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I was saying the same thing yesterday about appealing more and DWP getting swamped with MR and tribunals. I too just accepted my last award because I got enough points for standard and was scared of losing entirely. When I looked again at my awards letter I realised I should have gotten at least 4 points in 2 descriptors but didn't appeal. Like you say more people are just going to appeal in future, just getting what they should have in the first place!!
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Catherine that sounds awful and unfortunately unless any condition has actual tests or symptoms that are seen it’s not taken seriously.
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I'm getting overwhelmed with information.
Do I understand it right that by the looks of it, conditions like Chronic Fatigue Syndrome/ME and fibromyalgia and POTS will be at risk of losing LCWRA because they won't consider them 'severe'?
From what I've read they seem to want to allow only disabilities where people struggle to move much at all.
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Starmer is not running the freak show at all. He hasn't got a clue. Reaves and kendal are telling him what to do and he just agrees.
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Where did you read that ? I have fibromyalgia and ME and there’s no cure and it states it on the NHS guidelines. .
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Good afternoon,
I have removed several posts from this discussion that related to hunting and had devolved into an argument.
While it is absolutely fine to have differing opinions, it's important to ensure they are shared respectfully and in accordance with our house rules.
Please remember that the primary purpose of this discussion thread is to focus on the proposed and upcoming changes to the benefits system.
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I do Catherine and I must be lacking in iron even though blood tests prove different.
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Thank you Charlie
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It was something somebody posted yesterday I think, with a link to what they've said the kind of conditions are that people will continue to get support and never be reassessed. Let me see if I can find it. But I might be completely misunderstanding.
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I think it was a post with this link, if you scroll there are LCWRA descriptors.
But I might be getting it wrong, my head is a mess right now. I thought it sounded like saying 'you can only get benefits if your really really bad and can barely move without help'.
And that's not the case for all with ME and fibro but they're still extremely limiting and no cure, so I was worrying they would dictate if it's not bad enough they'll take away support.
I'm just STRESSED.
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Also on the benefits and work site from that earlier post:
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The level of function would always meet LCWRA.So, conditions that vary in severity may not meet this requirement."
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Thank you . Hope it’s not the case as it’s the nhs who say what is lifelong not government. And it’s supposed to be how the condition affects us not what it is
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Yes I read that and thought the same . But with fibromyalgia and ME we are like it every day . I think maybe they mean some conditions settle then have flare ups ?
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Hi gecko , yes I read that yesterday. I think you’re referring to the mobility question. They are several questions and if you’re on lcwra you must of passed it already . I know what you mean , my ME is so bad I’m exhausted and have bad brain fog . This whole situation is draining. But at least Wes streeting is going to find the cure for fibromyalgia and ME so at least there’s that .
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Oh good hopefully they find a cure for F.N.D too then thats 3 down 🤦♂️ what a bunch of clowns they are.
They think their fine after winning that seat in scotland not realising its down to 2 things 1) how bad SNP fucked up & 2) they dont trust reform as much in my opinion.
@secretsquirrel1 im probably same as you im bad everyday (infact feels like getting worse) as i think my m.e & fibro like to take turns plus you bung in my fnd & its a hell of a party. Which condition set of the other, all 3 cause brain fog its to the point i call all my daughters bab so they dont notice when i forget their names 🤣
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Me like alot of other people have never been assessed for lcwra as when I moved over voullentatrlly to UC my support group status automatically puts me in the lcwra group , alot of other people being migrated over will be in that postion but keep seeing this makes me worry that the ESA support group assessment is not the same as lcwra , I was led to believe they were identical and if you always past ESA reasesmeent the lcwra would be the same
All these references to this is confusing me , are these when the changes come when the wca gets abolished in 2028 or are they in regards to the standard WCA of now .....
Im on cbesa and lcwra but no pip .... So I'm just trying to concentrate on what's Infront of me now , that being a standard reassessment for lcwra and concentrating on passing that , that should take me up to 2028 or past it , then I'll turn my attention to the new pip criteria when it takes over from the WCA
I'm going to have to take a break from here for a little while , it's just constant , all ifs and buts and guess work , complete worry from the moment you wake to the moment you go to bed , nice people on here , but this site can be a trap .… The amount of hear say and media articles that give you hope one min then bring you down 20 mins later .... The facts are none of us know what is going to happen until they debate it , once we know we then know exactly what we're up against , we're just being fed media bias from different outlets with different agendas ..... All this worry and nothing changes until we know a little bit more about it , it's making my OCD and life completely unmanageable constantly trying to read in to things , take care people , I'll have a look in when we know more on Wednesday
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I’m same Danny . I’ve just migrated over to lcwra but I think it’s same form as esa. I’ve heard it is . I haven’t had a reassessment in about 7-8 years so I can’t even remember what the letter of award said .
I know what you mean one minute good news then bad news. Problem is the government aren’t giving any real details, I don’t know if that’s deliberate or they’re just making it up as they go along .0 -
Isn’t it a vicious circle? Wake up stiff and in pain due to fibromyalgia then lay in bed trying to relax muscles. Walk about a bit to relax then I’m fatigued again . I actually have it written from my past therapist to rest every 15 minutes so how can I work ?
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Oh maybe, I hope so. I just don't know what to think with the way they're going, they don't seem to have any compassion at all.
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Yeah it is, i wake up usually after 2-4 hours sleep (thanks insomia) to sleep paralysis which on a very bad day takes me over an hour too move. Ive only seen my consultant & took part in a fnd clinic & fnd physio but they didnt write anything, thinking of going back to gp as going downhill slowly either that or ive been crashing for the past year. Do you get the fibro pain in your chest that feels like a heart attack?
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