Green Paper Related Discussions

Thank you . Hope it’s not the case as it’s the nhs who say what is lifelong not government. And it’s supposed to be how the condition affects us not what it is

Hi gecko , yes I read that yesterday. I think you’re referring to the mobility question. They are several questions and if you’re on lcwra you must of passed it already . I know what you mean , my ME is so bad I’m exhausted and have bad brain fog . This whole situation is draining. But at least Wes streeting is going to find the cure for fibromyalgia and ME so at least there’s that .

Me like alot of other people have never been assessed for lcwra as when I moved over voullentatrlly to UC my support group status automatically puts me in the lcwra group , alot of other people being migrated over will be in that postion but keep seeing this makes me worry that the ESA support group assessment is not the same as lcwra , I was led to believe they were identical and if you always past ESA reasesmeent the lcwra would be the same

All these references to this is confusing me , are these when the changes come when the wca gets abolished in 2028 or are they in regards to the standard WCA of now .....

Im on cbesa and lcwra but no pip .... So I'm just trying to concentrate on what's Infront of me now , that being a standard reassessment for lcwra and concentrating on passing that , that should take me up to 2028 or past it , then I'll turn my attention to the new pip criteria when it takes over from the WCA

I'm going to have to take a break from here for a little while , it's just constant , all ifs and buts and guess work , complete worry from the moment you wake to the moment you go to bed , nice people on here , but this site can be a trap .… The amount of hear say and media articles that give you hope one min then bring you down 20 mins later .... The facts are none of us know what is going to happen until they debate it , once we know we then know exactly what we're up against , we're just being fed media bias from different outlets with different agendas ..... All this worry and nothing changes until we know a little bit more about it , it's making my OCD and life completely unmanageable constantly trying to read in to things , take care people , I'll have a look in when we know more on Wednesday

Isn’t it a vicious circle? Wake up stiff and in pain due to fibromyalgia then lay in bed trying to relax muscles. Walk about a bit to relax then I’m fatigued again . I actually have it written from my past therapist to rest every 15 minutes so how can I work ?

Yeah it is, i wake up usually after 2-4 hours sleep (thanks insomia) to sleep paralysis which on a very bad day takes me over an hour too move. Ive only seen my consultant & took part in a fnd clinic & fnd physio but they didnt write anything, thinking of going back to gp as going downhill slowly either that or ive been crashing for the past year. Do you get the fibro pain in your chest that feels like a heart attack?

I get terrible cramps even feet . Had tests by specialist and nothing showed up . Even using tv remote can cause hands to cramp. Drs can’t find a cause to everything or the cure but thank god for Wes streeting who’s going to save us so Kendall can find us a top paying job 😀

They’re devoid of empathy the whole lot of them

I hope they do vote no . Imagine Kendall’s face if she lost . I’ve even read some Labour rebels are thinking about voting for now the Tory’s are voting against. Apparently they can’t walk along with the Tory’s . They should feel privileged that anyone would want to be seen with them as Labour are the nasty party

Thank you for sharing. I just watched disability talk with Steve. Apparently demented Kendall now wants carers to work too . There’s actually a video of her on Steve’s YouTube video so caution if you decide to watch

I honestly think there’s something very wrong with her , more than just ambitious cruel . I think she must have some personality disorder or psychopathy. And I really don’t want to offend anyone here as these conditions are serious as is all MH . But there’s such a deep rooted hatred for us that there’s surely a reason. She’s not simply passionate about her hate of us , her whole face contorts with hatred. I’ve never seen anything like it before. And on this video she just comes across as creepy frighteningly so .