No sleep

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Comments

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 15,415 Championing

    they have to make it so hard so people don't take advantage of the system

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    There is an article online today stating that thousands of people have had their pip benefit stopped.This makes no sense either if they still qualify and meet the criteria.

  • Albus_Scope
    Albus_Scope Posts: 11,423 Scope Online Community Coordinator

    Can I ask where you saw this article please @Jane315STARX ? There's a lot of sites that are less that reputable out there who are putting out inaccurate information to get clicks.

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    It's just occurred to me that many years ago ( when I was rejected for pip after having Dla) I dont remember having seen my report.I imagine there must of been one but I wasnt mentally well enough to even know about it or follow things through.But im guessing what ever that said has still got on things today based on what someone else has told me on here.Which is even more ridiculously unfair.The assessor said that she made her decision using information about my health condition (not plural) including details of treatment medication test results and symptoms.This simply cannot be true aside from discussing my medication she didn't ask about symptoms or test results. My GP has no knowledge of anyone contacting them in relation to my personal record.The assessor was knowledgeable about one of my illnesses and perhaps she is using me generically which is unfair.Also why award me Dla for years if I meet the criteria but not award pip when I still have the same condition and actually other illnesses.I just don't understand

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    @Albus_Scope yes it was Leeds live.It came up as a suggestion on my phone

  • Billiegoat
    Billiegoat Online Community Member Posts: 27 Contributor

    Hi Jane

    I can see its very stressful and you have said you are alone with this.

    I don't know your age but see if you can contact a benefits advice agency, citizens advice bureau or someone like Age UK for help.

    Speaking from personal experience it can be difficult to do something like this alone. It might be helpful to try and take the emotion out of it. The emotion can make you ruminate on the problem and it just makes it worse. You might benefit from having someone help who can help you look at it in the cold light of day otherwise this will just go round and round in your head.

    I hope this post doesn't offend or upset, its not my intention, just trying to help.

  • poppy123456
    poppy123456 Online Community Member Posts: 64,458 Championing

    DLA and PIP are both completely different benefits, with different criteria. DLA was about day and night time care needs, PIP is about the descriptors and scoring points, if you meet those descriptors. Being entitled to DLA doesn't mean you're entitled to PIP. I'm not saying you're not entitled to PIP of course because I don't know exactly how your conditions affect you.

    I do think however, that you should try your best to move on from what's happened in the past because being stuck there isn't going to help you move forward with fighting this PIP decision.

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    Oh I didn't know that actually and you are completely right it's not helpful my dwelling on the past.I will take this advice.Sometimes it's helpful to hear what you need to from someone who makes sense

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    I was given some advice this morning from a pip advisor from my Dr Surgery.This was that the M.R letter I sent off was basically not good enough and I was reliant on them to contact my g.p which they wouldn't do.So I have now sent off my medical summary which apparently helps.Atleast I feel like I've done something useful.Apparently a full one would take 28 days so I sent this but it's 133 pages long so I'm hoping it'll cover what they need and nowhere does it say that I need a Warning card like it said in the assessors report.

  • poppy123456
    poppy123456 Online Community Member Posts: 64,458 Championing

    133 pages? blimey, that's an awful lot to read. Did you read through before you sent it? Less if often more when it comes to evidence. I always say, if it's not relevant do you need to send it and sending multiple pieces of evidence all saying the same thing isn't helpful.

    Please put the assessors report behind you because it's not going to help.

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    I started reading the first page which stated current diagnoses then list of previous etc then following page obviously list of medications.I skimmed through the next to see what they all were and it appeared to be when I have had tests,been in to hospital,some very vital back ground history ( I think) which will demonstrate that what I have put in mandatory consideration basically matches. Although I'm under no illusion that they'll still say no as I've read every post and thread on here relating to this subject now and on the Internet and percentage is beyond low.I just felt that it was extremely unfair how I have been treated aside from not being awarded that I the report was factually incorrect in places and I feel my trust totally broken.But I have taken your good advice in board Poppy and I have moved on from that Report and this is my way of dealing with it I suppose.Yesterday I felt able to function completely normally

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    I thought I'd best send them all as it said pages 1-133 and I didn't know what the protocol was.I thought incase they requested the other pages and to save holding up more time I'd send the whole bundle

  • Catherine21
    Catherine21 Posts: 8,552 Championing

    What's a warning card pls well you certainly sent enough evidence x

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    I can only assume that a warning card makes others aware of a condition or illness you may have.Its insinuating in my report that I may lose consciousness ( which is highly unlikely and totally irrelevant to ANY of my illnesses)and therefore I do not and never have had a warning card.This may ( I imagine apply to someone who has epilepsy).But I'm not a medical professional

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    I also sent a separate letter from a new consultant who diagnosed me with a new condition on December 12th.I did mention this to the assessor that This condition affects me and how and the probability of a full diagnosis.

  • Jane315STARX
    Jane315STARX Online Community Member Posts: 976 Pioneering

    But as I said to Poppy I am realistic in knowing now that they are still going to reject anything I send or tell them.After some of the staggering stories I've heard it has prepared me.I