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  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing

    I don’t understand any of it . The protection for severe conditions sounds good but I am already on lcwra from esa . Haven’t had an assessment in years . Have arthritis fibromyalgia and ME which are all incurable yet I still get pip assessed instead of the 10 year award . Unless they are saying this criteria is set in stone for us all with incurable and untreatable conditions it will again be down to luck on the day as to who you get as your assessor

  • Martinp
    Martinp Online Community Member Posts: 206 Empowering
    edited June 13

    I’m the same with Spinal Stenosis, it’s caused scoliosis and it’s only going to keep getting worse, severe nerve damage down right side. Also have deformed legs and arms and osteoarthritis in every joint in my body. I can’t walk more than a couple of meters and am housebound. Had a 7 year reward cut down to 3 years, I’m never going to get better so really I have just over a year left before my life is practically over. I can’t believe they are doing this, every day I think how can they do this to us.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing

    I’m really hoping the lifelong conditions part is dependent on conditions and not what the assessor says . If they’re saying it’s non negotiable then it should be that incurable and untreatable conditions automatically pass

  • Danny123
    Danny123 Online Community Member Posts: 97 Empowering

    That's like me , I haven't had a assessment in 6 years in November , so I will be 4 years overdue.... Technically I've never been assessed for lcwra as I moved over from ESA and before have always been assessed with a ESA50 , although that's the same for everybody who's being migrated over to UC .....the lcwra assesment is supposed to be almost identical ..... Everyone will get assessed through a UC50 from now on ....Because I'm on cbesa and lcwra the uc50 covers both .... Assessments are starting properly in April 2026 by all accounts , there concentrating on conditions that may have gotten better ( they will count most people as that though 🤷 ) and people who qualified for lcwra through serve risk

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing

    it’s ridiculous as they know which conditions have no treatment or cure .

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing

    can anyone explain what the first paragraph means regarding level of function not always meeting levels of severity. What does that mean ? Is it you have to have same symptoms each day ? Or is you have to have symptoms most of the time not just flares ups ?

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  • Topcat71
    Topcat71 Online Community Member Posts: 147 Empowering

    Is this new pip point assessment that I keep coming across exactly how it is going to be.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing

    Report on the guardian about mps stepping up efforts to quell the rebellion. If anyone can screen shot would be great 👍 🙏

  • Danny123
    Danny123 Online Community Member Posts: 97 Empowering

    Does this mean while the WCA is still active or this is in regard to when the it gets abolished and everyone will be assessed with the new pip criteria ?

  • Ranald
    Ranald Online Community Member Posts: 1,170 Championing

    The Whips Office will be working overtime. The rumours of 'deselection' for errant MPs is pretty concerning.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing

    Thank you Ranald ,

    What are you thoughts on this going through ? I hope rebels aren’t going to be bought by them scrapping the two child limit . It wouldn’t be fair to treat us a sacrificial lambs . And what does the non negotiable severe conditions mean ? Would we meet criteria from the nhs or the assessors ?

  • lincsgranny
    lincsgranny Online Community Member Posts: 115 Empowering

    And rewarding MPs for making a impression, shocking

  • MW123
    MW123 Scope Member Posts: 1,246 Championing
    edited June 13

    @secretsquirrel1 Thank you for sharing this information. Could you please provide a link or reference to the full transcript or source of the extract you posted? I haven't encountered this specific wording before.

    From what you've shared, it appears that individuals awaiting surgery or an organ transplant may not meet the criteria, as their condition could potentially improve after treatment, It seems the criteria are designed for disabled applicants with no realistic chance of recovery.

    I would appreciate it if you could tell me where I can read this in full. Based on the extract, it seems quite non-negotiable, which is concerning, it could potentially limit the ability to appeal decisions when people are refused PIP under the new rules.

  • lil12
    lil12 Online Community Member Posts: 8 Listener

    Thankyou all for all your posts.I have been an 'observer' over the last month or so.I am worried sick about these proposed changes.. Everything effects me,no 4 point descripor, therefore not being eligible for LCWRA etc.

    It has been a great support to read the posts.

    Thankyou

  • Danny123
    Danny123 Online Community Member Posts: 97 Empowering

    Completely agree with that , make the expectations almost impossible , then bargain down to what you wanted in the first place , normally having to compromise on something below that

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing

    Hi MW , it was from benefits and work and posted here by ashmere at 4.19 pm .


    I am hoping non negotiable means assessors cannot use their own judgement, that it must come under the NHS criteria for not curable . Though I’m probably being too naive

  • Danny123
    Danny123 Online Community Member Posts: 97 Empowering

    @secretsquirrel1 sorry is what your referring to to do with special situations where you qualify for the new pip 4 point rule ?

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 1,516 Championing
  • bton1968
    bton1968 Online Community Member Posts: 121 Empowering
    edited June 13

    Have a look through your last award letter to see if they've scored you down from what could have been a 4 pointer ....

    Going forward gather as much information as possible to support your review …

    RECORD the face to face or phone review and let them know you're recording it because they've been known to record false information in past assessments