Green Paper Discussion (from 24th March, 2025)

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  • Catherine21
    Catherine21 Posts: 4,836 Championing

    So if have questions like 4 points face to face that might remain the same ?

  • Catherine21
    Catherine21 Posts: 4,836 Championing

    I emailed EASS thankyou

  • Catherine21
    Catherine21 Posts: 4,836 Championing
  • Catherine21
    Catherine21 Posts: 4,836 Championing

    My Daughters the same worried you must remember not to tire yourself out it's such a psychological battle day in day out without sounding like I'm throwing in the towel I'm starting to see that this will go ahead it's been set in stone they are talking like it's happening ìi emailed john mcdonnell asking if they was any legal cases or does it look like going through no response

  • Catherine21
    Catherine21 Posts: 4,836 Championing

    How do we do day to day with such pressure life was bad enough before can't believe this nightmare thier tightening criteria as they know how many businesses shops jobs are going through thier deliberate plans for 2030 is becoming a reality when we relize which I have they don't wany us here we are literally dealing with psychopaths n

  • Catherine21
    Catherine21 Posts: 4,836 Championing

    God I hate myself meant to go to manage emotions this afternoon one I knew I shouldn't agree to afternoon appointment been sitting here panic attack after panic attack had to call council to see if recieved my bank statements I just can't cope with real life all this reform made me look at myself I can't even attend a two hour group I wish I was strong like I used to be even dogs barking sends my stomach to flip whi would WANT this life it's torturous sorry feel scared vunerable I watch other people get up for work no problem go out have friends it's impossible for me what's the point of it all at the scrap heap can't even help myself

  • Catherine21
    Catherine21 Posts: 4,836 Championing

    No your right I'm saying email ECHR you can't directly god I think I emailed Geneva I'm so useless online 😕 who knows ??

  • charlie72
    charlie72 Online Community Member Posts: 131 Empowering

    I agree, watching the news makes me worse but it seems hard to avoid, especially online, I only really have a quick look on here and other disability charities sites to see if any of them have any news on a future court case againstb these cuts. I'm a bit fed up and disapointed with the lack of fight back from them, maybe I'm wrong and theyr'e working behind the scenes to start a legal case but so far Iv'e heard absolutely nothing and it's very worrying to think they might have become resigned to the fact they will push these so called reforms through.

  • Danny123
    Danny123 Online Community Member Posts: 7 Listener

    The way I interpreted it was ....

    March 2026 , new claims for LCWRA get a cut , existing frozen

    From November 2026 , Pip criteria change's....for New and existing pip claiments.... Descriptors remain same but you will need one 4 in daily , and have to get a minimum of 8 points to receive new health element

    From now to 2028 reassessments for LCWRA will continue as normal with no change in criteria.... Then in 2028 when the wca is scrapped , pip assessment will take over , if you qualify you will receive the new health element which is the equivalent to LCWRA.... If you don't you will be expected to look for work

    My god 😂🤦

    They have not thought this through at all ....

    People in pip have a tough enough time qualifying for it anyway

    People who have just ESA or LCWRA or a mix of both and do not receive pip are in some serious danger , it's actually frightening

    Whats even more frightening is ....

    1. They don't actually understand what their proposing and how much danger their putting people in

    2. Even worse they don't care ....

    I mean we all talk and second guess on here , but if we all put that to one side and just really think about what they are proposing , I can't think of any way that this could even remotely work .... People will get desperate , can you imagine the chaos it will create for the government , the DWP the claimant 🤷 imagine trying to force people into work work with serious mental and physical illnesses....

    They say 200000 people want to work , there's not even enough jobs for half of those ....

    They say that every single person will have tailored support 😂😂😂😂😂 I mean that's actually laughable , I mean we all know what a complete state the DWP is in , not to mention the country , look at the incompetence at the moment , and they are actually trying to tell us every case will have specialized Tailored support .... That just won't happen

    We all know this is simply cuts and has nothing to do with the welfare of us ....

    Every one of our situations are different ....

    All I can do is look at mine to understand why these reforms will not work ....

    I haven't been out of my house in nearly six years , not once , not even in the garden.... I couldn't go to either of my nans funerals which I will never forgive myself for , I couldn't visit my mum in hospital after her heart surgery , my life is a constant long list of rituals that if any of you saw me doing would think I was absolutely crazy , honestly you wouldn't believe it .... I live in Constant terror , physically and mentally terrified with the darkest most awful intrusive thoughts , alot of the time I'm paralysed , can't move , can't talk , stay in the same position for days without movement....

    Now again this is just my situation , I'm sure everyone can relate , as everyone on here has there own disabilities with there own challenges and obstacles....

    Now how is it that they think that making an assessment that is already hard to pass , EVEN HARDER , to the point of nearly impossible , which will also have this black and white tick box culture to it make people's lives better ? Not to mention it will be the main assessment to be able to qualify for extra money , otherwise you need to look for work .... I mean this sort of blows their. " tailored surport " mantra out the water doesn't it ....

    Theres nothing tailored about making everyone undertake a one size fits all assessment to qualify just to keep the extra money we already get now ....

    I mean again I'm just looking at my situation as I'm not familiar with everyone else's .... But ok , I take the pip test and i fail let's say ....

    So now I have to come to the jc and look for work .... Ok no problem....

    Ill do that then ....

    How do I get there when I can't get out my house ?

    Ill have to do it when I'm not completely paralysed and shut down

    Also I'll have to do it in-between all my rituals....

    Also I won't be able to do it when I'm talking to myself and trying to push the intrusive thoughts away

    Ill need to get ready , but my personal hygiene is completely knackered as I can't even get in the shower for months or brush my teeth regularly 🤦🤦

    But other than that I'm fine to do it 😫

    And as you read this I'm sure you can all relate so much to this as you have specific needs and ways to navigate your disabilities

    I can just imagine going for a job interview 🤦🤦 I mean it wouldn't be possible , can you imagine them asking me a question but before I can answer it I need to do about 10 different rituals ! .... Tailored support my **** !

    Theres just no way this could work , I mean it's almost criminal

    As much as I think these reforms will come to pass one way or another , I really am starting to have serious doubts how they could do it in current form , far to much of it is not workable , it just makes me think there will have to be amendments , won't there ?

  • jul1aorways
    jul1aorways Online Community Member Posts: 86 Empowering

    I hope you are coping OK @noonebelieves 😊

    Aren't there times when this all this becomes SO overwhelming AND draining. 😔 We should all be so proud of ourselves by knowing that we with near impossible odds, being forced to go through what no human being should have to through, we are STILL doing everything we realistically can to challenge these proposals and to raise all the awareness we can in the face of such overwhelming properganda.

    To do this, we have to keep ourselves throughly informed about what's going on and therefore have to keep coping with so many things that are so triggering!! 🥺

    We would not be able to do nearly so well with out each other's support, encouragement and individual knowledge though. Bring us all together as a collective voice and, although it's still extremely difficult, it's much easier to get yourself in a better place, making you much more capable of finding the inner strength to challenge what is happening. 💪

    Let's look at it this way. Our adversaries in the government WHAT us to be completely isolated from each other, drowning in despair, and becoming more ill. This would then make us incapable of functioning at all, never mind being able to challenge their evil, flawed and misrepresentative intentions.

    I don't think that is happening, as I'm sure you'll agree!! 🤗

    I've not long joined this community but I feel so proud and privileged to be here. I would be doing certain things towards fighting this, I know, but would not be coping nearly as well as I am, or doing as much as I'm doing. A substantial part of that is because of you @noonebelieves👌🤗

    As you've said, we are not only fighting for ourselves but for our families too. My partner and I are both disabled and claim PIP and are both paid to care for each other. If you can call Carer's Allowance and Carers Element being paid. 😒 The situation isn't as bad as it sounds because I have two 4 pointers on my daily living but my partner doesn't.

    It will still result in a significant financial loss if he doesn't get 4 points in his upcoming review in 2028. At least he is state pension age and if the PIP fails (he gets standard daily living) he will certainly qualify for the standard rate of Attendance Allowance, as the criteria to get it is easier than with PIP, as it will be then, if it is not stopped. I would lose my Carer's Allowance though, as by that time I would still not be State Pension Age, I would still be three years away from that. We are a mixed age couple, my partner is 11 years older than me.

    I have worked out that once I get to state pension age, with our Pension Credit for a couple, my PIP and either my partner's PIP or Attendance Allowance (standard for both are at the same payment rate) we would have the same money as we have now, as we wouldn't feel the loss of the Carers Allowance. However, our income would be before housing costs (we're in social housing) as we would get housing benefit back instead of the derisory amount of housing element that you get with UC. 😒 This means that we would have more disposable income so, in real terms we would actually be little better off.

    The point is that at least we will, at our lowest point be able to pay the rent, to feed ourselves, to pay our bills and look after our cat and dog, who as far as we are concerned are family members too.

    What about the thousands of people who are not going to be able cope!! 😮 Disabled people who are nearing or already in poverty, WHO KNOW that they will not be able to eat, pay bills or keep a roof over their head! People who face destitution, temporary accommodation or even the streets!! 😥

    Whatever did they do to deserve this? 🤔 😔

    The answer of course is NOTHING!! 😡

    They are most likely to be people who are of working age, who are nowhere near pension age, who live alone. They will lose EVERYTHING. 😱

    Plus thousands MORE, whether they are on their own or not, who might just about scrape by but the smallest change in circumstances will tip them over the edge. 😣

    I hope that I'm not really depressing you even further, 🙏 especially as I don't know what your circumstances are and don't need to know but I feel that whatever we go through ourselves, we have to fight for them too. THERE IS NO CHOICE IN THE MATTER, I believe.

    Many of our fellow disabled, with the greatest of respect to them of course, don't have the ability to being able to fight this, like we can and many can't cope with, or can afford to use the internet.

    They would very likely to also be unable to, for instance attend a real world disability cuts protest in person, which, to be honest I'm not up to either and by the sounds of it, neither are you.

    All these things are organised online and unless they have someone else to help them with the process of finding out when these events are happening, they won't even know what's events are going on, never mind be able to attend.

    I apologise also that this post has been so long but it breaks my heart 💔😥 to see what is happening to us all. I admit that I've had a hard life and ill health for the last 21 years. I have had to go through all the previous government's shenanigans with this situation but I have never been through anything quite this bad. 🥺

    It is the sheer scale of the deverstation to disabled people's lives that gets me, in a rich, developed country that is civilised and a democracy. That our governments could have bought us so low........ This government, I have not got the words that can sufficiently describe what they have bought us to.

    I must say I do feel better for letting all this out but I do hope that this hasn't got you down too much. It's a beautiful, warm day again, ☀️another reminder that there are so many positive things that they can't take off us , not unless you allow them to. I won't let them do that, they are not worth it and I'm sure that you won't allow yourself to do that either.

    Do take care of yourself 👍 and I promise 🙏 that I will continue after this post in my usually, largely positive self in the future! 😊

  • Martinp
    Martinp Online Community Member Posts: 52 Empowering

    I will crawl in that job centre on my stomach, half naked and pee myself, every time they want me there. I will have to have an ambulance every time, if that’s what they want that’s what they will get

  • Topcat71
    Topcat71 Online Community Member Posts: 89 Empowering

    Was disability benefit as once called if I am correct change to pip so that it makes it easier to not associate the benefits with the word Disabled

  • Zipz
    Zipz Online Community Member Posts: 1,887 Pioneering
    edited 12:07PM

    Before PIP there was Disability Living Allowance. As ESA took over from older out of work benefits, words such as "disablement" were lost. I remember being assessed for the Mobility Allowance we had before DLA. The assessment was tough but I saw a doctor. Gradually, words that clearly state the claimant's situation have been removed. Universal Credit could mean anything.

  • Tumilty
    Tumilty Online Community Member Posts: 208 Empowering

    Saw this and helped me understand a little better, not sure how reliably informed it is https://uk.news.yahoo.com/benefit-cuts-dates-pip-universal-credit-labour-dwp-173005485.html?guccounter=1

  • JasonRA
    JasonRA Online Community Member Posts: 190 Pioneering

    My query is any changes to disability orientated benefits has to tick 2 important boxes. The human rights act 1998 and the equalities act 2010.

    So just this government can ignore everything to pass laws? This saga has more miles in it than a done and dusted vote.

  • Catherine21
    Catherine21 Posts: 4,836 Championing

    They know exactly what thier doing and when our time comes we get turned down or put on job searches the doctor won't sign us off they will all planned it's a cull in my eyes and I don't hear charities saying much it will be organised caous You will have noting and be happy we are being informed of thier plans still we turn our heads side to side like huh I'm going to get my head round it but I don't see a way out of it to save myself like millions of us

  • Danny123
    Danny123 Online Community Member Posts: 7 Listener

    I agree , it's hard to think how the changes will go through as they are ....but then if they do go through you have this incredibly terrifying thought of " what then " and the thought of it alone sends you spirillng into sheer panic

  • Albus_Scope
    Albus_Scope Posts: 9,424 Scope Online Community Coordinator

    As I've said before @Catherine21 just because you cant see charities doing anything, it doesn't mean they're not. Most of the work will be going on behind the scenes and directly with the government and MPs. 😉