The Green Paper Discussion (the document link is here too!)

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Comments

  • Dawn6065
    Dawn6065 Community Member Posts: 1 Listener

    I think it's likely there will be some conditions that will automatically qualify e.g 'progressive' and 'terminal'.

    Having several health issues myself, I have found (through being on targeted FB support Groups) that not everyone with 'a specific condition' suffers in the same way. If someone is suffering with just the one condition, they're still suffering but, maybe not as much as someone else who has additional conditions - that aggravate or have a knock on effect.

    I'd like to think that they will now look more at the 'overall" impact of how people's ability is affected by their condition(s). But.....in order to do this 'competently' the DWP Assessors need to be more medically qualified (a lot are not) and have a better knowledge of the criteria: Musculoskeletal, Cardiology, Neurological, Vestibular(hardly ever mentioned but also extremely debilitating) etc.

    In my case I have 3 Vestibular issues. This impacts on my ability to function 'normally' on a day to day basis. I also have Musculoskeletal issues which, without the Vestibular issues, I could probably function/cope much easier.

    I can only 'hope' that a better understanding is implemented for future claimants.

    We can only wait to find out more - and take each day as it comes. Personally, I find worrying about is makes my conditions far worse, so I definitely practice mindful thinking. Not easy, but at the end of the day I have to focus on keeping myself as stable as possible (both mentally and physically) so as not to end up on a gurney in a hospital corridor😫🤮

    That said: I have managed to submit

    my 'health story' to my MP in the hope it will 'trigger' some element of 'understanding' but heard nothing back 🤔.....

    I wish you all the very best going forward.

  • Girl_No1
    Girl_No1 Community Member Posts: 413 Trailblazing

    I wrote to my MP (newly elected Labour) on Tuesday asking how he intended to vote. I have not even received an acknowledgement. They are sh***ing themselves I think. If/when I do receive a response, I will be posting it on every local FB page I can find, so that people know whether he supports the plan or not. That way he will be held accountable by constituents.

  • CandyK85
    CandyK85 Community Member Posts: 12 Contributor

    Unfortunately, the UK has a serious shortage of doctors right now. I don't see how they could do this.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I agree . I have several conditions ME and Fibromyalgia which both set off each other . Fibromyalgia pain eases with an exercise ( walking a bit around the house example) but that the makes the fatigue from ME worse. That then sets off migraines, stomach problems flu like symptoms. This all leads to pains from cervical spondylitis and sciatica among the other usual pain that is constant. The only treatments are painkillers and muscle relaxers. They in turn can trigger another condition I have now been diagnosed with. I even have a GP letter from years ago stating my prognosis is not good yet I’m assessed every few years and scored zero points with evidence of that letter. Surely I should be now classed under their lifelong condition rule as there’s no cure for fibromyalgia or ME . I’ve had ME over 35 years , diagnosed over 15 years ago so I can’t see it going magically by itself. Sorry for long rant 😩😀

  • Charlie_Alumni
    Charlie_Alumni Scope alumni Posts: 262 Empowering

    Hi @Catherine21.

    I've made a post with all the ways in which you can respond to the consultation here: Responding to the Government's Green Paper

  • Popster2020
    Popster2020 Community Member Posts: 35 Connected

    54.Alongside levelling up the rate, this change would end the indefinite entitlement to contributory ESA for those assessed as having limited capability for work-related activity (for new people claiming). Those unemployed after the time-limited period would be able to claim UC, depending on their personal circumstances. We believe this reform would align with the removal of the WCA, by offering a route to financial support for those with temporary and short-term health conditions, including for those who may not be entitled to PIP and therefore not entitled to the health element of UC.

    The above implies for new claims?

  • Tumilty
    Tumilty Community Member Posts: 506 Empowering

    Hi has there been a breakdown of the proposed changes anywhere as I heard there was going to be one after scope worked everything out @Albus_Scope please. Possible scenarios, dates etc. Thanks

  • Andi66
    Andi66 Community Member Posts: 1,457 Championing

    If my next review is not until 2032 will I be ok before then ? Even though I don't have the 4 points. The mirror said that those who don't qualify will be given something but unsure what . My health will get worse over time can anyone help with this question please

  • Charlie_Alumni
    Charlie_Alumni Scope alumni Posts: 262 Empowering

    @Albus_Scope isn't around today, but Scope have posted this webpage: Changes to disability benefits: what you need to know

    With key information under the "What changes are the Government proposing to make?" section.

  • Popster2020
    Popster2020 Community Member Posts: 35 Connected

    54.Alongside levelling up the rate, this change would end the indefinite entitlement to contributory ESA for those assessed as having limited capability for work-related activity (for new people claiming). Those unemployed after the time-limited period would be able to claim UC, depending on their personal circumstances. We believe this reform would align with the removal of the WCA, by offering a route to financial support for those with temporary and short-term health conditions, including for those who may not be entitled to PIP and therefore not entitled to the health element of UC.

    The above implies for new claims?

  • Popster2020
    Popster2020 Community Member Posts: 35 Connected

    54.Alongside levelling up the rate, this change would end the indefinite entitlement to contributory ESA for those assessed as having limited capability for work-related activity (for new people claiming). Those unemployed after the time-limited period would be able to claim UC, depending on their personal circumstances. We believe this reform would align with the removal of the WCA, by offering a route to financial support for those with temporary and short-term health conditions, including for those who may not be entitled to PIP and therefore not entitled to the health element of UC.

    The above implies for new claims?

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    morning Catherine,

    You’ve asked the question I’ve asked many times . Who actually gets the 10 years light touch . I have conditions that are lifelong with no cure plus highest for both but still constant reassessments. I’d love to know how they allocate them either now or future x

  • Popster2020
    Popster2020 Community Member Posts: 35 Connected

    I've also found this, which implies that it's only NS ESA that's affected. Like you say, no mention of what would happen once WCA is scrapped. Perhaps current and then future PIP entitlement would be used to determine ongoing eligibility for old style CB ESA?

    Introducing a new Unemployment Insurance by reforming contributory benefits

    149. We are consulting on creating a new Unemployment Insurance for those that have made National Insurance contributions. This would mean people receive the income they need alongside the right employment support to get back into work. The welfare system was founded upon the contributory principle – the idea of ‘something-for-something’. Contributory benefits are a form of non-means tested support for those who experience unemployment. Currently, New Style Employment and Support Allowance (NS ESA) and New Style Jobseeker’s Allowance (NS JSA) provide support for those who have recently become unemployed. To qualify for these benefits, 2 to 3 years’ worth of National Insurance credits must have been paid or credited prior to the date of a person’s claim. NS ESA supports individuals whose ability to work is restricted due to a disability or health condition. NS ESA relies on the WCA to determine eligibility. After the WCA, NS ESA places people in either a work-related activity group or a support group, which determines how much work preparation activity they are required to do and how long they are able to access the benefit. NS JSA also supports unemployed individuals, or those working on average less than 16 hours a week, but it does not have a health-related requirement. People receiving NS JSA are expected to be actively searching for work and are able to access the benefit for up to 6 months.

  • Dianaf
    Dianaf Community Member Posts: 110 Empowering

    Hi you are right. People who claim carers allowance to help care for people who claim pip will also lose their carers allowance on the 4 point rule. The government know this so they are also cutting carers allowance in a cruel sneaky way.

  • Markey
    Markey Community Member Posts: 27 Contributor

    Hi Andi, I'm the same, my review is due in 2032 and my health will only get worse over time, from what I understand the 4 point rule will only be applied at someones next review (after Nov 2026) although they hint that there 'may' be some flexibility or other help for some existing claimants but they also said long term will never have to have review… The reality is they haven't actually clarified who it is that wont ever have to have a review, so I don't think anyone really knows all the details yet…. I'm not sure if they do !!

  • Tumilty
    Tumilty Community Member Posts: 506 Empowering

    Thanks I'll have a look I'm not good with the ins and outs, the ramifications etc like what will happen if your on this or that along with pip, dates etc it's all so overwhelming.

  • Hopeless
    Hopeless Community Member, Scope Member Posts: 1,033 Pioneering

    I’ve just been given a 10 year fixed term award on MR so not light touch but I guess at least a recognition that my difficulties are longer term. I sent evidence to show my disability is considered to be permanent and said I believed I met the criteria for an ongoing award but 🤷🏻‍♀️

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    not only will they lose carers allowance but they’ll have to work leaving the government to care for these 1 million disabled they want off pip . So instead of paying £1 an hour they’ll be paying £10-£15 per hour. They haven’t thought this through. Notice they haven’t changed mobility as they don’t want to upset motability and put them out of business. So again discrimination against the ppl who need care .

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing
    edited March 2025

    I went to MR for an increase in award and said to my legal advisor about asking for an extension. He said no not all at once let’s see what happens. He messed my new evidence up and I lost MR , when I called dwp to explain and asked about tribunal they instantly contacted the case manager who looked again and award me highest . I think had I requested they look at length of award I may of got it . Well done to you as at least you don’t have this worry right now x

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