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What are the most important things that would help you live and work independently?

Richard_Scope
Posts: 3,106
Scope community team
In response to the NICE draft guidance on Adults with Cerebral Palsy, I would love to hear about what are the biggest barriers that people with CP face when wanting to live and work independently? What changes do think should be made to make it easier for people with CP to live the life they choose?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead
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Specialist Information Officer and Cerebral Palsy Programme Lead
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Comments
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Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
When getting into education I found that biggest barrier was being able to access the correct support. The processes are long- winded and not tailor to the individual. I often have to seek out my own support and do the leg work. I worry that people who weren't as confident in doing so would have to go without.Scope
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HI Richard, I was born with cerebral Palsy pip just awarded me the standard rate, and now have to hand. back my mobility car next month, which was by the lifeline to the outside world, DLA I was on higher mobility and middle care allowance. Is there anything I can do, a can you give me any advice please thank.
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Hi @sheryl1120
Thanks for your post. I'm not a benefits expert but we do have a wealth of information from other members of the community:
What Benefits am I entitled to?
Talk about PIP/DLA
We also have a helpline on 0808 800 333 where you can speak to one of my colleagues.
Keep in touch.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
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