUESTIONS What condition is most likely to cause high blood pressure with occasional drops which result in falls? Also causes stoop posture and leaning to one side when walking? I am very weak and need help getting dressed showering and getting up from a seated position. I have difficulty using cutlery and have…
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Living with a rapidly worsening medical mystery and need help
It has been a long and mystifying journey and after six years of trying desperately to get to the bottom of my condition with no shortage of helplessness, finally it has lead me here. I want to first say that I am aware of how unusual the initial cause of this will sound. It was my birthday of 2015, I was just turning 16…
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Are there any private paediatric neurologists anyone can recommend?
My nephew has developmental regression and has seizure 6-7 times a day, he is currently on a NG tube as it is unsafe for him to swallow. He has not yet been given a diagnosis however they do suspect that he may have Leigh disease and his seizures now have become worse than before to the point that he is now crying and you…
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Multiple System Atrophy
My husband was diagnosed in 2016 with MSA and has been living with this disease since. I wonder if any other members have any experience of dealing with this condition. GP's do not seem to know much about the disease so help is very difficult. Our local hospice and Wellbeing centre has been more helpful together the MSA…
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My daughter has a NG feeding tube and is undergoing tests for a stomach complaint
Hi, I have a 18 year old daughter, she has suffered awful with her stomach since 2017, she has had many hospital admissions, gp appointment’s, loads of bloods, ct, mri, ultrasound, cameras, pill cam ect, back in January Leah was admitted into hospital for 15 days where she had her 1st NG tube fitted, Leah as had many more…
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Mystery undiagnosed spasms that are becoming a big burden
Hey guys! I'm new to this but it would be amazing if anyone has anything similar or knows what root to go down on getting diagnosed and on medication that could help!! I have had a spasm condition for the past 10 years now, which radiates mainly in my hands and arms, where each finger and muscle in my hands moves at it's…
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My wife has lost weight, has stomach pains, and can't keep food down. Wanting advice and support
Hi - its not me with the illness - but my wife. She has lost 60 lbs in 5 mos (and still losing) - can't eat, stomach hurting all the time, throwing up, etc, - have no idea what is going on. Every test comes up negative... looking for support, advice, and understanding... more to follow... nice to meet you all! Dave
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Low back spasms, daily for 10+ yr, nothing on MRI or Xray
Hi there! Figured I would give this a shot since no doctor has been able to help. About 11 years ago, I got a back spasm that has never gone away. It's mostly focused on my left side. Most of the time it's just a sharp pain that I feel whenever I move the slightest bit left to right or front to back. Walking doesn't hurt,…
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ADHD/ADD symptoms and diagnosis?
Hi, I was wondering if anyone could give me any advice regarding symptoms of/diagnostic pathways to (an) adhd (diagnosis). Thanks.
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Do you have a spare 12 hours to complete our survey?
This is a thread intended to test something. You weren't supposed to click it, although I appreciate your curiosity. Please do not reply!
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Narcolepsy
I haven’t seen a lot about narcolepsy on here, and considering that’s the condition I have I thought I’d share some experiences to get some conversation going because it’s always helpful to see others you relate to. I am only young, and I have narcolepsy with cataplexy. For those of you who don’t know, narcolepsy is a…
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Poem
Disabled and Normal I'm so glad that your back to your normal self… What does this statement of "normal" mean to you or I? I find this insulting; when (or if) your health fluctuates. Some people may interpret this as your not being "normal." Would life be simpler if you did not have the physical, mental or developmental…
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Narcolepsy and Cataplexy -
I have Narcolepsy and Cataplexy, and other conditions. Living in a small town in Worcestershire my Doc only knows me with the condition. I am lucky to be part of a fb group full of Narcoleptics.Anyone is Worcestershire?
