The Green Paper Discussion (the document link is here too!)

I get pip for ME/CFS and fibromyalgia. Did you record your assessment ? Either way you need to appeal

I agree. What about claimants who are under the 'severe conditions category'? Will they be protected?

hi thank you . Where did you post that ? Also is there any clarification regarding the 4? Points for pip .? I read it as you need one 4 point plus 4 random points for lower . But an extra random 4 points for higher

i think its going to be based on getting 4 points for one descriptor for daily living regardless of how many in total for new claims existing claims will carry on until up for renewal

PIP is functional. If fatigue prevents you from reliably being able to complete elements you should get the points and a tribunal is likely to overturn the assessor's incorrect view of your abilities based on that false assumption.

I had an assessor tell me that because I don't sleep during the day I don't get fatigued. They are very ignorant. I was dreading the tribunal but they actually paid attention and applied the law rather than asking trick questions the way the assessors do. I really hope the bumpf about being respectful in the green paper is true. It must actually cost more to have so many cases go to tribunal so they should try to get it right first time more often.

I will lose out with pip, one of my mobility one is 10, i get standard, but i get enhanced with daily living counting it up. my review is in 2032. And with my current conditions which wasn't as bad when I filled it in, plus copd i don't want to ask for another in case I lose it especially with these changes. I hope they don't call me yet

Fibromyalgia is classed as a lifelong debilitating condition which is also incurable so you should definitely qualify for PIP regardless of what they change the PIP descriptors to. I have lived with Fibromyalgia along with other conditions since 2005 and whilst it may not be my most debilitating condition it does cause me daily issues and is very painful. Not to mention brainfog and I even forgot how to spell my name once when I writing a card it literally went out of my head and was incredibly scary. I think the biggest hurdle for people with FM is that there is no way to test for it with a definitive test it has led to the situation that anybody with multiple mystery ailments just get classified as having FM when in actuality they may have a different condition. FM at it's worst flare up can last weeks and even moving to the toilet becomes almost impossible and very painful. I was very lucky as my GP his wife has FM so he sees first hand exactly what the effects can be and is sympathetic whereas some Doctors are not. I was a textbook case I was in my 20's had an abscess behind my eye and in my cheek which was antibiotic resistant I spent christmas and new year 2004/5 in hospital on IV antibiotics and have never felt well since that point, originally they thought it was post viral fatigue but I had a perpetual high white cell count over 22000 and they couldn't find a cause for it after every blood test and scan they could think of I was referred to rheumatology and was diagnosed by a consultant with FM then followed kidney issues requiring 2 months in hospital and a catheter and a year later bowel problems which are both common with FM. Don't let them bully you when it is time for your review, have somebody there with you who can advocate for you and if it helps begin keeping a diary of a typical week and how it effects you. Attend all hospital and GP appointments to have for a record of visits for your FM and you should be okay.