Hi, my name is Purrpuss! — Scope | Disability forum
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Hi, my name is Purrpuss!

Purrpuss Member Posts: 3 Listener
Actually my name is Gwen but I'm a mad cat lady.  I'm 72 and live in Scotland.  I have Ehlers-Danlos Syndrome which is a genetic condition that causes my body to produce faulty collagen.  Collagen is the "glue" that holds ones body together.  For people with EDS this doesn't happen (in varying degrees of severity) and we are easily prone to sprains, dislocations, prolapses, hernias, chronic pain and fatigue.  Lots of other bizarre things that tend to coexist with EDS such at POTS and craniocervical dysfunction but I won't bore you with those.  I have EDS fairly mildly but it's still a pain in the a*se that I could well do without.  I'm a retired mental health nurse/social worker, a keen bridge player and volunteer for a couple of animal related charities.  I have a lovely, supportive partner and a large, goofy cat.



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