Upcoming changes to benefits
Comments
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just saw this Catherine. Hope you’re ok . At least tomorrow we will know where we stand and so will ppl like Ellen Clifford .
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that’s what I keep telling myself - at least tomorrow we’ll know
If there are cuts, for example, it’ll make me panic but it’ll also mean I can look at my budget and know how much I’ll actually have to spend etc
Weirdly that’s somewhat better than not knowing 🥹
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I think my diagnosis was about the same time but the specialist worked out I had mild ME from age 21 but became reinfected and it made my ME highest level of moderate. If I get glandular fever again I could end up even worse.
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I’m sure this has been mentioned somewhere, but when the green paper is out and Scope have had a looksi, will they post an easy-to-understand break down of it on the forum?
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I’m currently going out of my mind, if I loose lcwra I’ll be homeless. I can’t do this :( so fed up with it all, not ate in days, I don’t sleep as it is due to insomnia. Now I’ve not slept in 3 days 😭😭 yeah I’m only 23 yet I’ve been ‘living’ with my anxiety for years
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And if you do you suffer for it afterwards
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My question then, and forgive me if I’m being dense everyone, is would this be 4 points on PIP as a whole or 4 points for each section (Daily Living & Mobility)?
For instance, I get 18 points for mobility, an 8 and a 10, and currently 10 for Daily Living (though that is going to appeal) - With five lots of 2 points each.If I get another 2 points elsewhere for the 12 at my appeal, when it’s next reviewed would I still get enhanced for Daily Living as I got more than 4 in Mobility?
Or would I suddenly be ‘cured’ and drop to nothing for Daily Living because I get no more than 2 points in each section of it? It’s madness!1 -
I’m so sorry you’re going through this!
Remember, we don’t actually know what’s going to be announced, and we might not lose LCWRA (or if there is a cut, it might not be as much as we’re worried about) so hopefully it’ll be better than expected and not our worse-case-scenario 💜
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I agree , it’s not knowing that’s worse . But I’m sure it’ll take time to come into effect , if it comes in .
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It definitely makes everything harder. Thankful that some understand at least
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There are some in the UC LCWRA group ( ESA Support Group ) who are in a 'severe conditions category' ( it can be Googled ) whereby they are completely exempt from further assessments - this is apparently explicitly set out in their award letters. It 'may' or 'may not' be those claimants who will be 'protected' from a rate cut tomorrow or they will be given a new named health benefit.
All will be revealed tomorrow.
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Can I just say how grateful I am for this forum? It feels like such a safe space and I’m so thankful for all of the support from everyone ❤️
I hope everyone is looking after themselves tonight. I feel too worked up to sleep… I’m in bed waiting for my meds to kick in
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One other thing I don’t know if the Decision Makers take into account - I know everyone’s conditions are different, but I also have supposed ‘lower level’ illnesses like Autism & ADD which I could deal with, even if it was a struggle, while I was fit and healthy.
However now I’ve got long covid, COPD and other illnesses that have taken all my energy, I don’t have the same reserves to deal with problems I could ‘manage’, albeit with great difficulty, when I wasn’t sick. Will that be taken into account?0 -
This is the category I would fall into
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@FluffyCatMeow I guess so, but if I loose any of the money I won’t be able to afford anything :( will it take a vote in parliament to change the amount people are paid? And if they plan to do that, then why did they increase it for April x
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if it’s going to appeal does that mean you’ve already put a review form in ? Cos if you have I don’t think it would change to any new system they’ve planned as nothing has been passed yet .
The way I read the points and I could be wrong but it’s 4 points on one question then any 4 points on other questions so 8 total for lower
4 points one question plus 8! Points for other questions total 12I haven’t read anything on mobility but the points are different on that . It’s strange but I haven’t seen anything regarding motability at all .
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problem is there are people out there tonight who are worried sick by all this and I’d bet there are people who can’t take much more of this I work and have pip but I think I will lose everything I have and I feel what all you are feeling xxxxx
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I don’t think I even have an award letter . I remember they assessed me every 11 months for about 3 times. 3rd time they called to say they’re doing paper review. I kept esa and haven’t had an assessment in about 7 years or more .
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yes it’s kept me sane
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it’s a vicious circle. You can’t do anything cos of fatigue ( both physically and mentally) then the fibromyalgia pain is worse cos you haven’t done anything. You can’t win
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