AOS Adam and Oliver Syndrome
Danny1980
Online Community Member Posts: 3 Listener
Hello everyone,
My name is Danny.
I have a disability called AOS Adam and Oliver Syndrome which is pretty rare from what I've been told by many doctors over the years.
It basically means that for example my right leg has not fully formed and I have a few missing fingers on each hand.
I have joined this group to chat with disabled people. The reason for this is I went to a normal school and and have grown up with able bodied people all my life with very little interaction from people with disabilities not by choice but by circumstance. I have felt low over the last few months by having more of what I call disabled days. Days where I feel under appreciated, ignored and under valued. I understand that I may be just feeling sorry for myself but the time has come to reach out to people who know how I feel or people who know how to cope with living as an alien on this mortal coil lol.
Please get in touch for a chat if you like
Danny
My name is Danny.
I have a disability called AOS Adam and Oliver Syndrome which is pretty rare from what I've been told by many doctors over the years.
It basically means that for example my right leg has not fully formed and I have a few missing fingers on each hand.
I have joined this group to chat with disabled people. The reason for this is I went to a normal school and and have grown up with able bodied people all my life with very little interaction from people with disabilities not by choice but by circumstance. I have felt low over the last few months by having more of what I call disabled days. Days where I feel under appreciated, ignored and under valued. I understand that I may be just feeling sorry for myself but the time has come to reach out to people who know how I feel or people who know how to cope with living as an alien on this mortal coil lol.
Please get in touch for a chat if you like
Danny
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Comments
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Hi @Danny1980
Welcome to the community, thank you for joining us.
Thank you for sharing this with us. We are all here to support you
On Tuesday 19 February, we'll be hosting a Q&A all about rare diseases here on the community, feel free to ask questions and join us on the day.
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Hi @Danny1980
Thank you for sharing and a very warm welcome to our community. We really appreciate you being here!
Please feel free to join in with our Recent discussions.
Let us know if there is anything else we can help you with.
Take care
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Thanks guys0
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Hi Danny it is Masuma0
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Danny I have worked with special needs children0
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I can be your talking buddy Danny0
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