Upcoming changes to benefits

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Comments

  • jbss07
    jbss07 Online Community Member Posts: 19 Contributor

    Hope everyone is safe. I'm not sure what to make of any of it to be honest... I'd be interested to try work safeguarding benefits entitlement, but how long would a trial be as my conditions fluctuate from hours to days. They are ever present, and won't get better unless I was given extensive dbt therapy for trauma I've endured & intensive support throughout. Is the government proposing to help with a joined up NHS service & work trial? That's the only way I could see this working. Last time I was placed with a key worker they let me go, how can the government guarantee once signed up they'll stick by their word and not ditch the mentally unwell.

    What about unscrupulous employers who sign up to say you'll get a job then overwork people, if I burn out I'm out the door? And back to square one?… Would the entitlements still apply in that case? This has massive repercussions on both the disabled individuals and employers, should they be willing to offer genuine support and a job at the end of trial. Really need to see the detail before anything more can be said.

  • tcellmutation
    tcellmutation Online Community Member Posts: 292 Empowering
    edited March 16

    I respect your time and effort for the post but again, i am on full PIP, enhanced for both daily living and mobility. I do not get £260 increase every year. I do not know where you are getting this from. Are you getting weeks mixed up with months??

  • Amaya_Ringo
    Amaya_Ringo Online Community Member Posts: 254 Pioneering
    edited March 16

    Yes, I think it was :)

    I work in an environment where it's useful to be highly literate and where IT skills are important. But there are also parts of my job that I avoid because of the logistical struggle to complete it, even though they're not considered 'hard' by my colleagues. Fortunately I work in a supportive environment and we all balance each other out - there are other tasks I can do more quickly than some of my colleagues can - but it just shows how blanket assumptions about disabilities are not helpful in working out what someone can do as a job. All workplaces are complex. It's not about 'mild' or 'serious' or 'profound' anything. It's about whether your skills are suited or not.

    And if you have a fluctuating condition, even more so. I definitely have days my executive function is worse than others. On those days I am extra careful about how I complete my workload. I am also better in the morning, so I have asked my colleagues to schedule more complex tasks in the morning session, even if it means I often take the busy shift. These are all reasonable adjustments which were decided informally in my workplace among ourselves, because my manager is lovely and my team are great. But how many workplaces are willing to really sit down and do that with each and every disabled jobseeker?

    I can also only work part time. Right now I work 21 hours a week, which is 3 full days. My bus is so bad that getting there and back is an extra 2 and a half hours travelling and waiting around on top of that. I often get in from work and crash for an hour or more. Many advertised jobs expect full time or are not as flexible as they advertise - which counts out people like me. The most I have ever managed to work is 25 hours. Any more than that causes complete burnout meltdown, which ultimately led to me leaving the position.

    This is why they need to speak to us, not to the media or to "organisations" about work.

    I have no confidence in people who don't even understand the disabilities concerned to make the right decisions for our dignity or quality of life.

  • Summerlove
    Summerlove Online Community Member Posts: 96 Empowering

    It's the treatment by the system but cruelty asid if they want logic

    It doesn't make economincal sense.

    Take PiP lots are single the idea was to keep you out of mh hospitals or going in care homes.

    Those that are single and need carers they pay them a miniscule amount this save government billions if you add up costs of care support placements which are mostly for profit now so one placement can cost thousands a week .Most mh hospitals are also private contracted and can cost thousands . Thanks to 'Lady' Thatcher taking it out of council run and into private hands who can charge what they like for the worst conditions . It's cheaper to keep people independent at home and Pip gives them a choice.

    That's why if you are admitted in an institution for 28 day your Pip stops because it costs them so much money even on nhs.

    If they start tightening Pip up anymore and take people's independence away they better get out their wallets because the costs are eye watering .

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 288 Empowering

    why do you think they didn’t go down that route , especially as it’s a benefit for those who work too?

  • Middleton
    Middleton Online Community Member Posts: 152 Contributor

    I've been on enhanced since first applying for PIP; the award goes to 2028.

    To keep this short, I handed in over 99+ pieces of supporting evidence(it was even remarked on by the assessors lol)

    PIP have scrutinised everything to the nth degree ! -specialist contacts etc.

    So with all these changes and the obvious chance of errors in assessments; the overall unfairness in certain cases. How would someone with constant variable symptoms that will never cease; somehow manage the costs of living after their money is reduced ,or entirely cut. How would someone manage to survive?

    Especially if they have no friends or family.

  • bellatango
    bellatango Online Community Member Posts: 1 Listener

    Im on enhanced living and mobility and the weekly increases from 2018 - 2025 are

    PIP

    LIVING

    85.60

    87.65

    89.15

    89.60

    92.40

    101.75

    108.55

    110.40

    MOBILITY

    59.75

    61.20

    62.25

    62.55

    64.50

    71.00

    75.75

    77.05

    WEEKLY

    145.35

    148.85

    151.40

    152.15

    156.90

    172.75

    184.30

    187.45

    WEEKLY INCREASE

    3.50

    2.55

    0.75

    4.75

    15.85

    11.55

    3.15

  • apple85
    apple85 Online Community Member Posts: 874 Championing

    sadly I only have benefit rise with inflation figures for 2025/26 year

    The dwp wanted to start any pip rise in 2026/27 which there no data for that financial year yet (nor the 27/28 or 28/29 years) - though with everything going on in the world yearly inflation could be much higher than then the % used for benefit up-rating this financial year

    I’d love to have the future data so I can give you all more accurate sums (though it may overwhelm some of you if I calculated to the pence

    I put my hand up and say I’ve never had training in accounting or being a economist

    But my maths skills are pretty solid

    Also cpi was messed up in terms of 2025/26 welfare uprating - the state pension got the full 4% rise but reeves/kendall fiddled a bit with the exact dates used in calculating cpi for incapacity benefits (which I think pip is included in that but I’m not sure)

    More explanation see below:

    https://researchbriefings.files.parliament.uk/documents/CBP-10105/CBP-10105.pdf

  • tcellmutation
    tcellmutation Online Community Member Posts: 292 Empowering

    So it's a total of £163.80 per year increase for someone on enhanced / enhanced for 2025 / 2026

  • Summerlove
    Summerlove Online Community Member Posts: 96 Empowering

    Then you got those who work and get PIP who will not be able to work adding to the dole queue.

    all that tom ake a saving of £6 billion

    End up costing around 200 billion.

  • MW123
    MW123 Scope Member Posts: 954 Championing

    They likely avoided that route because reducing a benefit like PIP, which supports both those in and out of work, could discourage employment rather than promote it. Many individuals rely on PIP to manage the extra costs associated with their health conditions whilst working. Cutting it might unintentionally penalise working individuals with disabilities, undermining efforts to make work more attractive and accessible for claimants they are encouraging to give work a try.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 288 Empowering

    I don’t think they’ve considered that our carers will have to work and government will have to pay at least minimum wage for a carer .

  • Santosha12
    Santosha12 Online Community Member Posts: 437 Empowering

    @worried33 I don't know how to link im sorry, it was mostly management jobs, there was only 2 pages. Bottom of first page was an admin type job in Wrexham. I think it was the second page that was work coaches jobs or the work psychologist that refers to work coaches.

    I'll be posting very shortly re Equality Act 2010.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 288 Empowering

    I have ME and fibromyalgia plus other conditions as secondary. My conditions fluctuate throughout the day . I literally never have a good day . Always pain somewhere and always fatigued. Is Wes steering going to find a cure where my specialist was able to ?

  • tcellmutation
    tcellmutation Online Community Member Posts: 292 Empowering
    edited March 16

    Looks like the average weekly PIP rise for enhanced / enhanced over the last 8 years was £6.01

    I think i should 🤐🤣

  • axab43
    axab43 Online Community Member Posts: 23 Connected

    Do you know where the new point system is shown?

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 288 Empowering

    but by removing pip altogether is worse . Are they just incompetent are evil ? Maybe a bit of both

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 288 Empowering
  • Middleton
    Middleton Online Community Member Posts: 152 Contributor

    We have similar diagnoses 👍.. I'm back in St Thomas' London again in 2 weeks time.

    Maybe i shouldnt go, as these cuts will miraculously make my symptoms disappear😎

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 288 Empowering

    I was diagnosed years ago at the royal free . CBT, GET , activity management. Nothing worked in fact they made me feel worse. GET couldn’t even start as my ME never stabilised and it’s dangerous to exercise with ME so I was told . Exercise ( walking about not real exercise) helps fibromyalgia pain but then fatigue kicks in so it’s back to bed . Then wake up aching again and so on