What are the most important things that would help you live and work independently?

Richard_Scope
Richard_Scope Posts: 3,699 Cerebral Palsy Network
in Cerebral Palsy Network
In response to the NICE draft guidance on Adults with Cerebral Palsy, I would love to hear about what are the biggest barriers that people with CP face when wanting to live and work independently? What changes do think should be made to make it easier for people with CP to live the life they choose? 

Comments

  • Richard_Scope
    Richard_Scope Posts: 3,699 Cerebral Palsy Network
    I would love to know your thoughts @Chloe_Scope, @littlemissinnocent,  @Stayce, @niceboots
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    When getting into education I found that biggest barrier was being able to access the correct support. The processes are long- winded and not tailor to the individual. I often have to seek out my own support and do the leg work. I worry that people who weren't as confident in doing so would have to go without.
  • sheryl1120
    sheryl1120 Online Community Member Posts: 7 Listener
    HI Richard, I was born with cerebral Palsy pip just awarded me the standard rate, and now have to hand. back my mobility car next month, which was by the lifeline to the outside world, DLA I was on higher mobility and middle care allowance. Is there anything I can do, a can you give me any advice please thank.
  • Richard_Scope
    Richard_Scope Posts: 3,699 Cerebral Palsy Network
    Hi @sheryl1120
    Thanks for your post. I'm not a benefits expert but we do have a wealth of information from other members of the community:
    What Benefits am I entitled to?
    Talk about PIP/DLA
    We also have a helpline on 0808 800 333 where you can speak to one of my colleagues.

    Keep in touch.

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