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Hi, my name is maggines!
Hi everyone. I’m a new member of your community from today. I would like to briefly tell you my story about my son 10 years old with Downs Syndrome and ASD. He was born as a strong and healthy boy with small numbers of DS futures . Genetic tests confirmed that he has Trisomy 21. He was developing very well till he turned…
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Three year old boy with cerebral palsy running 500m to raise money for charity
Jacob Fallows, a three year old from Devon is running 500m around his school playground in 30 days. Jacob has spastic diaplegia cerebral palsy which affects his legs, but hearing his parents were running to raise money for his local school, he wanted to get involved. Read the full story here Devon News
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Depression
How do I deal with a depressed Wife/Carer ? She's got a history of depression but I've never seen her so bad before… Any advice please
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Children's Mental Health Week
It's Children's Mental Health Week this week (3rd - 9th February). What a great way to raise awareness of Children's Mental Health and Wellbeing. Each year the charity Place2Be run and organise this event to raise funds, and encourage people to get involved in spreading awareness of mental health in children and young…
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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Accessibility Project
I'm currently working on a project for college, looking at accessibility in clothing for disabled individuals and their carers. I'm going to post my proposal and a link to an online survey. It would mean a lot if some of you were able to fill it out to aid my research. I plan on working on this project further than college…
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Carers assessment, and applying for pip for myself
Hi, I am a carer for my disabled hubbie, who amongst a host of things is on dialysis, which is the major problem of the moment. In June I fell and broke my right shoulder, and my daughter had to come every day and help out for three weeks till I could get around without too much pain and just use my left arm. I found out…
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I would like the LA to consider a move to specialist school, how do I go about this?
I have a annual review for my sons EhCP and he is currently going to a mainstream high school in year 7, but is not coping and I have taken him out due to suicidal thoughts and started to self harm, my concern is now I have taken him out of school, he does not want to go back and I would like the LA to consider a move to…
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Hi, I am Jorj! My wonderful 7-year-old daughter is on the autism spectrum.
My wonderful 7-year-old daughter is on the autism spectrum. Just here to connect and maybe share experiences with others.
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A heartwarming story from Asda's Stockton store
Man with cerebral palsy steps in to help young boy with cerebral palsy. When an eight-year-old boy with cerebral palsy wasn’t sure if he had enough money to buy a big cuddly toy from our Stockton store, checkouts colleague Paul stepped in to help pay for it. Paul, who has cerebral palsy himself, said: "I told the boy it…
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I'm looking for information in relation to parents with disabilities, and an ongoing custody battle
Hi everyone, I'm Niki. I'm looking for any help/advice/support/document links/anything 😂 in relation to parents with disabilities. Very loooong story short, I am currently in a second bitter child arrangements case with my ex, who keeps filing with court to try and gain full custody of our toddler. He is using my health as…
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Hi, my name is LittleFlower1986!
hello, I have joined as I need good advice on a situatuation. My daughter has a disability, mostly neuro, overlapping migrainal/epilepsy disorders. After finishing 6 form school she went to college to get better marks for English/maths, this was over a 2yr period, she was on dla from 17yrs old, in 2016 she was put on ESA…
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Disability Price Tag - DLA Information for Parents and Carers
Part 2 - Disability Price Tag - Tips and Guidance for Applying for DLA Part 3 - Disability Price Tag - Changing from DLA to PIP at 16 - For Parents and Carers This information only applies to England and Wales. Disability Living Allowance (DLA) helps with the extra costs of raising a disabled child. You can claim DLA for…
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Support
hiya, my daughter was diagnosed with a progressive neurological condition at the start of this year. I’m finding it very hard to come to terms with and really feel alone in it. I would love to talk to other parents whose children have similar disabilities. For reference my daughter is only 7. Thank you.
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Advice on autistic child
I hope you're well. I’m reaching out to you for some advice, as I’m feeling unsure where else to turn. My daughter is 10 years old and undiagnosed autistic, though we are confident she is and shes been on MATT pathway a few years. She experiences extreme anxiety around school, and even stepping onto the playground is a…
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Everyone turned a blind eye
Hi to everyone yes Morgan everyone knew and my grandmother and community and the church knew Monday as children my brothers and I never went to school cause our school clothes was dirty and my mother was either beat up very bad blue eyes broken nose and broken lips weekend's we always used to sleep at my mother's friend's…
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Any Foster Carers here?
Hi all. I was wondering if there are any Disabled Foster Carers on here?
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Awaiting autism assessment for both son's
I've been really fed up ciz my little one has been awaiting a diagnostic assessment now for nearly 2 years now. I feel really let down by CAMHs who they are also under due to social and generalised anxiety and emotional dysregulation. It's been a really tough old ride. Does anyone else feel their precious children have…
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Help/advice
hello, I am a mum of 2 disabled children, my oldest is just physically disabled my youngest is non verbal and completely dependent, I cope very well with day to day life but recently I’m scared of them growing into adults I’m scared my oldest will be bullied and she understands everything and my youngest I worry who will…
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(18+ only) What's going on for me at the moment.
Please don't read if you are under 18 as this has things inappropriate for young people I have autism and some complex health issues. (me and another think is a mitochondrial disease due to some test results) I have gastroparesis, I'm tube fed, I have trouble swallowing, hearing loss, eye muscle weakness, fevers upon…
