How is your day going?

Schildpad

evening.. my medication sometimes works sometimes does not.. very frustrating.. so i forgot a few days ago and took it late. and yes i was still up at 4 am.. but even when taking it at a time i think it will work sometimes does not. i take it before 7 pm. so with some luck by 11 pm works. .. But tired of medication, tired of people at the pharmacy keep asking do you pay for the medication when they know me by name. for the time being is not going to change so do not keep asking the question.. and looking at me as if i should pay for it.. i am so sick of it. i had a not bad day but it is getting more and more stressful to deal with people. i feel more vulnerable among people etc.. i distrust them. i went to Ikea and carrying that bag did stress me out. it was not too busy but when i was on the queue there it was those machines.. i hate them. there were two scans one that was in a kinda pistol and the one in the machine and i could not make it work. thank goodness a lady helped me out and scanned the whole thing even though i told her i am ok thanks.. she just did everything to the point of the tapping the credit card.. Sometimes you find nice and understanding people.. i feel she knew i was not having a good time in that very moment. and then took the bus and back home. now i am rather anxious. not because of the experience at ikea. i enjoyed. i probably would go for a smaller shopping experience and just buy a couple of things.. i know anxious because when alone i always overthink about the what if … and what if.. sorry for the long message.. i keep "talking"…. have a nice evening and a restful night….

Schildpad

i feel rather bad right now. anyway i will try to watch a couple of films and hope for the best. I forgot to take my medicine and i took one hour later i hope it will be ok. at least i did not forget all together… or i remember when it was too late.. the first only once happened the second it a few times.. anyway. this is really a torture… tomorrow i hope to be ok as i had some volunteering … But i just feel hopeless… my mental health and physical health is taking over me and it is rather difficult to cope with it.

westpest

Evening everyone, I totally understand being anxious talking to either DWP or ADP regarding pip or esa etc. I get exactly the same. I worry every time I see a letter from them. I feel I have to constantly prove myself. I feel like Iam begging for a handout. That sounds crazy because my national insurance record shows I have 47 full years. I’ve always been independent and never imagined I would be in this position. My husband has Parkinson’s and dementia with Lewy bodies and then on top of that I have my own problems. I know my medical records show I have fibromyalgia, diabetes type 2, non alcoholic cirrhosis of the liver, stenosis of the spine, a plantar fibroma, bone spurs on my hips along with impingement, depression and anxiety and osteoarthritis. All this sounds like loads of things that have been diagnosed but I still panic and worry that I won’t be believed. It feels sometimes the system is set up to make sure you fail. I recently asked for a copy of my records from DWP and was totally shocked by the notes taken by the first verbal assessment that I had. I get brain fog here and there and totally forget the next word. However as this didn’t happen on the call it was noted that I was able to verbally communicate and didn’t need any promoting. I was asked how many mg I had to take of one of my tablets? Because I got up and got the box, it was noted that I was able to stand and walk with no issues. However I had to finish working as I was making loads of mistakes and I couldn’t stop making them. The stress was horrendous and I was told by occupational health that I wasn’t fit to be in work (I was off sick for 6 moths, my company refused to accept the OHS comments and said I needed to return to my full time role and do my job as per my job description)as I was highly stressed. I had horrific pains in my neck and down my left arm. After having an MRI that showed I had a prolapsed disc in my neck which was trapping my nerves. If I wanted to go ahead with surgery they would have to go in through the front of my neck but there was no guarantee they could resolve the problems. The results didn’t come through until after the assessment call. I just feel I wasn’t believed and what should I have done. I worked for my last company for 23 years and feel totally let down by them. Then to have these things written about me even though I had always work and gave every company 100%. Non of the though made any difference. I still wasn’t believed. So now I am a total wreck as soon as they contact me. The date I am actually allowed to retire is 2029. I don’t have a clue how I will cope. I don’t have relatives, nor friends, neither does my husband. I just don’t know how I will get through the next four years. Life in general is pretty ****. There’s no way of getting a break or a holiday. My husbands refuses help from anyone else. I have never been interested in politics but I panic things are only going to get worse as there are so many people claiming benefits now. The whole thing worries me constantly.

Bluebell21

Good morning everyone.

Amberpearl

Good morning all

Sun is out

Still waiting for the cardiology appointment

durhamjaide2001

good morning everyone

MD1955

watched the Johnny Vegas programme….well worth watching although he had lots of help even then he ‘disappeared’ for a while. His Art kept him going. But you can replace Art with anything you’re interested in. Last year 2024 was ‘lost’ for me just staying in bed. In the end I just determined to go to sleep and get up at ‘normal’ times…..medication helped though. I still get tired or ‘fatigued’ as I’ve been told to call it. I take an interest in most things & realise how ‘mad’ or crazy everyone is really. I’m 70 this year but keep up with everything even if I think it completely bonkers….like Nigel F*****……and personalities/celebrities or Influencers/extremely wealthy people etc etc….all just needing attention. The world is completely crazy….just take an interest in what you like & ignore the rest…..you won’t miss anything really. Don’t get scared….the worst is unlikely to happen. Demand action from your GP and keep knocking on their door until they do something. 🌹

Catherine21

In so sorry that's alot I totally understand feels like dwp all around me I'm so paranoid I feel everyone watching me it's torturous life they deliberately make it hell hoping we will all get a job if no one ever experienced the dwp they are very very lucky they are making us all so much sicker

Rosie_Scope

Morning everybody ☺️ sunny day here too. Anyone got plans for the weekend?

Catherine21

https://forum.scope.org.uk/discussion/comment/1056581#Comment_1056581

Great advice thankyou

Schildpad

I feel as well as if everyone is spying on me. Every new person I feel they work for.dwp and checking on me. I woke up with my heart racing and still is racing. I am killing some time. I have to go to my Friday volunteering. It is in the afternoon. I need to be there by 1.30. and finish at 4 pm. I will get home before 5 pm.. I guess.. but this is just too hard.

I hope it is not too hectic and I have a nice afternoon but I am not sure.. need to run back home before rush hour...

luvpink

Hi everyone.

Its a beautiful day and I'm going out later to enjoy the sea views.

Rosie_Scope

Hope your volunteering goes okay @Schildpad, fingers crossed you get home before rush hour sets in.

Enjoy @luvpink, lovely day for it!

Catherine21

https://forum.scope.org.uk/discussion/comment/1056634#Comment_1056634

Me too I had to pick prescription up and lady started talking to me been worried endlessly it's impossible to live this life in constant fear keep imagining winning lotto and just feeling free just to have one day to feel at peace I think labour have definitely made alot of people extremely sicker I hope your afternoon goes well

Amberpearl

Sunny here too

I'm. Feeling very tired

Ranald

I don't want to write off the summer just yet, but it has felt a little autumnal, ever since the storm a few days ago.

Sainsbury's delivery tomorrow, and I am looking forward to my weekly drinky poos!

No word from Motability about when to expect my powerchair, but at least they have sent me paperwork saying my application has been accepted.

Here's hoping the sun might make an appearance over the weekend.

Schildpad

i am back home. it was a quiet session over there but a bit busy on the way back. but anyway i am at home now.. i will be watching whatever is on the telly and tomorrow will be another day. i hope i will win something in the lottery and stop all these. i will never feel at peace for as long as i am in benefits. it is very traumatic but i feel like i will never be able to recover even if i am off benefits. people do not understand how traumatic it is to be in benefits. they think it is a good life when it is not at all. i will try to have a quiet rest of the day.

Schildpad

Ok. Time to relax. I hope you have a restful night. I hope I will be able to sleep tonight.

Elvisdog

I've had a total melt down this evening. my 33yr old has driven me totally mad, Neurodivergent's or not he has really crossed the line I feel so numb I can't even talk to him, i forgive being trod on but tonight his words have cut deep, i try to tell myself he doesn't mean all he says but I don't know anymore i totally doubt myself. Sorry for sounding bleak.

Ranald

Finally in bed, had alot of wet dog towels, wet mobility scooter, wet clothing etc to deal with. That BBC weather site is a load of pants, quite frankly!