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Hi chiarieds,

I read somewhere earlier, can’t remember where , about ME being classed as a fluctuating condition therefore not eligible for the scc as its only for conditions they can’t have periods of remission . Although my ME has never been in remission for a single day .
Kemi has also given an interview on bbc news stating it’s not up to her to save starmers bill . Not sure if it was taken out of context though. My brains not working after all this so hope I make sense

Hi @secretsquirrel1 - the 'severe conditions' criteria is that which is already in the WCA handbook for Healthcare Professionals, so nothing new. It does say that the following is an example of a claimant that might not qualify:

'Conditions which might be severe at times, but recovery of function might be present for substantial periods, such as recently diagnosed relapsing non-progressive forms of Multiple Sclerosis.'

This was why I previously gave you an example of someone who might have MS, but had had a long period of remission.

I think the use of the word 'remission' could however be open to question. I was reading a paper about fibro this afternoon, & it seems in this medical context, no-one has actually defined what this is, how long it lasts, & that even someone considered to be in remission still likely has a background of some fibro symptoms. And, those who have a comorbid condition (like your ME) are usually those who are worst affected anyway.

So many of us have more than one disorder like mine. It's been found (from medical papers) that those of us with Chiari 1 Malformation associated with Ehlers-Danlos Syndrome (EDS) are worse affected than with 'just' EDS. This will be so true for many claimants.

Please don't worry, if you have never been in remission (& I think this would have to be for years), then your ME doesn't 'fluctuate,' tho everyone will be different.

We'll have to wait until 1 July to see what's going to happen. Last I heard was that 137 MPs (not all Labour) were against the Govt's proposals. I think the Tories will also oppose, but we'll have to wait & see.

134 MP's so far.

They did say who the Labour MP was on line. I tweeted this to her 'Your entitled to withdraw your name. Now you're going to have to go back and explain yourself to your constituents (many who are vulnerable). Your constituents will not forget this come GE time.'

That's good.👍️

Says we can win today ?

It will be interesting to hear PMQT's today with Rayner

Kemi's three demands are wicked. Starmer cannot work with her. He would lose the support of even more Labour MPs and probably junior ministers in both Houses.