Autism/Depression

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Comments

  • Nightcity
    Nightcity Online Community Member, Scope Member Posts: 2,670 Championing
  • Nightcity
    Nightcity Online Community Member, Scope Member Posts: 2,670 Championing
    edited November 23

    I get like that, had a rough few days tearful.

    my brain doesn't shut down ever that's why I have nightmares and songs in my head etc then eventually fall asleep a deep sleep randomly when it burns itself out.

  • Bluebell21
    Bluebell21 Online Community Member Posts: 5,431 Championing

    I am sorry you have had a rough few days @Nightcity Know we are thinking of you. Take care.

  • Nightcity
    Nightcity Online Community Member, Scope Member Posts: 2,670 Championing

    thanks as always Bluebell 💛💜 you're always so kind and thoughtful.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 2,677 Championing
    edited November 23

    I don't understand why NT's need to be persuaded of our differences.. Who would wish to be autistic or pretend to be? Which of us wants to spend time and energy trying to explain autism to people who don't believe in it?

  • Andi66
    Andi66 Online Community Member Posts: 500 Pioneering

    Like my ex friend who accused me of making it up. That I managed all this time before my diagnosis. She's known me about.2 years if that. I'm 57 and struggled my whole life. And saying I use it as a excuse which I don't. This has effected me that I wear a wrist band with autism awareness . She has made me feel like a fake which I'm not

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 6,094 Championing

    Sending GIGANTIC BIG HUGS TO EACH AND EVERY SINGLE ONE OF YOU TODAY and always ❤️. Please take care of yourselves everyone and remember to be kind to yourselves too 💜. Chat again soon 💖. God bless you all always ♥️.

  • chiarieds
    chiarieds Online Community Member Posts: 16,672 Championing
    edited November 23

    Hi @WhatThe - & everyone else here. Unfortunately if someone wants to leave, then if they email the Scope team as to their wishes, then I believe that's effective quickly. The Scope team, being the good people they are, of course hope no-one leaves, rather takes a break instead.

    I also believe that Albus simply stating 'we're all in this together,' i.e. having our different disabilities, is what this community is about. We're simply talking about disabled people, not gender, race or creed…..just 'us.'

    I also know that a lovely ND person, whom I considered a friend, has very recently left the community, & I miss her already. Now you might not all agree, but on another thread in which I'd commented, she said she didn't like the 'them & us' mentality thinking about people being ND or NT. If there's one thing I'd like to do, it's to say that because of her, & my own convictions, I don't want to see that either.

    No, I won't understand being ND, any more than some of you may not understand for example chronic pain, but that doesn't mean I don't want to understand it better!

    I'd ask, have I ever treated any of those here that are ND differently; have you seen that I've tried to reach out to those of you I've got to know a little? What do you think @WhatThe - isn't working together the better thing? Of course those who are ND should make connections, but that doesn't mean we can't all work together; please don't shut NT people out. eeL in fact it seems was good enough to apologise for their comment about NTs….

    As far as I'm aware @Bluebell123 hasn't ever said they are ND, & you're OK with her, be OK with every member of the forum, please, it's what this community should be about.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 2,677 Championing

    eeL had nothing to apologise for that I could see! We are a minority group in a world designed for NT's and claiming it isn't is far from helpful.

    If vulnerable autistic women keep leaving the forum, I am bound to be concerned.

  • Bluebell21
    Bluebell21 Online Community Member Posts: 5,431 Championing

    Good morning everyone. I hope you all have a good day. Please stay as warm as you can.

    Take care.

  • Emilee
    Emilee Online Community Member Posts: 235 Empowering

    I think the troubling comments were not about the world being designed for neurotypical (NT) people, but the divisive comments on NTs having different rules, half of them being "a*******s", who trample over one another for gain, and the comparison to ND people as having more empathy, harder lives and are poorer.

    I understand why these comments were made and the intention behind them, but they are othering, and feel invalidating to the very real issues faced by other types of disabled people. I believe the point both Albus and Chiarieds have made is that we all face very similar struggles and should be united by that.

    eeL, I hope you decide not to leave, I have enjoyed your posts and found them to be interesting.

  • Bluebell21
    Bluebell21 Online Community Member Posts: 5,431 Championing

    Hi @eeL I am so very sorry you are leaving, I will miss you.

  • Emilee
    Emilee Online Community Member Posts: 235 Empowering
    edited November 24

    I neither meant to criticise nor judge you, eeL, and I apologise if it came across that way. As I mentioned, I have thoroughly enjoyed reading many of your posts.

    I was explaining to WhatThe that the part they thought was the issue (the world being made for NT people) was likely not the real issue. The post I was referring to of yours was this one, where you made the comments I highlighted:

    I am also neurodiverse, and as I mentioned, I understand why you have said what you have, and I do not necessarily disagree. However, it does create a divide between neurodiverse and neurotypical people, and I can understand why some other disabled people on the forum who are not neurodiverse may take offence.

    It is a shame if you feel you need to stop posting, but please know that my post was not meant to offend or criticise you. I will repeat that I have thoroughly enjoyed many of your posts, and my only intention in joining this conversation was to explain to you and WhatThe what the issue might have been.

    I apologise and will avoid commenting on non-benefit related posts again, so please do not leave on my account. You deserve the friendship you have found here.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 2,677 Championing
    edited November 24

    For heaven's sake - I don't need anyone to explain that what I think is not the 'issue' especially when it is.

    Discussing and criticising the NT world and society we live in doesn't create a divide - the divide is there. We've lived it, will continue living with it by the sound of things.

    As eeL says, this is an Autism/Depression thread. Nobody has to read it. There are 101 other forums where the A-word won't be mentioned so I won't worry about any member leaving because they don't want to hear about autism.

    I'm aware that Strawberry started this thread and that she doesn't like confrontation. It's unwanted and unnecessary on this thread. It will not further anyone's understanding.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 2,677 Championing

    eeL, it would also be a loss for me if you left to so can we try to work through this together? We can start anew and leave Strawberry's thread. We need each other and we need to keep this a safe space to unload.

  • Emilee
    Emilee Online Community Member Posts: 235 Empowering

    Oh dear, this has all gone terribly wrong. 

    What I have clumsily tried to explain is what I took Albus’s comments to mean, as well as the offence others have taken. My intention was to lessen the hurt feelings, but I can see that I have had the opposite effect, for which I apologise sincerely. I meant no offence and am certainly not dismissing the challenges that we neurodiverse people face.

    It is unfortunate that, although much of the discussion is on how we neurodiverse people are often misunderstood or find difficulty expressing things, greater leniency is not extended to all of us and I have been met with confrontation. 

    As I said, I hope eeL will reconsider, and I shall leave you all to it.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 2,677 Championing

    I just wanted to chime in here as I think the ND vs NT talk is pretty dangerous

    ..we shouldn't let our past experiences cloud how we move forward in life.. ..we need to learn to work with others to make others see our struggles.

    Emilee, these are the comments which troubled me. I haven't been able to log on and jumped in out of concern for eeL. She found this autism thread earlier this month..


    eeL
     Community member Posts: 280 EmpoweringNovember 2

    OMG Just found this thread, I THOUGHT I WAS THE ONLY ONE!!

  • Kali85
    Kali85 Online Community Member Posts: 121 Empowering

    please don’t leave @eeL this group is here for us to support each other, I really valued your input ❤️. Makes life abit easier knowing that we are not completely alone in this struggle

  • Nightcity
    Nightcity Online Community Member, Scope Member Posts: 2,670 Championing

    I'm not impressed Vikki also left because people kept misunderstanding her and digging and now eeL

    I saw the nasty remarks Vikki received and the sarcastic swipes all because she didn't fit in the box of a small minority.

    two lovely people who mean a lot to me and make perfect sense to me.

    When I joined I was also misunderstood and had people jumping down my throat,

    I've been on here a lot less recently myself and have been considering leaving as those who understand me best are leaving or expressing a wish to and I don't like how uncomfortable they feel or how different I now feel,

    I just like Vikki and eeL both said Thought I'd found my safe place here now I'm not so sure.

    In reality it's true whether it's liked or not that everyday people don't understand the autistic and Many don't want to.

    obviously not everyone but it's a fact.

    people should be able to express a view about their world without being shot down for being themselves or told off like a naughty puppy.

    that's all I'm going to say on the whole thing.

  • Catherine21
    Catherine21 Posts: 2,783 Championing

    Oh no I'm saddened and I'm upset because ot takes alot for us to let our shield down it's very triggering when someone corrects you ON your own life experiences and turns it to make ot seem this is distressing I'm having my messages checked so I don't know if your received them do not let this get you down we all connected and you was offering comfort xx