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Hi, my name is lori! 5 year old son struggling in school - ADHD and ASD
my son is 4y10 months, 5 in January. He recently started reception in September however has attended the school including the nursery since 3. He has struggled throughout this time and I have been having TAF meetings for 1.5 years. He does not have a diagnosis yet but school suspect he has ADHD and ASD. Dad also has ADHD.…
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No carers element when on Lwrca as a single carer
I think it's a shame that as a disabled single carer you cannot claim the carers element/allowance ( not sure what it is actually called).But if you had a partner one of you can claim.As my child constantly breaks things and although I get his dla.By the time I've now got this new u.c my income is down and struggling so…
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Adoption application
My wife and I are beginning to look into adoption, but I’m feeling anxious that my disability might affect our chances. I have hEDS, POTS, and IIH, and I’m an ambulatory wheelchair user. We’re planning to go through our local authority (Southwest), and I’d love to connect with anyone who has been through this process as a…
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Hi, my name is jgidi!
My 9yr old autistic grandson finds it difficult to fall asleep at night. Never ask about day time, he rarely takes a day time nap. He wakes up early and falls asleep late. Will it help if I am a bit more strict with the bedtime routine or be a bit more flexible?
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Hi, my name is mumeedin! Could my daughter be autistic or is it PANDAS?
Hi my daughter is 12, up until this year - no issues at all. Last June she had a violent vomit episode (she'd not been sick for 11 years) and since then shes had increasing nausea. Its now at the point she only eats chicken tenders, waffles, raspberries and choc brownies. She wont leave her room. Hasnt started high school.…
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Hi, I need some advice for childcare
I’m really hoping someone can help. I was made permanently disabled in a car crash when my daughter was 3 months old. My plan has always been to return to work when i finished mat leave but life’s been a lot more complicated. I’m now running out of stat sick pay and I’m realizing I’m not well enough yet.. My daughter goes…
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Hi, my name is Moggy1964! son age 34 with learning difficulties, how can I get him assessed?
Hi I have a son age 34 with learning difficulties . I have been to my doctor to see if he can be assessed .but they said no . He need this so he can get help finding a job and help in the future, he was on special needs at school but no-one has said what is has . How can I get him Assist or tested .
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Helping finding PA for my 10 year old son
Im looking for a PA for my 10 year son just a few hours a week. He has ADHD and ASD and suffers with extreme anxiety. Im looking for a young adult with a caring nature and good sense of humour to support him to attend group activities. Where could I look for/find such a person? We're in st Helens, thank you :)
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Paying for things....
I'm in a bit of a quandry at the moment. We have two disabled adult children living with us who seem to have grown up without me noticing. Both of them have benefits in their own names. My husband is also seriously disabled and I'm full time carer for all three. My quandry is this - we're hopefully moving house in the next…
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Parents in Law - help
My wife (and carer) lives about 140 miles away from her parents with me. Her mum was rushed into hospital on Wednesday - leaving her dad (aged 96) home alone - we don't think that he can survive on his own - what do we do ? We can't go up to collect him at the drop of a hat - and he has no other support…. Worried is not…
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From DLA to PIP
Hi Everyone My son has Diaplegia Cerebral Palsy he needs the daily use of AFO's/splints on his lower legs to be as mobile as it is possible ,the health professional are concerned however going forward that his needs will get greater He turned 16 three weeks ago & I had a letter asking him to apply for PIP which we duly…
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Covid booster just finished antibiotics
My covid booster is due tomorrow, I've just finished antibiotics, amoxicillin, does anyone know if I can still have my booster jab, can't get an up to date answer on Google. Any help would be much appreciated. Thanks
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Can I have childcare costs paid if I get LCW.
Hi everyone I’m currently self employed. I heavily rely on UC to cover my childcare costs. Will I still be entitled to the childcare costs if I start receiving LCW, so I can work but with adjusted hours. Thank you in advance.
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Carers allowance
If carers allowance is £354.why am I getting £327 per month. Thanks
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Help with aggressiveness
Hello, I am Dumisani's mom, a 7 year old boy with autism and would like to join a cmmunity that shares about autism and related conditions. Dumi, is verbal and in between level 1 anbd 2 , his language skills are improving but we're struggling with aggresivenes, he hits , bites and kicks and can't take instructions,…
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At wits end
Hello my name is Babs and I am new here. My mum passed away 11 years ago and my brother went to live with my sister and her husband as they had the facilities to care for my brother. They are now in their late 70s and my sister is having chemo for breast cancer and is very ill. We asked social services for respite and they…
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What do families want from Scope?
We would like to know what families need from Scope so we can plan to meet those needs. Please select from the list of suggestions below and/or add you your own suggestion at the bottom.
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Child health visitor
Hi all. Can I get some advice please.I've had a call about a health visit for my 1yr baby, They want to see him etc, can I refuse a visit? And do the health visitors communicate with the dwp- I am on LCWRA and haven't notified the dwp that my child is staying with me at the moment( I only found out i have another chill).…
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Court of Protection: Property and Affairs - Deputyship Application
Hello, My name is Daniel, in July 2023 my brother Sam (37 years old) was the victim of assault, resulting in a severe brain injury. We (myself, our mum, and Sam’s fiancée) are applying for a deputyship / to be deputies for Sam’s property and affairs. Sam doesn’t have much in terms of finances or assets, however, we are in…
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Hi, my name is mum002! Child's respite stopped suddenly with no alternative given
Hi, I've just found this forum. And looks like a wealth of information. I have 2 sons with high needs. 1 funded by council and 1 funded by chc. Such a minefield. My son who is funded by chc has just had his 1 night a week respite stopped with immediate effect with no thought to the detrimental effect it will have on him…
