Scope's reply to the governments planned concessions to the green paper.

13435363739

Comments

  • chiarieds
    chiarieds Community Member Posts: 17,413 Championing
    edited July 2025

    Hi @secretsquirrel1 - I just thought to check to see what was on the parliament website, & saw the Gov't has today deposited their amendments to the Bill. On looking through when I saw that this amendment now includes 'fluctuating conditions' as one of the accepted criteria for 'severe conditions' I thought you'd like to know. So some good came of the debate before voting on the 2nd reading of this Bill as this was mentioned then as I mentioned!

    Unfortunately they haven't changed their use of the word 'constantly,' but accepting some claimants with fluctuating conditions could satisfy the 'severe conditions' clause somewhat negates that, so it's a good (& fair) amendment.

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    It’s certainly good news as so many conditions fluctuate. I’m up and down every day but for those who have times of remission it’s just as important as having less stress and having a sense of security can help a person to have fewer set backs . Thanks so much for thinking of me and others of course .

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Hi mean

    Chiaried just uploaded a link where it said they’ll be taking into account fluctuating conditions so 🤞fingers crossed

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Thank you Catherine . I hope I’m kind but I can’t be towards those that are not kind back . I’ve never received one email back from here . I’ve emailed and said read the comments people are terrified. She and the others don’t care about us . She’s all smiles today and yes maybe putting on a brave face . But she’s not going to be homeless or hungry is she ?

    And you are a strong person Catherine, you’ve really worked hard emailing everyone. And you get results and respect too . They always reply to you . Me not so much 😂

  • apples
    apples Community Member Posts: 562 Empowering

    Hi Catherine, I’m fine thanks how are you? I emailed my mp as she was originally opposing but I saw a list on Facebook and she was an aye with the late concessions but she’s not replying

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Christied said they’ve made changes such as fluctuating conditions for severe criteria. I’m trying to de stress if I can as I think they’ve seen they can’t just do what they like . It’s been over a year of this now. I’m trying not to add another year to this now .

    How are you Catherine ? I hope you’re resting and trying to do something fun like watch a good horror movie. You’ll burn yourself out if you don’t ❤️

  • Hopeless
    Hopeless Community Member, Scope Member Posts: 1,039 Pioneering
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Yes we need a break to refresh Catherine. You can always pm me if you need to talk ❤️

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    edited July 2025
    The user and all related content has been deleted.
  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    edited July 2025
    The user and all related content has been deleted.
  • bellatango
    bellatango Community Member Posts: 124 Empowering
  • YogiBear
    YogiBear Community Member Posts: 410 Pioneering

    Just read that on X. I wonder who else will following her?

  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    Daily mail

    IMG_1876.png
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing
  • apples
    apples Community Member Posts: 562 Empowering

    just seen on Facebook disability page, Darren Grimes Reform has posted stats people claiming pip for mh and autism etc 😡

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    The user and all related content has been deleted.
  • geckobat
    geckobat Community Member Posts: 204 Empowering

    As usual, far too many people have no understanding of these things at all.

    Or they are people who have experience but their troubles are minimal so they give the 'if I can work like normal without claiming then so can everybody else.'

    Then people congratulate them with 'you're one of the good useful ones.'

  • Amaya_Ringo
    Amaya_Ringo Community Member Posts: 408 Championing
    edited July 2025

    Unfortunately autistic people, people with MH conditions and with other invisible disabilities are always the butt of this kind of comment. Because instead of promoting inclusion and awareness, our media likes to peddle misinformation and overdiagnosis tropes that have no basis in fact.

    Meanwhile Reform councillors have been costing the tax payer 10k per go each time one quits and forces a local by election. I forget how many it is now but it's more than ten. That's more money than any person gets on PIP for a whole year even on the very top level.

    …So maybe they'd like to stop spewing about what disabled people are legitimately doing and ask their councillors why they're capable of playing a game of popularity contest but not actually doing the job that comes with it?

    The people who say "I'm fine so you should be too" don't understand disability :/. But there are also a lot of barriers in place for people who can/want to work because of the assumptions about capability and the ignorance from employers. Buckland report did a great job of exposing those for autistic people.

    As an autistic person who is working, I'm really lucky in my team and with my manager - but I have seen and experienced first hand the things employers will do to avoid employing a disabled person.

    And that's if you even get to the interview. Even some disability charities don't practice very accessible recruitment :(

    And just because I work, it doesn't mean that's always easy or that I glide through it then have a wild party on my off days. I literally have a list on my fridge right now reminding me which bus stop I need to use on which day to catch the right bus to work for each shift - because my navigation means I get easily disorientated and I have legit ended up at the wrong one before now. :/ And reminding me to go to work tomorrow because I have swapped a day and so am not on my usual timesheet. That's before I even get to work, so yeah.

  • Autumnleaf
    Autumnleaf Community Member Posts: 1,001 Empowering

    I understand the reasoning about prioritising the substantial risk group for assessment, but would that help for those on C-ESA plus PIP? Because, if they're going to using the PIP assessment in future how would turning you down for ESA help them?

This discussion has been closed.