Autism/Depression

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  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Until Labour do something we have one another to chat to @Andi66 . Take care of yourself. Be kind to yourself too.

  • bookrabbit
    bookrabbit Community member Posts: 201 Empowering

    I have recently started wondering if I have ADHD as well as autism. I get the racing thoughts constantly and feel restless and anxious all the time. I really need to move and be active but as I also have a lot of pain and fatigue I really can't do anything like as much as I want to.

    I never used to think I had attention problems because I get hyper focused on my special interests but that is in itself an attention problem isn't it? Because it means I don't pay attention to other things that I really ought to. I only get things done when I write them down and tick them off.

    I simply can't make a decision properly because life has too many variables. I always agonise over making up my mind trying to get it exactly right but then jump randomly when I run up against a time constraint or simply can't bear being trapped in my thoughts any longer. The only way I can get to sleep is to have my mind occupied by an audiobook so my thoughts don't wander off in painful directions. And after a life full of bad decisions there are a multitude of those. Having it playing also gives me something to focus on if I wake in a spiral of bad thoughts too.

    I really don't think I am depressed as such and absolutely don't want meds for it with all the side effects and additional problems that would bring. I think anyone in my situation would spend a fair bit of time crying. There is only so much a person can cope with.

    I do that analysing thing after every social interaction too. It is dreadful. Round and round and round. Picking out every wrong word I spoke and seeing every way I misunderstood at the time and picking up every negative connotation of what the other person said and what they could have thought I meant because my words were ambiguous.

    I was homeless earlier this year and really wanted to get on with the neighbours but already I am sure they all dislike me. I try to reign in my paranoid tendencies but it isn't all my imagination. I can't even do social situations with my family, in fact they are the worst because I feel they ought to be understanding but they aren't at all. It seems that I am the only one who even attempts to understand and make allowances for their behaviour. My physical problems are obvious but even if I try to explain that I am autistic I just get a comment such as isn't everyone on the spectrum somewhere? I can't begin to explain how severe my social anxiety is. For ten years I was basically locked away from the world after complete emotional burnout and only emerged because I was thrown out of my home. I am trying to get something positive from it by re-engaging with the world but am not being very successful.

    While anxiety definitely goes along with autism I am not convinced that depression does. It is just so hard to cope with the neuro typical world out there!!

  • Kali85
    Kali85 Community member Posts: 91 Empowering

    wow I relate to everything you have said (apart from the depression bit as I am extremely depressed bcoz of awful things that have happened in my **** life I also have complex PTSD) the way you have worded everything especially the analysing of social interactions was worded perfectly like how you think about words you said wrong and how you could of said it better etc I do the same thing, I replay situations out and think of how I said wrong thing or my body language was wrong, or how the person could of misinterpreted that so I should of said something else instead, also play out the situations a completely different way to how it actually happened too it gives me a headache going on and on! I really struggle to put my problems into to words I struggle to explain my struggles if that makes sense, I am always in my head constantly I psychoanalyse myself to try to find the best possible way to explain my pain or problems so normal ppl will understand me, and I also psychoanalyse myself to try and work things out to try and help myself or my situation. I to feel like I always make wrong decisions all the time my life is full of the wrong decisions, I also dwell on those wrong decision and hate myself for making them! I am ridiculously indecisive I hate having too many options sometimes I end up just shutting down and going without something bcoz I cannot decide! Too many options frazzles my brain. I have a very big family and I am unable to be around them as I cannot do more than 1 or 2 ppl at a time If there is a group of my family I get so anxious my heart races and I go completely quiet I won’t say a word as I am stuck in my head it’s like I freeze, I sometimes have panic attacks too, if I have to do a family thing like funeral etc I have to drink lots of alcohol just so I dont feel like I am frozen with anxiety. My family are not understanding in any way, they have the kind of attitude of “just snap out of it” or just do this or that, “why am I so weak kinda attitude”, or “I’m pretty sure your brother has autism but he just gets on with life he works!” “You’re just being lazy!!” My family are not supportive at all! Over a decade ago I had nervous breakdown and I didn’t leave my flat for over a year, I was diagnosed with agoraphobia I had to do CBT to eventually get me out of the house, I still don’t like going out now I try to do my shopping online, or if I do go shopping it’s with my partner and we go late in the evening so it’s not busy, I can never go anywhere alone either, I feel so bad as my partner wants to go out and do things like he loves to travel abroad I cannot do an airport and certainly not a plane! (Claustrophobic too!) I can only go out somewhere with ppl like groups (not too over crowded or packed) if I drink alcohol I feel really pathetic at times I just want to live my life without crippling anxiety!! Makes me so sad, I don’t want to live in my head! I am sick of family or friends making me feel like I am constantly making up excuses to get out of doing something or making me feel like I am lying, I never lie I am too honest for my own good! I actually don’t understand why ppl lie! I am sick to death of being misunderstood by family and friends I feel like nobody cares or has any compassion for how hard it is to be me.

  • Andi66
    Andi66 Community member Posts: 403 Empowering

    Makes me annoyed when people say to you every one is a bit autistic, it's patronising and makes light of the condition. Because I tend to be a bit slow for things to sink in at times , been called retarded . No good at relationships or friendship. Get taken advantage of in both. I find it impossible unless I'm with someone to go outside of my small city. I've had trauma in my life and just finished counselling after a 4 year wait. Even then it may connect the pieces that things are linked ,in my case since childhood but it doesn't stop people in the here and now being so cruel that it effects you. I think in my case I don't want close friends, ends up one-sided,

    Even though they are to blame ,they blame you. They have no understanding of autism. How space is needed ,to them they see you as selfish and that you are snubbing them. When all you want is a week of peace to help you focus and rebuild but that to them , we are the selfish ones.

  • Kali85
    Kali85 Community member Posts: 91 Empowering

    I’ve heard ppl say a few times that they think all males have autism it really annoys me when I hear that! I just try and keep myself to myself as ppl always mistreat me and I am so sensitive too so I get really upset. That’s awful that someone called you retarded ppl can be so cruel, my brothers always call me stupid and slow bcoz I take things that are said literally so I look really gullible so they constantly say certain things just to make me look stupid! I also take a while for things to sink in too, like I don’t always get a joke straight away takes me a while.

  • Albus_Scope
    Albus_Scope Posts: 7,883 Online Community Team

    I can empathise so much here. I get so annoyed when people say "Oh, but aren't we all a bit ADHD/Autistic?" No, really we are not. Come and spend a few hours in my shoes, then think about that statement again. 😆

  • Kali85
    Kali85 Community member Posts: 91 Empowering

    yeah it’s abit like when someone says they have OCD just bcoz they like things tidy/clean they do not understand exactly how complex OCD is. By ppl keep making gestures like that towards any kind of mental illness and neurodivergent individuals it is kind of desensitising ppl to these conditions and making them seem like minor everyday problems that everyone has.

  • Albus_Scope
    Albus_Scope Posts: 7,883 Online Community Team

    Agreed @Kali85 I've had the same issues with people, also with others saying thinks like everyone gets depressed, or everyone has anxiety. It can really get to you, but I always try to remember they're only speaking from their experience and are trying to connect with you, often there's no malice meant. But I know it can still sting.

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Does anyone with Autism find many noises annoying?

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    I find many many noises are very difficult to cope with

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Many many times I shut windows/ doors etc to keep the noise volume to as minimal as possible.

  • Andi66
    Andi66 Community member Posts: 403 Empowering

    Yes, my daughter has very sensitive hearing. but I also got tinnitus so the hissing i hear does get on my nerves

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Sounds like you and your daughter don't have it easy. Thank you for your response though it's apparently 🙂.

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Sorry @Andi66 , I keep posting words which are the wrong ones . I was supposed to say Thank you for your response it's appreciated. Sorry @Andi66 .

  • Jimm_Scope
    Jimm_Scope Posts: 5,216 Online Community Team

    My partner has misophonia @Strawberry1 which is a form of sound sensitivity. We don't know if she has autism yet as she hasn't had the assessment yet, waiting lists as they are but her GP agreed that a lot of things seem to point towards it which is why she was referred.

    Sensory issues is common with autism. My partner struggles with eating sounds. It's like nails on a chalkboard to her she says.

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Thank you for the feedback back @Jimm_Scope . Hope the assessment happens soon for your partner . I always appreciate feedback 😊.

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Are any Autistics here introvert ?

  • Andi66
    Andi66 Community member Posts: 403 Empowering

    Yes I am, r

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    I'm awaiting an autism assessment and have lots of autistic traits . I was curious if others where introvert too .Thank you for responding to my question @Andi66 much appreciated. Thanks for taking up your time to answer 🙂.

  • Strawberry1
    Strawberry1 Community member, Scope Member Posts: 5,201 Championing

    Starting to get quite worried about my assessments for the autism and adhd. Wondering if I did the wrong thing by asking for an assessment. I really can't make up my mind now .