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Continuing Healthcare - Inaccuracies on the report
I have recently received a continuing healthcare decision. I was wondering if it was possible to ask for corrections to be made in the report. I am aware I can appeal however I am more concerned about the inaccurate information in the report. Does anyone know if you can ask for corrections?
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Hi, my name is jon1108! Son with Duchenne struggling to keep up with friends
Hi, I am a dad to a wonderful son of 8 with Duchenne. He is getting really upset that he can't keep up with his friends at school, which is heartbreaking and I am struggling with how to support him. Thanks
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My young son who has CP, struggling with emotional regulation and settling into nursery
I’m looking for support/advise for my young son who has CP, struggling with emotional regulation and settling into nursery
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Any help getting a laptop for my daughter for college?
hi I’m struggling to get my daughter a laptop so she can do her college work wondering if u can help at all x
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Hi, my name is Hartley61! Needing help with my daughter. Formal complaint raised against LA.
I have my own challenges with MH however my main reason for this is to assist our 19 yo daughter who lives with PDA, OCD and SEMH and has done since 11 yo. We are currently fighting the local LA who continually fail to support us even though she has an EHCP and they are refusing (!) to come to mediation even though we have…
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Failing probation in a job
hi I am a bit upset at the moment, I suffer from severer osteoarthritis and was working from home as a customer service adviser, when I started this job the training was not that good and I have never worked with a energy supplier before, I had regular call scores but even though, I had a 100% calls and performance was on…
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Help with carers please!
Hello, I’m after some advice. I live with my disabled mum in housing association home. I’ve bought a house and she’s coming to live with me. It’s in a different authority. Getting her care transferred (4 calls a day) is proving to be massive stumbling block. Social workers say the new authority are dragging feet in…
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Spotlight On Rainy Days
The summer weather does not seem to want to stay! So we’ve been thinking about rainy day activities for our children (and us!) Many indoor activities can be adapted for disabled children and adults. Need to burn energy? Have a kitchen dance party. Enjoy making things? Cornflour, water and food colouring mixed together…
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Shouting in the garden at 2,3 or 5am
Hi just a quick query about what to do. My daughter who lives at home, is starting last year at uni. She also suffers from Epilepsy and POTS. To keep her epilepsy and pots controlled, she needs to get a good amount of rest and undisturbed sleep. As well, she must not overheat. Her window therefore, needs to be open. A…
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I need help/care but unsure where to go?
Are there any social care services that offer hands on help less than 35 hours? Im autistic and recently chose to live independently but not managing at all (big mistake). A family memeber helps me 1 day a week but I definitely need more, preferably an extra day. I dont have any friends or family available to help this…
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CAMHS assessment
Good morning, My daughter had a CAMHS assessment and we are waiting to hear their decision but during the assessment they asked about family history and I told them I'm diagnosed with anxiety, depression, OCD and complex PTSD. She then wanted to know what medication I was on for my mental health as it can be helpful for…
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Hi, my name is AnjaliG! Worried about my 28 year old autistic son.
Hello Everyone , I have just joined and please to be hear. I have a 28 year old Autistic son. I am worried about how he will cope once we his parents are gone. He has no interests and no friends. He is very capable but suffers from anxiety. I am sure some of will have had similar experiences. Please share your thoughts.…
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"back to school?"
This topic covers a few of the topic titles, and even if you don't have children of school age or college age there is always the part covered by Grand Parents and the "School run. After the school break, there is the rush to get school uniforms, books, and pens, and even organising the School run, for toddlers, primary…
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Is there any help with misophonia for my 13 year old daughter?
Hi I'm here because my daughter suffers from eating sounds misophonia. I had no idea this was even a phobia. She's only 13 and she's suffering really badly it's affecting her friendships especially outside of school. Birthday parties and going to friends houses. What help is available if any, professionally?
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Strategies to challenge OCD?
hallp chums. I am granny to a beautiful autistic grandchild who is 14, She suffers from high anxiety and barely leaves her bedroom.She hasnt been to school for 2 years. She also suffers from OCD extremely badly. I am wondering if there are any successful strategies to challenge her awful OCD which dominates her life. It is…
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Carers and Covid
My sister is a carer - she works for a private company who do not pay sick pay She has caught Covid 4 times now, every time - from her clients and each time - she has not been able to claim sick pay from her employer She has also not been able to claim sick pay from the government until day 4 The law needs to change -…
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LA taking full Care component for over night care
Hi My step son (29) whom lives with us has severe needs including peg feeding , he is receiving over night care 12 nights a year, the LA provide the money for this in his care package and he gives £11 a month towards this, they now propose to take his full care component of pip to pay for this over night care. Is there…
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Spotlight on surviving the summer holidays
Autumn term is nearly here. Summer has gone by so quickly. How has it been for you? My favourite part of Summer is being able to walk my dog when it’s still light in the evening. Hopefully the sunlight will stay for a few more weeks yet. What are your plans for the remaining few days? Maybe it’s last minute school shoe…
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Tac review for son with autism moving to yr5
hi- would appreciate any help on what to do. My son has pda autism which can manifest in stress situations in him disregulating and lashing out. The mainstream school he is in, had a change of leadership in yr 3 , and since then it’s been a struggle as they don’t understand him in the way the previous leadership did. He…
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Proper treatment of a child with CP problem
I am Painda Mand father of a son who is disable. I am deeply concerned for my child how to find a care center, where a CP child may be admitted for the treatment. My son aged 10 years is unable to talk and walk. What you suggests for me, as i am international citizen, abroad. But unfortunately, in our country there are no…
