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  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    When I first went to tribunal when pip was new the fact I couldn’t take certain medications went against me as did not using aids. Now using aids is 2 points which isn’t enough without a 4. The tribunal were found to have erred in law in several ways and I finally won two years later. The scc could be a positive thing as you won’t be at the mercy of assessors but I think it’ll be made to be as difficult as possible as their aim is to save money. I can’t see how anyone can be eligible for scc or which conditions have symptoms that are constant.

    Can I ask you chiaried, you mentioned you were a physio and you know about fibromyalgia etc can fibromyalgia cause hand cramps that occur every day ? I had blood tests done years ago and nothing was found but the cramps in my hands have gotten worse while cramps elsewhere have not . Hope I’m making sense with this brain fog

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    But if the descriptor is for mobility for the lcwra surely the distance you walk is the symptom not your condition ?

  • chiarieds
    chiarieds Online Community Member Posts: 17,439 Championing
    edited June 2025

    I don't think I knowingly ever treated anyone with fibromyalgia @secretsquirrel1 - I specialised in treating babies & young children with cerebral palsy. My interest in fibro grew many years later when I was trying to work out our family's medical history.

    I read an awful lot about fibro, as it has some similarities with Chiari 1 Malformation that runs in our family. In fact many Chiari patients had been misdiagnosed with fibro. Many disorders have similarities with others, but I learnt a lot reading medical papers by mainly USA Drs concerning fibro.

    It's also been found from several medical studies that the pain of fibro is similar to that of patients with the hypermobile type of Ehlers-Danlos Syndrome that I found through researching that myself & family have.

    Fibro can cause spasms in some patients, which may be the cause of your hand cramps. I only occasionally get them, so know how painful they can be.

    I've been looking to see if I can find anything current in the medical literature about this, & have found a (very long) paper from one of those USA Drs that I remembered reading about some time ago (tho this was published in 2016). I'll read it all through as soon as I can as I'm interested in anything he says as he's someone for whom I have enormous respect. If I find anything relevant that's more up to date I'll let you know.

    Sorry, just noticed your other comment, 'But if the descriptor is for mobility for the lcwra surely the distance you walk is the symptom not your condition ?'

    You may only be able to walk a certain distance due to your health condition & the symptoms you have because of this. If you only had pain/fatigue that doesn't mean anything in particular unless you have a condition that causes such symptoms. The pain/fatigue is the result, or symptom, of a health condition/disorder.

    The distance you can walk is an activity. Any limitation in this is the result of the symptoms (ill effects) you experience due to a health condition,

  • YogiBear
    YogiBear Online Community Member Posts: 414 Pioneering

    Daily Express - 20 June 2025. Posting for information.

    DWP update after concerns PIP claimants could lose £2,500 over 20-metre rule

    Your payment rate for PIP depends on how your condition affects you

    By Nicholas Dawson, Finance Reporter based in London, covering personal finance with a focus on the state pension and retirement planning.Labour ministers have explained the rules around PIP eligibility after concerns claimants could lose out on entitlement due to a specific rule.

    PIP (Personal Independence Payment) provides payments to help cover the extra costs that a claimant incurs due to a long-term health condition or disability.

    The benefit includes a daily living part and a mobility part, with a lower and upper rate depending on your level of need.

    Conservative MP Charlie Dewhirst asked the Government if it had looked at the impact on claimants of losing out on entitlement to the mobility element, due to a particular 20-metre walking rule used when assessing how much a person should get.

    He wanted to know if ministers had considered both the "mental health and financial impact of losing entitlement". The mobility element currently pays £29.20 or £77.05 a week.

    This means if you were on the higher rate and became no longer eligible for any the mobility element, your income would drop by just over £4,000 a year.

    The 20-metre rule in question refers to the 'moving around' activity, which is one of two activities you are scored on to give you a total number of points to work out your entitlement.

    You need a total of at least 8 points to get the lower rate and a total of at least 12 points to get the higher rate.

    To get any points for the activity, you need to at least be limited in your movement such that you can stand and then move more than 50 metres but not more than 200 metres, either aided or unaided. In this case, you would get 4 points.

    The 20-metre rule comes in with the next category - if you are less mobile, and you can stand and then move unaided more than 20 metres but no more than 50 metres, you would get 8 points, enough on its own to qualify you for the lower rate.

    But if you can stand and then move within the same limits, but only using an aid or appliance, you would get 10 points. If your situation is even more restricted, and you can stand and move more than one metre but no more than 20 metres, either aided or unaided, you would get 12 points, entitling you to the upper rate.

    You would also get 12 points if you cannot stand at all or move more than one metre, whether aided or unaided.

    DWP minister Sir Stephen Timms responded to the question. He summarised the walking distance rule in this way: "For those with physical restrictions, the enhanced rate of the PIP mobility component is for those "unable" or "virtually unable" to walk.

    "The 20 metre distance distinguishes between those whose mobility is significantly more limited than others and who face the greater barriers on a day-to-day basis, (those who have the highest need)."

    Further explaining the rules, he said that distance is not the only factor when assessing a person for the 'moving around' activity, as there is also a 'reliability' criteria.

    The minister said: "This means individuals who can walk more than 20 metres can still receive the enhanced rate of the mobility component if they cannot do so safely, to an acceptable standard, repeatedly or in a reasonable time.

    "Whilst claimants can only reach an enhanced mobility award in activity 12 if they cannot reliably walk more than 20 metres, they may still qualify for a standard award should they satisfy another descriptor scoring a minimum of 8 points.

    "Claimants can also reach a standard or enhanced mobility award by scoring 8, or 12 points respectively across activities 11 and 12 combined."

    If you were on the enhanced mobility rate of £77.05 a week, or £4,006.60 a year, and you were reassessed and dropped to the lower rate of £29.20 a week, or £1,518.40 a year, you would lose out on £2,488.20 a year.

    Addressing the question directly, he said the DWP had not looked at the mental health impact of losing out on PIP due to the 20-metre distance rule.

  • johnnyy85
    johnnyy85 Online Community Member Posts: 266 Empowering

    disability talk with Steve on YouTube thinks it’s gonna be a money bill

  • Jamk85
    Jamk85 Online Community Member Posts: 56 Empowering
    edited June 2025

    This will end very bad for labour if this does get through, i mean being threatened if they vote no.

  • Zipz
    Zipz Online Community Member Posts: 4,351 Championing

    You're right , or course, but I wonder if it might end badly for the Labour front team if the Bill were to crash and burn. Reeves and Kendall would lose face totally.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    Morning chiarieds,

    Hope you’re well . Thank you so much for you advice it’s really appreciated. I’ve always found the mobility component confusing as with my conditions you get PEM so if you were able to do more on a particular day you suffer for it afterwards. And though it says you should be able to do the journey repeatedly I don’t know that assessors really take that into account. Last time the question was changed to how many minutes I walk , I’d never thought to count in minutes. I also get points for planning a journey but I haven’t seen that in the lcwra descriptor so not sure if that counts . A lot of the time I either fight through pain and fatigue if I can or don’t go out at all . So I may not go out for a few weeks as I physically can’t . But my assessor didn’t accept that and kept insisting on if I do go out etc.

    And first thing this morning I received a txt saying my pip form is on its way . What a way to start the day 😂

  • Zipz
    Zipz Online Community Member Posts: 4,351 Championing

    I really don't think it's going to be a Money Bill… but I've been wrong before.

  • charlie72
    charlie72 Online Community Member Posts: 259 Pioneering

    It can't go through as a money bill in entirety as U.C and pip are policy matters, AGAIN i keep saying this to people ( not you squirrel), yes some parts like spending on LCWRA and pip (but not changing eligibility etc) technically could do. The most important parts of the 'reforms' like changing the eligibility for pip, 4 point rule, changing descriptors etc would still have to go through parliament in the normal way. I would advise ring scope or CAB to get proper answers and NOT what someone has seen on YouTube etc which does not tell the whole story of money bills in relation to pip and LCWRA. More scaremongering again on this forum, I'll never use it again, it's made my mental health worse with negative, false comments and some people being nasty about others comments (again not you squirrell)

  • johnnyy85
    johnnyy85 Online Community Member Posts: 266 Empowering
    edited June 2025

    There’s lots of talk of it being a money bill on social media and YouTube disability expert commentators and on jeramy Corbyn’s letter ,I get there is no concrete evidence but it really wouldn’t surprise me if what it was put forward as one hearing all the talk and the way this government acts.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,796 Championing

    Do you think this is why he's asked them not to abstain

    Screenshot_20250622_213830_Chrome.jpg
  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    Morning MW ,

    I wrote to Jeremy for clarification regarding this but as yet I haven’t received a reply. I imagine they’re extremely busy with emails right now . Could starmer announce it as a money last minute hence he’s cancelling their right to abstain?

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    Morning Charlie,

    I think it’s been started by Jeremy writing it on that letter. I have emailed him to ask but no reply yet.

    As you say how can it be a money bill ? They could literally do the same for all new legislation as everything costs money.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,796 Championing

    That Steve on YouTube just gets information from Google and stuff we see the same thing it's like that one from justice journals gosh can't say what her dramatationdoes to me the fact is we will know pretty soon understatement to say made us very very ill mentally physically a story can come out and by time it's done the rounds 10 other things added to it we are looking for answers and labour giving abstracts all we can hope for is MPS do the right thing what an awful time it is going to take a long time to come down from this and when you get lisa nandy going on tv saying everything is great noting is great within number 10 it's a boiling pot I hope she gets her day she's good girl slotted herself between them all try have a peaceful day

  • Danny123
    Danny123 Online Community Member Posts: 223 Empowering

    That women on justice journals spreads all sorts of **** .... Steve is a nice fella it seems but as you say all he does is read out articles from the internet , he's basically just reading from the articles , which is part of the problem really , I mean how many times have we been up one minute then down the next , all from media and newspapers that just pour petrol on the flames

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    I had to delete her Danny . She actually twists things for clicks . Steve doesn’t, he reports things as they come out on benefits and work etc . Rich on dynamic duo is good as he knows the process and used to work at the dwp .

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 2,052 Championing

    Hi Catherine,

    I had to delete her , she didn’t exactly tell the truth and clearly has a personal agenda against the dwp

  • Catherine21
    Catherine21 Online Community Member Posts: 9,796 Championing

    Omg to many times every minute of the day up then down awful draining my brain not worked to relax see how it goes it's wired to torment myself making situations in my head like watching a movie draining never felt so drained in a long time pls 🙏 be on our side

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