AOS Adam and Oliver Syndrome — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

AOS Adam and Oliver Syndrome

Danny1980
Danny1980 Member Posts: 3 Listener
Hello everyone,

My name is Danny.

I have a disability called AOS Adam and Oliver Syndrome which is pretty rare from what I've been told by many doctors over the years.
It basically means that for example my right leg has not fully formed and I have a few missing fingers on each hand.

I have joined this group to chat with disabled people. The reason for this is I went to a normal school and and have grown up with able bodied people all my life with very little interaction from people with disabilities not by choice but by circumstance. I have felt low over the last few months by having more of what I call disabled days. Days where I feel under appreciated, ignored and under valued. I understand that I may be just feeling sorry for myself but the time has come to reach out to people who know how I feel or people who know how to cope with living as an alien on this mortal coil lol.

Please get in touch for a chat if you like

Danny

Comments

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.