Upcoming changes to benefits

I think my diagnosis was about the same time but the specialist worked out I had mild ME from age 21 but became reinfected and it made my ME highest level of moderate. If I get glandular fever again I could end up even worse.

I’m currently going out of my mind, if I loose lcwra I’ll be homeless. I can’t do this :( so fed up with it all, not ate in days, I don’t sleep as it is due to insomnia. Now I’ve not slept in 3 days 😭😭 yeah I’m only 23 yet I’ve been ‘living’ with my anxiety for years

My question then, and forgive me if I’m being dense everyone, is would this be 4 points on PIP as a whole or 4 points for each section (Daily Living & Mobility)?

For instance, I get 18 points for mobility, an 8 and a 10, and currently 10 for Daily Living (though that is going to appeal) - With five lots of 2 points each.

If I get another 2 points elsewhere for the 12 at my appeal, when it’s next reviewed would I still get enhanced for Daily Living as I got more than 4 in Mobility?

Or would I suddenly be ‘cured’ and drop to nothing for Daily Living because I get no more than 2 points in each section of it? It’s madness!

I’m so sorry you’re going through this!

Remember, we don’t actually know what’s going to be announced, and we might not lose LCWRA (or if there is a cut, it might not be as much as we’re worried about) so hopefully it’ll be better than expected and not our worse-case-scenario 💜

It definitely makes everything harder. Thankful that some understand at least

if it’s going to appeal does that mean you’ve already put a review form in ? Cos if you have I don’t think it would change to any new system they’ve planned as nothing has been passed yet .

The way I read the points and I could be wrong but it’s 4 points on one question then any 4 points on other questions so 8 total for lower

4 points one question plus 8! Points for other questions total 12

I haven’t read anything on mobility but the points are different on that . It’s strange but I haven’t seen anything regarding motability at all .

I don’t think I even have an award letter . I remember they assessed me every 11 months for about 3 times. 3rd time they called to say they’re doing paper review. I kept esa and haven’t had an assessment in about 7 years or more .