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International Womens Day - Navigating Motherhood With A Disability with Sarah
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Three - Challenging Attitudes Towards Mothers of Disabled Children with Jenna As part of celebrating International Womens Day on the community this week, this is an interview with Sarah who is a Child and Family Specialist on Scope Helpline This…
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International Womens Day - Challenging Attitudes Towards Mothers of Disabled Children with Jenna
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Two - Navigating Motherhood With A Disability with Sarah For our final part of our week long celebration of International Womens Day, this is an interview with Jenna who is a mother to 2 disabled children. We hope this will help shine light on…
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What Do Parents/Carers/Families Want To See From The Community?
I am interested in what parents/carers of disabled children and their families want to see from the family side of the online community. This will let me know what content to create and how I can be most helpful for you and your family! Please vote in the poll or comment below what you would like to see on here from me or…
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Hi, my name is tired_mum! Hi, hope someone can give me some advice please. My 11 year old son...
Hi, hope someone can give me some advice please. My 11 year old son has been diagnosed with autism and has never really slept well. Over the last 4 months he has not slept much at all, we didn't sleep at all last night. He does not let me and my husband sleep as when he can not sleep he wants one of us with him. He gets…
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Teen who beat the online bullies. On a mission to improve wheelchair access
A great story during Cerebral Palsy Awareness month and to celebrate Purple Day for Epilepsy. A teen is on a mission to improve wheelchair access after seeing success of law against online bulling. Zac Eagling, from from Liversedge, West Yorkshire, has cerebral palsy following a brain injury at birth but that has not…
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Sitting in on a phone as an advocate for 17 year old son during PIP assessment
Has anyone else had a PIP assessment for their teen child ? I’m absolutely astonished with their lack of empathy for a 17 year old . I understand the process but she was grilling him to the point it reduced him to shock. I had to tell her stop and remind he was a 17 year doing an adult assessment. I said he had already…
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Hi, my name is Tootsie_cub!
Hi everyone. My 13 year old son has recently been diagnosed with mild cerebral palsy. It mainly affects his speech, balance, fine motor skills and coordination. Sadly he gets mercilessly bullied. All through his primary school years and now into high school, as well as out of school activities such as scouts. This has…
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Cerebral Palsy Awareness Month-Archie's Story
BBC-Same But Different. Archie's Story In this short film for primary schools we meet Archie, a ten year old boy who has cerebral palsy. Archie tells us how he views himself and how he would like others to view him. Archie plays wheelchair basketball, where he loves to socialise and be part of a team. Archie sees his coach…
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Eating Disorder Awareness Week- Types and Signs of Eating Disorders in Disabled Children
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Three As part of this weeks focus being Eating Disorder Awareness week, this post will look at some of the types of eating disorders, their traits and how to recognize signs of eating disorders in disabled children. Types of Eating Disorders…
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Eating Disorder Awareness Week - What To Do If I Am Concerned About My Childs Eating Behaviour?
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Two As we wrap up this weeks focus, this post is about the steps you can take if you feel like your child has an eating disorder or if you are concerned by your childs eating behaviours. This post also includes where you can find for additional…
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Social services the relationship has totally broken down.
Owing to historic issues that started when I was a child Social services got it badly wrong, I had one amazing social worker sadly she burned herself out and had to quit, things got worse in the end one social worker actually screamed at my mother who was getting over breast cancer to "get the hell out of the room", My…
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Please please give me some advice 🙏
Hi guys, I posted on here a few weeks back about my autistic daughter and got lots of advice.. so here goes... My daughter is 10 years old and has several learning difficulties and severe school anxiety. She has a EHCP in place, which is not helping with her anxiety. Every day is a struggle to get her to school and every…
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Disability Price Tag - Tips and Guidance for Applying for DLA - Parents and Carers
Part Two - Disability Price Tag - DLA Information for Parents and Carers Part Three - Disability Price Tag - Changing from DLA to PIP at 16 This weeks focus is the disability price tag of raising a disabled child so I am going to talk about the different benefits you might be able to claim as a parent. To help you get…
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Eating Disorder Awareness Week - Introduction For Parents and Carers
Eating Disorder Awareness Week - Part Two Eating Disorder Awareness Week - Part Three This week is Eating Disorders Awareness Week and often the intersection of disability and disordered eating can often go unnoticed but creates unique challenges. This is why we are making it this weeks focus. For many parents of disabled…
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Exciting Launch Event with Cerebra and Pedal Power
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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Hi, my name is Chamberlin_scope! I joined this group because I want to meet people like me...
I joined this group because I want to meet people like me who are in similar situations. I am in my early 20s, and my mother had her second stroke in 2013 and has been disabled since. I was 9 when I found her. She is the strongest woman I know. In recent years, things have become really tough for her, both emotionally and…
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International Epilepsy Day - Support and Signposting for Parents and Carers
As we wrap up our focus on epilepsy this week, I want to provide resources and support for parents of children with epilepsy. This post offers signposting to organizations that can offer further support, information and advice. Epilepsy Action Epilepsy Action provides information, advice and support to people with epilepsy…
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Hi, my name is Katiemc94! Any advice on pathological demand avoidance?
New here, my son is currently being referred for ADHD and ASD, not sure on the ASD but there is so many over laps the school advice to tick both boxes. He's symptoms have been so much worse the past month. I think this is due to my parenting style has completely changed. I have ADHD so very short fuse and explosive. Since…
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Hi, my name is cordicole! Any guidance on my son's behaviours?
I have a 7 year old son who I believe may be ASD he is high functioning and school haven't picked up on alot of things, but more symptoms present as he gets older and I am personally finding it hard to navigate some of his behaviours that are not dangerous to others but mentally self harming to himself. Need any help and…
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Children's Wellbeing and Schools Bill
I'd like to bring your attention to an issue that I have been working on since the 17th of December last year when the government decided to introduce a new bill that could potentially **** parents of their parental rights in certain situations. We approached Steve Broach Specialist Barrister KC when the changes to rights…
