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  • chiarieds
    chiarieds Community Member Posts: 17,413 Championing

    Hi @secretsquirrel1 - the 'severe conditions' criteria is that which is already in the WCA handbook for Healthcare Professionals, so nothing new. It does say that the following is an example of a claimant that might not qualify:

    'Conditions which might be severe at times, but recovery of function might be present for substantial periods, such as recently diagnosed relapsing non-progressive forms of Multiple Sclerosis.'

    This was why I previously gave you an example of someone who might have MS, but had had a long period of remission.

    I think the use of the word 'remission' could however be open to question. I was reading a paper about fibro this afternoon, & it seems in this medical context, no-one has actually defined what this is, how long it lasts, & that even someone considered to be in remission still likely has a background of some fibro symptoms. And, those who have a comorbid condition (like your ME) are usually those who are worst affected anyway.

    So many of us have more than one disorder like mine. It's been found (from medical papers) that those of us with Chiari 1 Malformation associated with Ehlers-Danlos Syndrome (EDS) are worse affected than with 'just' EDS. This will be so true for many claimants.

    Please don't worry, if you have never been in remission (& I think this would have to be for years), then your ME doesn't 'fluctuate,' tho everyone will be different.

    We'll have to wait until 1 July to see what's going to happen. Last I heard was that 137 MPs (not all Labour) were against the Govt's proposals. I think the Tories will also oppose, but we'll have to wait & see.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Thank you 🙏

    I know having so many conditions and all their symptoms you don’t get a break for a single day . We simply wouldn’t know if the fatigue is for which condition on any particular day if that makes sense .
    Hopefully this won’t even go through. 🤞🤞

    When I was being treated for ME I was told the main symptom is fatigue and for fibromyalgia it’s pain . That’s when I was assessed for fibromyalgia due to my pain being as prevalent as the fatigue.

  • YogiBear
    YogiBear Community Member Posts: 410 Pioneering
  • YogiBear
    YogiBear Community Member Posts: 410 Pioneering

    They did say who the Labour MP was on line. I tweeted this to her 'Your entitled to withdraw your name. Now you're going to have to go back and explain yourself to your constituents (many who are vulnerable). Your constituents will not forget this come GE time.'

  • YogiBear
    YogiBear Community Member Posts: 410 Pioneering

    I didn't want to say her name. However it's all over X.

  • YogiBear
    YogiBear Community Member Posts: 410 Pioneering
  • johnnyy85
    johnnyy85 Community Member Posts: 269 Empowering
  • johnnyy85
    johnnyy85 Community Member Posts: 269 Empowering
    IMG_7050.png

    Says we can win today ?

  • waylander9602
    waylander9602 Community Member Posts: 77 Empowering

    Thank So much for this post! 😃. It has lifted my spirits somewhat.

  • luvpink
    luvpink Community Member Posts: 5,328 Championing

    It will be interesting to hear PMQT's today with Rayner

  • egister
    egister Posts: 1,102 Pioneering

    https://www.bbc.com/news/articles/c335406gxdvo

    UK to purchase nuclear-carrying fighter jets

    The UK government is to purchase 12 new fighter jets which can be equipped with nuclear bombs, and join Nato's airborne nuclear mission.

    Downing Street says the move is "the biggest strengthening of the UK's nuclear posture in a generation".

    The new F-35 A jets can still carry conventional weapons, but have the option of being equipped with US-made nuclear bombs

  • lincsgranny
    lincsgranny Community Member Posts: 201 Empowering
  • johnnyy85
    johnnyy85 Community Member Posts: 269 Empowering
  • lincsgranny
    lincsgranny Community Member Posts: 201 Empowering

    Lindsay.hoyle.mp@parliament.uk

    Ive sent him a email asking him to not punish people with disabilities

  • Zipz
    Zipz Community Member Posts: 4,345 Championing

    Kemi's three demands are wicked. Starmer cannot work with her. He would lose the support of even more Labour MPs and probably junior ministers in both Houses.

  • Zipz
    Zipz Community Member Posts: 4,345 Championing
    edited June 2025

    @lincsgranny The Speaker has minimal (if any) power to punish/ not punlish disabled people. His function is to support the will of parliament (not the government). In fulfilling his role, the most he can do is accept the ammmendment at the time of the Second Reaading of the Bill to enable MPs halt the Bill or let it move on.

  • waylander9602
    waylander9602 Community Member Posts: 77 Empowering

    Soooo it IS a money bill.

  • Amaya_Ringo
    Amaya_Ringo Community Member Posts: 408 Championing

    The comment in the Times this morning from Reeves that the rebellion will 'devastate' the government.

    Maybe think of that before devastating disabled people's lives.

    This itself is not a no confidence vote, however. Voting on/against the welfare bill does not constitute a vote of no confidence in the government. There would have to be a vote of no confidence explicitly levelled at the government in order for that to happen.

    The Labour MPs opposing this bill have not necessarily opposed Starmer on other bills, and are not necessarily of the mind to call a vote of no confidence. They also have a good majority, so I think if it did come to that stage, Labour MPs would protect their own interests and vote against the motion.

    This is scaremongering to try and frighten the rebels back into line. It's pretty disgusting but I don't suppose it will work if nothing else has.

    The answer for Starmer is to back down and scrap the bill, engage with disabled people in a full consultation, invest in employment equality and then come back to the discussion in a year or two.

    If there is an election, by the way, it is very bad news for us given Reform's surge in the polls and Farage's desire to eradicate the majority of the welfare state, as well as equality legislation. Labour even in their current state are a safer option because there are so many Labour MPs trying to change the rhetoric.

This discussion has been closed.