How is your day going?
Comments
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@Marydoll5 that was quick since last time I spoke to you, good news that the op is going ahead. Good luck to your husband and you have us all here to lean on while your both going through it.
@Beaver79 glad your dog has biotics and not have his tooth out
@66Mustang I havnt had chance to read the threads either today. But we are all here for you3 -
Using my inhaler more today the pollen is high
Might pop a fan on to make some air
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@Beaver79 he will be in high dependency ward for a few days and then ward for a day then home if all goes well.
They said recovery at home is best and it will be a rough 6 weeks minimum.
I think I feel upset snd crying as it reminds me when he was discharged last year and I was scared I couldn't cope as I was so depressed and feel like that now...even though he needs this op and it's been so long.
@66Mustang I understand how you are feeling. I don't go on other threads. I tried the games but was no good at them. I'll have a look and please know I get so much support from you all here and want to give it back too. You are a great person who gives great advice and conversations which help me a lot.2 -
Hey everyone I hope yous are all doing well and hope yous enjoy your night.
I had a lovely day up at my mums but my legs and feet are sore now and I feel drained. I think I’ve overdone things and not sleeping hasn’t helped. So time to relax now. Sorry for moaning 🤦♀️@Marydoll5
Aww I’m so pleased your partner is going to get his op and it’s totally understandable that you are feeling anxious about his recovery at home. Could you not trying see if you could get carers in a couple off times through the day to help. We are all here for you.
@66Mustang
Im so sorry you aren’t feeling good today. And I’m sorry I don’t think I’ve saw your post as I usually always trying give you support when I can as I think a lot off you. I’m always here if you need to talk in a PM.I hope you find something to occupy you tonight.
@Sandy_123
Oh sounds like you had a lovely day but hope your taking it easy now.
❤️2 -
Sorry everyone I’m not trying to accuse any of you of anything if it sounded like that, it was more an example of how my mind comes to stupid negative conclusions that I know are wrong
I was kind of triggered by asking an admin for a little of their time not as an admin but just asking to share their experience of something that might have been good for me. I got rebuffed which upset me but again it’s my issue to deal with this stuff, not theirs, and I hope they don’t get upset by me being honest and saying this
I know you all care as much as I care about you all and am really grateful for being lucky to know you all
I went for a walk with the dog and feel a bit better now but I need a break from communicating too much I think so I hope you all have a lovely evening and see you tomorrow
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@66Mustang
I really wish you saw yourself as we all see you an amazing smart friendly compassionate person who gives a lot of your time on here to everyone.
I hope you can relax tonight and be kind to yourself. ❤️2 -
@Sandy_123 @Beaver79 and @Lou67 thank you for support and I will keep in touch next week as its vital I don't burrow myself away.
The issue from his discharge from hospital last August is that despite numerous offers of help noone came through except one friend who offered help with getting to hospital for appointments given the dire parking situation which was brilliant.
I will try and rest while he is in hospital to strengthen up. I'm afraid that I'm not strong mentally right now and that I haven't any support, no cpn and I have to be strong. I'm tired but thanks to you all I no longer feel alone and I can talk you3 -
@Marydoll5
Im not sure who you get in touch with to trying get carers coming to give you a bit off help but your doctor should know or Social Work, or someone else on here will hopefully be able to advise you as I think it’s a lot for you to cope with on your own.I really hope you can get something sorted, I will be thinking of you and I’m always here for you. Take it easy tonight and relax. ❤️2 -
Definitely rest whilst he is in hospital and take time to reflect on your self @Marydoll5 speak to the Hospital about care at home.
@Lou67 rest this evening too. Its easy to over do things.
I've just put the bins out ready for tomorrow and having a cuppa managed to plant a couple of plants only got two left to do now.
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Sorry @66Mustang, as I've not been around much with looking after my friend's dog, then housework & doing a bit in the garden, which never ends as you know; might have been guilty of some plants following me home at the weekend too!I did see one of your comments to an Admin, & whilst I thought it totally harmless, I 'think' they'd rather prefer to have comments & replies out in the open to help others instead, which makes good sense. I do think their wording could have been better, but honestly believe we have a really good set of Admins trying to help us all, so please don't take this wrongly. It's rotten when something like this makes you feel upset, but I'm absolutely sure this wasn't intended. I hope this Admin sees this & reconsiders. Thinking about you 66Mustang.Hoping everyone else is keeping well, & doing as well as they can3
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I woke up feeling absolutely exhausted, I had someone from the council coming to do a damp survey and he managed to open my bedroom window which had been painted shut. Dragged my son round to the shop with me as I really didn't feel right. After I got in I had a seizure and slept for two hours after. Managed to cook some dinner and relaxed with a jigsaw.1
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Hey everyone, up at silly oclock again, just couldn't settle, never mind, i'll take it easy today, do my chores later, i hope you all have a good sleep and a decent day1
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@Grinchy ... I'm with you there. I call them the Crystal Gayle nights ... "3 o'clock in the morning and it's going to be another sleepness night... "
Between not being able to switch my head off and the drug dealer across the road performing again, adding to the fibro' flare up ... makes it hard for the Melatonin my GP prescribed to knock me out.
At least I can catch up with what you're all doing2 -
@loladale87 welcome hope you have a better day today
@Grinchy an easy for you nothing worse then not settling
@WelshBlue that's a great name for it, hope an easy day for you too
I'm up early got drs at 8 for b12 early and out the way3 -
Hi all
Thanks @Lou67 and @chiarieds for the kind comments
Chiarieds - I was thinking about this overnight and the reason I wanted to PM instead of make a post was that I actually did have lots of respect this particular admin member and also I notice a few traits of myself in the way they come across so I thought if Access to Work successfully helped them into work, it might be able to do the same for me and wanted to hear experiences from someone who I can relate to at least a small amount
I'm not shy of posting on the general forum but I realised that if I asked everyone for their experiences I may get people wanting to share stuff like how they managed to help them get in a job when their disability is something entirely different from me - like epilepsy or being in a wheelchair - while I would absolutely love to hear their positive stories, I don't feel they would "encourage" me, as my disabilities are entirely different so it wouldn't mean I would have similar success
I hope this does makes sense but I do understand now that the admins don't have to help us if they don't want to and perhaps it was forward of me to ask so assumingly so I might ask on the public forum anyway at some point
I hope you are well today and thanks again for your thoughtful words1 -
Hi everyone
I hope you all have a good Friday today
I'm not sure what the plans are for us but my Granny has not had us do a shopping trip for her for over a week so I think maybe that's on the cards for today
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Morning @66Mustang can I give you my list too.
It's 24 degrees here today1 -
Hahaha @Sandy_123 I actually enjoy shopping, I don't have any physical restraints and it gets me out, I would gladly help if I loved closer
24 degrees sounds about right, not scorching, I hope you enjoy it1 -
Morning all.
A lovely day here after a misty start.3
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