I've got Asperger's syndrome and epilepsy — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.

I've got Asperger's syndrome and epilepsy

Funkimunki17
Funkimunki17 Member Posts: 24 Listener
edited April 2019 in PIP, DLA, and AA
I've got both epilepsy and Asperger's syndrome, which I have had all my life. I feel that when I went to the tribunal, the doctor tried to say that if you're on medication for epilepsy then you can't have sezuire at all. 
In regards to my Asperger's syndrome, I found it very hard to keep calm while I was in the tribunal due to the amount of pressure the doctor was putting me under.
Would this be classed as discrimination against people who have these conditions?

Comments

  • cristobal
    cristobal Member Posts: 987 Disability Gamechanger
    Everyone is different - my daughter has epilepsy, takes meds and fortunately leads a normal life.

    I'm no expert but I can't think of many medications that a doctor would say are 100% successful.... Did you tell him/her that you still have seizures, despite the medication, and how frequently?


  • justg72
    justg72 Member Posts: 173 Pioneering
    I've got both epilepsy and Asperger's syndrome, which I have had all my life. I feel that when I went to the tribunal, the doctor tried to say that if you're on medication for epilepsy then you can't have seizure at all. 
    In regards to my Asperger's syndrome, I found it very hard to keep calm while I was in the tribunal due to the amount of pressure the doctor was putting me under.
    Would this be classed as discrimination against people who have these conditions?
    Hi
    I have temporal lobe epilepsy and mine is treatment resistant. I have tried many medications and I have daily grand mal seizures. I went to see my epileptic specialist last week and he stated that 1 in 3 people with epilepsy do not have their seizures under control. I am waiting for my tribunal date and I have a letter stating that mine is not under control and I have daily seizures. What has been said about you not having seizures because of the medication you are on is so untrue and it is not right what has been said. What is the outcome of your tribunal? have you asked for a statement of reasons?
    I hope you get a the outcome you want. I can not believe a doctor as said such a statement is so wrong. Good Luck.
  • mercedesbd
    mercedesbd Member Posts: 109 Courageous
    What was you awarded if you don’t mind me asking?
  • Funkimunki17
    Funkimunki17 Member Posts: 24 Listener
    I've not been given a decision on my award for pip, as I've had my case adjourned due to lack of medical evidence and also the tribunal wanted to find out off the DWP as to why they gave me the enhanced rate of mobility when it was called DLA. But sadly in the meantime I've not got a car
  • twonker
    twonker Posts: 617 Connected
    I thought that DLA and PIP look at things from a totally different view point?

  • cristobal
    cristobal Member Posts: 987 Disability Gamechanger
    @ilovecats - does the following a route part on it's own not count? I only query this, and I do so reluctantly, because I'm aware of someone with a Motability who has no physical issues at all?
  • poppy123456
    poppy123456 Member Posts: 28,560 Disability Gamechanger
    Enhanced mobility in either mobility part or a mixture of both parts will allow a motability vehicle. My daughter has Enhanced mobility in following and planning a journey but doesn't have a car because she can't drive but the option is there if she wanted it.
  • bigglesworth
    bigglesworth Member Posts: 23 Connected
    edited March 2019
    I have read in quite a few places that simply having a driving license automatically means you are classed as having no difficulties planning or following unfamiliar journeys. The way some of this unrelated stuff gets linked together seems a bit bonkers.

    I feel I had a similar issue with my IBS. Over the past few years I have been on 20+ different anti-depressants / anti-anxiety / anti spasmodic medications and they either did nothing or left me with narcolepsy type side effects. Eventually my GP decided there was nothing else that could be done and we left it at that.

    During my MR, one of the comments from the decision maker was that I can't have difficulties if I am not being strongly medicated to treat them. So it seems some people dealing with PIP simply do not understand that medications are not a cure-all.
  • twonker
    twonker Posts: 617 Connected
    Not having or not taking medication and not receiving specialist care will normally result in a refusal for PIP.
    The assessor/DWP take it that without the above two being in place the claimant cannot be as disabled claiming the impact involved. 
    Claiming that you drive a car is likely to also go against the claimant as is not having Social Services input or other OT services.
    Also if the claimant claims Carers Allowance then doubt arises in that the CA claim is not genuine  or the impact claimed is over stated.

Brightness

Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.